My 42 year old son has just been diagnosed with stage 4 cardiomyopathy. He is in Florida and I am in Pennsylvania so I cannot go to the cardiologist with him. He was rushed to the hospital 3 weeks ago with congestive heart failure. He is HIV positive although his T cell count is good, has hepatitis C, has been a smoker and drug/alcohol user for almost 29 years.
He is in denial I think and so am I to a certain extent. He has never had heart problems in the past although he says he has noticed for the last few years that he has been getting more winded.
I want an idea of what is ahead and what planning I need to do with him. He is just getting on medicaid and has an appointment with social security in a few weeks for disability.
I know that no one has the answer to how long he is going to live, but any comments would help me. Thanks.