I have had Sarcoidosis (Pulmonary) for 19 years. I am a 51 year old healthcare worker. I have also had other manifestations such as an Iritis and Uveitis for which I was treated in Boston. Two years ago I developed Bigeminy and my description was shortness of breath with walking and a fish flopping in my chest. I was hospitalized, the cardiac enzymes were negative, my cholesterol is normal, and my EKG showed Bigeminy. I was started on a Beta Blocker (Metoprolol 12.5mg TID due to long acting dropping my rate into the 30's). This converted me back into Sinus for two years. I suddenly began having Bigeminy on this medication and my holtor confirmed it. We tried different doses of Metoprolol with the same effect. I have gone to see a EPS doc who did an echo, stress test and lipids. We tried a Calcium channel blocker and I had severe leg cramps, hand cramps, nech spasm and bad headache. We stopped that and put the beta blocker back on along with Mexitile 150mg BID. I was still in Bigemeny so he increased the mexitile to 150mg TID. Now he wants me to see the pulmonologist because he thinks my SOB is not cardiac but Sarcoid related. I was not SOB before I went back in Bigeminy.
My questions are:
1) Shouldn't we do a gallium scan to prove definately if the sarcoidosis has inervated my heart???
2) Is there any other test that can help us distinguish this?
3) Where is a good place to get a second opinion as I live in a small rural area, in Pennsylvania near the New York state border, and I am not feeling confident with my care?