Bethany,
Sorry to read of your troubles. I'll try to answer your questions in order.
1) The best way to keep the EF from dropping is (a) be fairly certain that indeed the tachycardia is causing the cardiomyopathy and (b) control the tachycardia.
2) I'll assume that you already are taking beta-blockers or are intolerant to them. If medicinal therapy is not working to control the tachycardia, more agressive measures may be considered. One potential therapy would include an ablation procedure with a pacemaker. You would want to discuss this with your electrophysiologist at the BI as well as at another institution (for a second opinion).
3) An EP study might be considered to ensure that you don't have an ectopic atrial tachycaria masquerading as sinus tachycardia. Most patients with a newly diagnosed cardiommyopathy at the Cleveland Clinic would undergo a right and left heart cath as well. Also, other causes for the cardiomyopathy should be at least discussed, such as autoimmune disease, HIV infection, familial cardiomyopathy, peri-partum cardiomyopathy and ischemic heart disease.
Good luck.
Hi Bethany,
I have had your symptoms in a lesser form for years. Mine was caused by the thyroid. This may be an over-simplified question because one assumes that the doctors start with the simplest possible solution first but, have they checked your thyroid levels?
Also, could you remind me what ablation is?
Thanks and good luck,
TQ
Hia, I'm early 30's and was also treated for over 6 months with Sinus Tachy (180's at rest) and a dilated cardiomyopathy. Despite my asking twice they insisted the Tachy was a sympton of the DCM and not the cause because it was Sinus.
At the eleventh hour as I was due to have a pacemaker (so they could increase the beta blockers to control the tachy) they discovered I had Atrial Tachy and NOT sinus afterall. I had an ablation which cured it and fingers crossed my DCM is now improving.
The point is you MUST go back and ask for a full EP study to rule out atrial or other Tachy as opposed to Sinus, my hospital was one of the most respected heart units in the country and my Cardiologist was respected in his field too and yet they STILL missed it!
Go back!
Thank you so much for sharing your story. I see the specialist today and it's good to know what questions to ask. My cardiologist at Mass General was supposedly good, but all he ever did was tilt test after tilt test. My new cardiologist has done nothing because he wants me seen by the cardiomyopathy specialist. I'm so glad to know what to ask about and to know that there are options. I hope you continue to do well. Thank you and good luck. Bethany
One other thing... the chronic tachycardia is causing huge amounts of weight loss. The doctors said it's like doing aerobics around the clock and is making me hypermetabolic. I am 5'1" and down to 92 pounds. How do I stop this? Thanks again. Bethany