heart

[caz223]

hi i have just found out my 2 year old daughter has pulmonery valve stenosis she hase just had a scan done and iv received a letter explaining wot they saw can u tell me wot peak velocity of 3.1m/sec trivial pulmonary regurgitation means plz

[mariaf83]

hi just thought i would say my daughter was born with heart defects and suffers from pulmonary valve stenosis she is 1 on oct 7 and was born 3 months early.
I have heard of noonans syndrome and at the clinic we attend there are children with this condition.
cardiac consultants are brilliant and will advice on what to do, look out for and when / if she needs surgery.
Good luck and I hope your lo is doing well despite this shock you both have to deal with.
Maria
x

[caz223]

im just glad i can talk to some one who understands what im sayin its a big releif thank u for all ur replys it means so much to me thank u

[grendslori]

Take photographs of her blue lips and legs, in good light, so that he can see exactly what you are talking about. I can really relate to some of the things you have written here.

[caz223]

yh he said its nothin to do with her heart they are runnin loads of test for noonans syndrome and a load of other stuff. she was born with cataracs as well so she got a few things wrong. it is scary as no one in my family have these problems

[grendslori]

Have you discussed this with him?

[caz223]

hi yeah she is under the care of dr tarak desai  peadiatric at birmingham childrens hospital she see's him evey 6 months but i get worried as she goes blue round round her lips and her legs.

[grendslori]

Velocity means how fast blood is moving . The trival pulomary regurgittation simply means that the blood has a slight blackflow through the pulonary valve. Are you seeing a pediatric cardiologist for this? If not, that is the specialist you should be seeing.