I had a mitral valve repair (leaflet) when I was five years old (1974). I have had regular EKGs and echos through the years and and have had increased regurgitation. Over the last two months my symtoms have increased to the point where regular activity is troublesome. I have had short of breath at rest which increases greatly with activity, increased palpatations, dizziness, coolness and tingling in my toes. I have been relitively active to this point, including walking 4 days a week. My recent echo shows 4+ reguritation, with an enlarged atrium, mild stenosis, and increased pulmonary hypertension. My left ventricle is normal, but there is bicuspid and tricuspid insufficiency. I am scheduled for a TEE next week, but I have been told by my cardiologist that surgery will be in my near future. It has been suggested to me several times that a valve replacement may be necessary. This is an option that I would rather not consider if possible. I have researched many of the cardiac surgeons in my area, Buffalo, and have been unable to find a surgeon who specializes in valve repair or replacement. Because of my age, 31, I would rather have a repair if possible. I have read many articles about different types of valve repair done by the Cleveland Clinic that are not performed in my area. I am curious to know the process of being referred to your hospital even if my cardiologist believes someone in my area can do the surgery. I would also like your opionon on activity level I should be maintaining with the information I have provided.
Thank You