mixed conective tissue disorder

Gazzer33

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i have just returned from the Royal North Shore hospital Sydney where my 9 year old daughter has been diagnoised with mixed connective tissue disorder, she was addmitted on sunday with very high fevor butterfly rash on her face and body, swolen joints, eratic blood pressure numbness and pin and needles all over her body they have administered cortosoid and antibiotics, she is a very sick little girl, they said today ther is evidence of muscle fibre damage, I have never heard of this desease before, what do I do ? where in the world is the best specialist i can see, please help I am desperate...

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Gazzer33

thankyou

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ireneo

You may want to check in on the "Lupus" forum. They have a lot of experience with such things and can talk rheumatology with you. I do think they can direct you to some excellent information and sites. I'm sorry your daughter is going through this at such a young age.

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