Hi- My partner and I are meeting with a heart surgeon on Monday to schedule surgery to repair her mitral valve and an ascending aortic aneurysm with a dissection. She already has an artificial aortic valve and because of the difficulties she has had with spontaneous bleeding of the subdural they don't want her to be on anymore coumadin so he doesn't want to replace her mitral valve. If she wasn't having problems with spontaneous bleeding he has stated that he would replace the mitral valve. She is only 40 and has Marfan's syndrome, so he isn't recommending a biosynthetic replacement.
As someone that has gone through heart surgery more than once, are there any questions that you would recommend that we ask the surgeon? Do you have any personal advice for her as she is very hesitant and scared to have a second operation? Her last operation was twelve years ago and her recovery was difficult. I appreciate any input, words of wisdom or advice you have to offer.
Thanks,
Renee
Hi
It is hard to say when surgery is best. They use specifice criteria. If you are symptomatic..with peripheral edema etc it may be time.
I have just had my mitral valve replaced for the second time in 11 months. When I originally presented, I was in Atrial Fib, uncontrolled. They will probably want to know about your palpitations. That can indicate geater irritation etc in the LA. I didn't see a RA dimension but the 4. something is not too bad. If you have surgery, inquire about the maze procedure. I had a modified one last time and this time I had the pulmonary vein isolation approach. I am now on my intrinsic rhythm with pacer backup only and seem to be coping well with it. To not be pacer dependent was alway a goal I had but they were not optimistic because of my biatrial enlargement and scarring that was already there.
I also had a ring placed on my TV valve this time and ablations in the right atrium for the atrial flutter. I have been plagued with the futter and periodic atrial fib(cardioverted 7 times in less than a year) So far all is going well just have to mend and get my strength etc back. I ended up with a whole groups of new Doctors, surgeons and cardiologists. It worked out wel but I had to be the advocate for myself. It is unfortunate but I am sure there are many people who would not have known what to do and how to navigate the complex health care system we currently have.
bings,
thanks for the post. It really is impossible to distill the raw numbers from your echo into recommendations about valve surgery, as looking at the numbers is like looking at a paint by the numbers painting. You really need to look at the painintg to understand the big picture. More importantly you need to look at the patient.
Your EF and pulmonary pressures are normal, as are the dimensions on your echo. However you are having symptoms which could easily be the regurgitation. I would think you have a couple of options.
You could follow serially your echo, looking for signs of damage or progression of the regurgitation over time while trying to maximize your medical therapy with vasodilator therapy (eg ACE inhibitors). There is nothing wrong with this approach.
Another option would be to try a stress echo to examine the contribution of your MR while active, which could be much worse.
The main issue is the mechanism of the regurgitation and the type of repair or replacement of the valve that might be needed. An isolated mitral repair in the hands of a skilled surgeon has little long term risk.
Either route, I would make sure I had the procedure in a facility that does a large number of procedures a year. If there is any concern, there is nothing wrong with seeking a second opinion.
good luck