I am a 26 yr old male with ccTGA, repaired VSD and conduit in 1989.
My recent cardiologist visit yielded; through MRI, that my right ventricle is fairly dilated, my RVEF is 23%, and I am having more and more PVC's. Seeking a second opinion I visited my Pediatric Cardiologist and he had mentioned that he saw no changes in my echo other than the frequency of PVC's. Upon revisiting my Adult Congenital Cardiologist (yesterday) he is recommending me to a Heart Failure specialist for medications and a visit 12mos. from now. He also noted that since this was my first MRI that things may have been like this for a long time and may just be the way things work for me.
It's hard not to look at what is all over the internet. But not everything is reassuring when I do.
I have a lot planned in life, time with family, engagement, etc. and I am fearful that this is all just the begining of the end. Has anyone any experience with ccTGA and what I could/should expect in the future? Will this just morph into CHF and the necessity for a transplant?