hcm and pvc

[almost]

my 26 year old son has hcm and has been on verapermil for a year now. i don't know the dose but its low. the hcm was found due to the pvcs he was having which the dr said aren't dangerous and the medicine pretty much made them go away. he's had several promotions at work and for a couple of weeks a quarter he is under some heavy stress. he is starting to get several pvcs daily during this time. he's not concerned i am what is your opinion of this. are they as harmless as he was told or did we misunderstand. are they also common with lots of stress.

[wmac]

Well I certianly am not going to argue with you over something so silly, but if you would have read some of the post before your post I just simply asked a question to someone asking if they had nsvt? Just a simple question and you come back saying what you did and I think most of us were past the main question and on to our own little ordeals, like myself. I really dont think you should be so upset. I have read many post from you over this forum and other forums, you are definantly entitled to your opinions as well as the rest of us. I just dont think that was a fair statement coming from you and saying that our  worry is unnessasry. Thats a very harsh thing to say when we are all worried thats why were here, is to help each other and comfort each other no matter what, and yes everyone in this forum including myself are worrriers if we werent worried we wouldnt be here. But when we here from family and friends not worry and they dont know how we feel we turn to this forum, its like all the other support groups.So im very sorry that you feel the way you do and I dont think you should quit posting either you have been a huge help to people and im sure it helps you as well, Im just confused, are you a doctor or pharmacist it seems to me i read that you were a doctor on some other forum???

[valger]

Hi, and thanks for all the help on here!!  I am sitting here comtemplating going to the ER, so you must be wondering why I'm on here, but it usually makes me feel better to come on here, and think more about it before I do it.  I certainly don't want to live my life in the ER, and they usually can't do anything for you in there anyway.  It's just that the cardiologits here where I am have such a long wait for appointments.  I have an echo on the 14th of this month I think it is, but I don't see him to discuss it till January.  The thing is, I have PVC's each and every day, probably in the thousands, but today I'm having an especially bad day, which happens sometimes.  They are just very frequent, and strong, really getting my attention.  I don't really have any other symptoms with it, except for a breathless feeling, which comes with the anxiey about the PVC's, like I'm always trying to take a good, deep breath.  I don't know whether I should go to the ER or not.  I feel like it might be good to catch them when they're so bad like this, but then it makes me nervous to go and do that when I have two kids in school, and a husband who's away at work in another state today.  If I just sit down and relax, they will hopefully calm down to a few a minute, and I can live with that.  The thing I get worked up about is this sudden death thing, and I was trying to make sense of the above posts, but I think I'm even more confused.  Sudden death is more common in those with PVC's like I'm having them, right?  My Dad did have sudden death, but he had restrictive cardiomyopathy, and supposedely sudden death is classic for that.  I have had numerous tests, but I am due for another echo.  Anyway, it just makes me feel better to know that some of you have them as much as I do, in the thousands per day, and your doctors don't seem overly concerned.  It's not that my cardiologist seems concerned really, just baffled.  He can't figure out why I would be having these like this.  I have said before, so sorry to repeat myself, but the one thing I can link them to is hormones, since I am still going through menopause, even though I started going through it very early.  I am 44, and this started over ten years ago.  I guess also the thought of going into the ER just comes from some days when you feel like you are just so sick of it, and you can't handle it anymore.  I feel stronger on some days, as far as being able to deal with it.  I think I get overwhelmed with the thought of what my Dad had, and worried that I could have that, and then when I think of my Dad, there's tons of grief still there about missing him also and all of that, so it probably goes hand in hand.  OK, so now I'm babbling on, anyway, thanks again for the advice!!  Val

[CareBear59]

Hi Sylvia........
How long was your NSVT that you had recorded on your event monitor? I also what they thought was like a 6-7 beat run of that and it really scared me, but they don't seem concerned.  How frequent do you get the PVC's?
Carrie

[starling97]

Hi Carrie, my NSVT was a four beat run. I have had four holters, I had one four beat run show up, three pac's, one pvc. My doctor told me that I have much less than most people, it is just that I am very aware of what my heart is doing so that I feel every single one! Hi hankstar, I agree with you. I think that the doctor was referring to people diagnosed with HCM, but I do try to stay informed!.....Sylvia.

[starling97]

Hi, Yes I have had NSVT show up on a holter. I was very upset with this, but my doctors were not concerned. I try to trust them! They are some of the very best out here in the San Francisco Bay area. I have been to UCSF and Stanford to see the top cardio, and they all told me the same thing, with a normal healthy heart, it is harmless! It is just such a horrible feeling when it happens, that it is so hard to believe that it is harmless. My doctor told me that he would never let me walk out of his office without treatment if he thought that this would hurt me, so I just try to trust his knowlege! I wish the doctors here could comment a little more on this subject, as there seems to be a lot of fear. Thank you.....Sylvia

[wmac]

Thanks for your reply, i do appericate it  and to carebare, that was my next question. If either of you would like to talk about your nsvt email at ***@**** im very interested about your stories.