OK. Here's the deal. What %-age did your doc give you for success??
If it's somewhere in those lands - then be 95% or 85% freaking PUMPED AND EXCITED AND READY like you're 7 years old and Christmas is around the corner.
I had mine done in July 2010. Not a blip of SVT since. I just PR'd a full marathon this past weekend.
Ablation works for AVNRT. Or whatever brand of SVT you have. It's really stinking expensive, so don't squander this gift of heart rhythm. Git 'er done and a couple weeks later... hit the gym and LIVE!!
Thanks again, i'm sorry to hear you are having a rough time with yours. Hope that they can diagnose something for you soon and get you right. Horrible not having control over these things isn't it.
I'm on countdown 23 days :-(
Thank you for your response, i'm still getting the hang of it on here sorry if I'm posting like a geek! I'm starting to feel a little easier (microscopic amount haha) i tend to focus on thee worst case scenario, the small risk of things going wrong like needing a pacemaker fitted. Bit silly i know. But the centre that i am going to for my ablation, the Queen Elizabeth in Birmingham, sounds as though it has a very experienced team there, I believe they do around 800 per year.
I hope that i bounce back as quickly as you, i am not as fit as i was before i had my son. I used to do circuit training and spin classes but i am too afraid to do anything that raises my heart rate in fear of having an episode or getting these weird skips in my chest. (can you tell i am a complete wuss?).
I will have a read of Jannies walk through of ablation, hope it doesnt scare me though :-)
Wow 4 days ago, hope you are feeling well. Did you have an AVNRT? Did they tell you afterwards how it went? I am one of these who needs to know everything, though wish I could accept ignorance is bliss. I am mainly afraid of panicking on the table i guess. And of course having an episode of SVT is pretty scary (ive only had one bad one touch wood) so afraid of feeling that way again.
I have read that some people are getting PVCs and PACs (are these ectopics?) in the recovery period and whilst the heart tissue mends itself. Did your EP say that was the case to you? I get ectopics quite alot and I hate them. Sorry to post alot of questions.
Your post made me chuckle. Yes my consultant said 90% curative i think. But I am a worrywort. Mainly when it comes to the heart.
I believe I am weaker than everyone thats had it done... Wish I could just be a strong tough cookie and not worry.
I will try and find some positive mental attitude you have inspired me haha..
Hi Kcaravelli thanks for your comment. I had 2 options of where to go on the NHS, one that is really close to where i live, relatively new centre approx 2 years old. Or go to the Queen Elizabeth in Biringham where they have around 60 years experience between the team, one of the consultants i believe he did some of the first RF ablations in the UK. Hope he is around on the day :-)
I'm pleased to hear that you are cured of your svt thats great.
Hi ReggieEve, yes I had AVNRT and I was told that the ablation was successful. Don't worry, you won't panic on the table, the meds they give to you really relax you so no panicking. And yes, I am the queen of panic so I can speak first hand. They have to bring on the SVT in order to find it to ablate it but I only felt it momentarily and then I was "out" again. I was told that I could expect some missed beats or short tacky runs as I heal but these have not been bad at all. I also stopped my beta blocker so I am no longer on a medicine so my body needs time to adjust. Bottom line, I would definitely do it again, definitely worth it. I am counting the days when I can start working out again. Just have thyroid surgery to get through on Friday and then I'm golden :). Feel free to keep the questions coming... I am home this week and taking it easy which means lots of time on my iPad. Take care, Karyne
I got a syringe of Vallium before being rolled away from my short stay cube. It took about a minute to hit, and I was barely able to scoot onto the cath lab table. At that point, I couldn't care what they did to me. I was out for nearly 5 hours, but woke up quickly and refreshed in the recovery (love the new drugs) and was alert and eating a chicken salad sandwich 60 minutes later back in my cube. The only thing I didn't like like was the Foley catheter they stuck in my while I was asleep. When I woke up, I was like, "Whattt the......!! It felt like a garden hose being pulled out of me when it was removed later in the day. For the next two days, I had the "silent scream" everytime I went to pee. That was more painful than recovering from the procedure itself.
Hi......please feel free to read all my journal entries at Jannie411. I've documented the entire journey from a few weeks before the ablation, including details on the procedure, and weekly, monthly, and yearly updates. There's some background history at the beginning of the journals too. It's been a little over a year now since my ablation and as I go back and read the journal entries, it's amazing to see the difference in my quality of life between last March and now. I was a little bit apprehensive at first about getting it done, but couldn't bear the thought of continued SVT episodes, which became worse and worse over time. I am so glad I had it done, no regrets. I wish you the very best. Please keep me posted on how you're doing.
I had an ablation about 6 weeks ago. Like you, I was so stressed and scared about th eprocedure. But I shouldn't have worried so much. It was absolutely fine, I was awake but away with the fairies! No pain and time went by quickly.
My recovery took a bit longer than I had expected. I was pretty tired for 2 days and with a very jumpy heart but it all settled down and was feeling myself within a week. ^ weeks on and I'm completely back to normal. Good luck
Hi Jannie411 I've read your posts about the actual procedure. Wow you were brave wanting to be awake. It was very useful reading this. Was you afraid though beforehand? I guess I am lucky that I havent endured ears and years of SVT, but if I don't have the ablation maybe the SVT will progress and trouble me more. I am definately more anxious since my 1st bad episode.
I will keep you posted, I have had confirmation today that it is definately going ahead, my EP has a shoulder operation himself the next day!
Thanks for your kind and helpful words.
Hi Karynecpa, I hope that your op today went well. I have so many questions but will leave you to recover from your thyroid op. A lady at work had that same op last month. Speedy recovery to you and will talk to you again hopefully :-)
Thankyou Barbie1999 good to hear these success stories. I just hope the meds zonk me out so that I dont panic as i have become quite a panicker about my heart. Hope that you continue to recover and be SVT free :-)
I was a little bit apprehensive, but what I was really afraid of was what would happen to me if I didn't have the ablation done. My episodes had been getting more and more frequent and severe over the years, to the point where my medication was no longer working. The last episode that landed me in the ambulance and the emergency room was the worst ever and I swore I was never going to go through that again. I had reached the point where I felt I had nothing to lose. My EP gave odds of success in the 90% range. Glad I listened to him, wish I had found him sooner.
I hope your procedure goes well and wish you a speedy and uneventful recovery. Please don't hesitate to contact me by message if you need to talk.
I see you have gotten a lot of good responses but I will add that I had probably the most successful ablation ever. I was in and out in 2 hours and have not had an episode since (last september). I was terrified to do the ablation but was almost kicking myself for being so stressed about it because it really is a piece of cake for the patient. I felt a little uncomfortable while they paced my heart and the ablation part did hurt a bit but for the most part it is basically like going in and having an IV put in. I had 2 full on abdominal surgeries and the ablation was nothing compared to them. It did take a good 6 months for my heart to finally feel calm, I am in my 40s and was pretty active prior to the ablation so my heart was probably pretty stressed out at the time. But even with the long recovery to get back to normal the physical toll abdominal surgery had on me was much harder to recover from than the ablation.
I had avnrt as well. It is actually one of the easiest ones to fix so chances are good they will find your spot and be able to ablate. They have to tell you about possible complications but if you really think about it, 1% is extremely small so the odds are you will not need a pacemaker. More than likely they will stop and leave you with the svt before they do anything to cause you to need a pacemaker. But odds are you will come out cured.
That said, I did have a lot of ectopic activity after my ablation. I was actually a bit peeved at my doctor for not forewarning me about them though I am not sure they knew I had them but I did ask about a fluttering feeling and they just blew me off so I was a bit taken by surprise by them. I felt them prior to the ablation but thought they were related to the svt but I also don't recall feeling them to the extent I was feeling afterwards. They actually made me very sick for a time. But now 7 months out the ectopics are almost unnoticable. I still can feel them especially on stressed days but they aren't as intense as they were. I believe that the stress of going through the ablation and simply years of having fast beat episodes likely stressed out my heart and as such I was having and feeling more ectopics but as the heart heals your body will adjust. You will likely not totally get rid of the ectopics but you should eventually stop noticing them as intensely, at least that is what is happening with me. I did initially blame the ablation on all my ectopics but I can see now that it is possible I was having a lot of them prior but just didn't feel them and now that my heart is resting from years of tachycardia I am not noticing my heart as much as I had for a while. So be prepared to continue to have the ectopics (ectopics are one of the biggest triggers for avnrt) but also take heart that with a bit of time and distance your heart will be much better for having done the ablation and with a little time and rest you too may stop noticing your heart so much. Though it sounds like you already know what to expect if you are interested in reading about my ablation you can click on my name and read my journal entry . Take care and let us know when you are scheduled. I will send good thoughts your way.
Thankyou Michelle, hope mine is a 2 hour procedure like yours. I have my pre-op on the 18th May so will ask them about ectopics. Did you have any medication to help with them? Mine havent been so bad since taking Flecainide. I think thats what they were anyway where i'd feel something funny in my chest then it was as though the air gets sucked from my throat and chest. Horrible feeling. Ive always tried not to read on forums but this one has been pretty useful.
No I haven't taken anything for any of my heart issues. My doctors aren't big on meds though I was told they would prescribe beta blockers if my pvcs did not get better but they did so there is no need. I can't say that I enjoy the ectopics. I will have some that occasionally take my breath away and I will get headaches and feel tired on days that I am having a lot of them but for the most part they are more of a bother than making me really sick so I mostly just try to ignore them. Well best of luck. I will keep you in my thoughts.
Thanks again Michelle :-)
I just had ablation two days ago (Jan.10th, 2012). I have had SVT since I can recall and I'm 37 now. I have never had surgery before so believe me this was a huge decision and it took me years to make this decision. I suffered with many episodes, multiple times a month for years. Even driving once I had to pull over and call an ambulance to the road side because I was neary passing out and i couldn't get it to normal rhythm which normally I bare down and it works. Last straw was April as I was running a ten km race, I was the cliché who had to be taken to the hospital because again it wouldn't go back to normal. This time I had Adenosine and it didn't work, and I was 5 minutes away from being shocked with the paddles but it went back to normal all of a sudden. It was then that I decided no more!! I was freaking out to say the last, very scared, I was fearing the worst. And you know what? It was all petty much for nothing. I was awake the whole procedure but very sedated, not out if control but felt very relaxed. I watched the catheters go into my heart on the monitors, it was very cool actually. Time flies by. All of a sudden it was over and it took about 4 hours. Didn't seem like it. I even drifted off to sleep during the procedure. My issue turned out to be on the left side of the heart so she had to make a hole in the heart wall to ablate the extra partway so risk of Stoke is there but what can you do? I am so glad it's over and I have never felt my hearty so quiet, its very strange and will take some getting used to. My groin is a bit sore but just slightly, its not much worse than a sore bruise with a bit of stiffness. I stayed over night in the hospital with a IV of blood thinner, and I have to take baby aspirin for three months. That's it! It isn't near add bad as you think. Hopefully it works and I don't need to go back for a second ablation. Good luck!
Your story sounds a lot like my story..... Wait!.... Sounds like a lot like all of our stories. My SVTwas for 54 years. My physician was concerned of high heart rate and an aging heart, so I decided to get it done. Left side also, but no puncture. He went through an unsealed flap in my septal wall. Unlike you, I was under general anesthesia the entire time. I woke up fresh and was out the door several hours later. 2 years now SVT free. Expect some jumps, and skips for up to a year following yours. Perfectly normal. Congrats, and enjoy your life!
Hi there Everyone Im 22yrs old And just found out yesterday about It Im one of those people who literally panics about anything wrong with me for the most part im healthy im going to see a specialist soon im very worried but after hearing all your stories I feel a little relieved Is there any questions that you guys didnt ask that maybe I should?
or any other advice you can give me would be greatly appreiciated
I can't think of anything to say that I haven't already said. I would say try to stay as calm about it as you can because as you have read the procedure to fix the problem is really not all that bad. Best of luck at the doctors and do let us know how it all goes. Stay strong.
My story is similar to yours as well! Had SVT from the time I was 13 until the time I was 24 years old.....was hospitalized twice and had to get adenosine and lived in fear of my palps coming at any moment so I decided to get the ablation. My ablation went well! I was in the cath lab for about three hours and my Doctor said my pathway was easy to find and only had to burn 1 1/2 times. The procedure wasn't so bad....the scariest part was when he put the catheters in and started to make my heart go into SVT but besides that I don't remember much. When I woke up he told me I was cured. It has been 11 months now and I have had no SVT attacks. Although for six months after my ablation I had very, very bad PAC's (ectopic beats) that felt like flutters, "mini palpitations" or heavy beats. They just started up again but I know they come with stress and can come at random times and then go away. Reading these post makes me feel better because it seems that many people get funny beats after the ablation and that its normal (like my Doctor said). I hope everyone is well and thank you for the great post!
p.s I am in medical school now to become a PA and we learned about the heart, PAC's are so benign that whenever one of my professors asks me how I am doing they say "Those PAC's are nothing and almost all SVT ablation patients get them and its normal" so that is good news!
Don't panic. It's consignment to failure.
If your doc gives you 95% chance of success be 95% pumped you'll be fixed and 5% worried that the status quo will be.
I am scheduled for my ablation at Penn in a few days (4/8/13), so reading all of these comments has made me feel a lot better. I'm a 32 yr old female who is pretty much healthy otherwise, but the whole idea of the procedure has been pretty much freaking me out.
Thanks for your kind note. I'm glad to have been able to help. If you have any questions either before or after the procedure, don't hesitate to contact me. Take care and I will check in with you via MedHelp message sometime next week.
I had catheter ablation on Tuesday... well, kind of.
I had the catheters put in and then they sped my heart up to see where the problem is... they found the problem is in the middle of my heart so they decided not to do anything about it as its too dangerous and could leave me with a pacemaker if they mess it up.
After an hour of checking that was the only problem the catheters were taken out and I was returned to the ward. I had a lot less sedation that a normal ablation as they didnt have to ablate anything so I could feel everything that was going on and it hurt a fair amount - I could have asked for some more sedation but decided against it.
When I came back into recovery I was told to lie flat for a while, which I did, then when they went to get me up and walking I unfortunatly had a re-bleed from my artery... by far the worst bit of the whole procedure, and due to this I now have a big bruise on my leg!
Its not as bad as you think though, I was scared before hand but was ok in the end.
My 16 year old son had SVT ablation yesterday. He thought he would be asleep but the DR said they had better success rates finding the location of the problem if he was awake. He went into surgery about 10:15 am and within an hour they came out and said they were able to replicate an episode. He was fortunate his issue was in an area of the heart where they felt comfortable to burn rather than freeze (better long term success rate) he was done and in recovery by 1:30pm. He was uncomfortable in the areas where they went in (neck and groin) but they gave him 1 milligram or morphine and he rested comfortably all afternoon and was pain free by 6pm when he went to his room.. They kept him overnight, he slept on and off. came home today at 10:00am. and is now resting comfortably in my basement playing x box. No pain or complaining...
So I had my ablation yesterday and was so scared I was a crying wreck!
I got into lab and my consultant settled me down, then when I was ready the nurse sedated me and I went to sleep.
Next thing I know I woke up on the ward!
Im a bit sore but nothing a bit of codiene cant fix.
I really. Needn't have worried! It really isn't that bad!
I had my op at QE in Birmingham uk and they were fantastic!
Good luck guys!!!!
Congratulations! Join the long line of former SVT patients that have come through this forum. You'll probably be walking around by tomorrow. It's hurts a little for a couple of weeks, then you're as good as new.
You should check if you have a latex allergy. I thought I would die after a catheter and then I found out they had used latex and the allergy had caused it to be inflamed inside. The first reaction may not be horrible but the allergy gets worse and you DONT want to know what happens after that. To be safe, just tell them you have the allergy so they always use non latex and you should not feel any pain after removal.
I am having an ablation next week for SVT and am scared to death. I don't want to be awake and feel the needles go into my groin veins. Painful? The whole procedure makes me afraid. I don't want to be shaved either!
Does it hurt having the groin catheters placed? Do they place the Foley catheter when you are not sedated? I called the doctor's office and spoke with a nurse who told me she would let them know that I was super anxious. I am not sure I believe the nurse. I also have an arthritic hip so am worried about that pain too. I am really nervous and afraid and don't do well with pain.
Can anyone give me a detailed account from start to finish and any pain description? Thank you
Read the following post by Jannie411. It will give you all of the details of the procedure. Jannie411 also has posts of preventing and post ablation notes.
I was completed sedated for mine and a tally felt nothing. If you get anesthesia, they my put a Foley in. It actually nice because you don't need a bed pan afterwards. You will be required to completely remove the hair in the area. Do it yourself prior to going to the hospital. If not, you'll most likely be dry shaved by a rough female orderly (assuming your a woman as your profile indicates). The insertion area is right where the leg joins the torso. Insertion is done by a puncture, not by slicing your leg open. The puncture rapidly heals to just a red dot in about 2 days. I got a hypo of Valium just prior to going to the lab. I barely remember getting on the table. Good luck! You'll do fine.
Thank you for listening. Reading what you referred me to helped. April 2nd so close and I feel like fleeing. I don't want to have SVT again as I like my independence but this procedure, ugh! I hope it works and doesn't make things worse. I feel fine and think, why fix it if it isn't broken?
Here's an extraordinarily long-winded story for you, from my ablation experience last week. I'm sorry for the length but I wanted to provide my complete experience. I was worried too but it wasn't really all that bad.
Part 1: http://www.medhelp.org/posts/Heart-Rhythm/Post-Ablation-Experience-Review---Part-1-2/show/2523945#post_12286995
Part 2: http://www.medhelp.org/posts/Heart-Rhythm/Post-Ablation-Experience-Review---Part-2-2/show/2523947#post_12287000
Excellent report! If you haven't done so already, you should copy and past Part 1 and Part 2 into a journal under your profile area. These are extremely helpful for anyone researching electrophysiology procedures for SVT. I had general anesthesia for mine, so I remember nothing. With a hypo of Vallium just before being wheeled down, I barely remember the gurney ride to the lab. It sounds like your SVT was AVNRT. Mine was left sided AVRT (lifelong too). I assume had catheters on both sides as both sides were pierced. I'm 4+ years now and doing great. Good luck, and enjoy your life free of SVT.
Thanks, Tom! Excellent suggestion. I wasn't aware of the whole journal thing. I have copied both parts into a single entry there.
Also, interestingly, my doctor was fairly sure I had AVRT based on my ECG results from a prior hospital visit for SVT. However, he found that it was actually AVNRT upon measurement. Since he originally thought it was AVRT, he explained the whole transseptal puncture to me as well beforehand and that was something I was also pretty apprehensive about. I had mixed feelings because I didn't like the thought of having a puncture through my heart even though it is safe to do, but the alternative of AVNRT meant a risk of AV Nodal Block, which obviously ended up coming into play.
Interesting.... My EP thought at first that I had Wolff Parkinson White Syndrome from subtle indicators on the EKG, but one inside he determined that I had a close cousin to it, something called Orthodromic Circus Movement Tachycardia. Access to my left atria was made not by transseptal puncture but through an overlapping, and unsealed opening septal wall. My EP has seen this before and always tries the spot for going the puncture route. So he was able to slide the catheter through the overlap and do his work. I had a wide area of conductive tissue just above the valve that required 17 burns to sever the path. I was down in the lab for about 5 hours before quickly coming to in the recovery room. As I said, I remembered nothing of the procedure. I fell asleep....I woke up with the EP peering into my eyes. "Should seen me sooner.." were his first words.
That's convenient that there was a pre-existing route to the left atrium rather than needing a puncture. Honestly, I might have preferred being put under for this procedure haha. But I understand and respect the reasons not to do that.
PS. I've posted a 2 week follow-up update to my journal if you're interested.
I had a PVI (Pulmonary Vein Isolation) on April 9th. With 3 groin sticks on the left and 2 on the right, and one in the neck, I had a successful ablation. Mine is paroxysmal afib. Doc says he was able to isolate the excited cells and freeze them by cryoablation. He is 80% sure he got them all. Procedure was about 3 hours, with general anesthesia. The Anesthesia team was awesome, explaining everything they were doing. Me being an EMT I was very interested in it all. I had a sore throat from the airway, pain in the groin which wasnt too bad. I had to lay flat for 6 hours, i sat up to eat and of course i decided to bleed on my right side. So another 2 hours laying flat and pressure from the nurse on the puncture side solved the bleed. Worst part was the foley catheter. Once they pulled it out, having to go P was painful but soon subsided. Recovering at home, feeling ok, soreness is about gone. Several episodes of light headedness and strange beats, but the doc said this is expected. Anyone planning to have this done, don't worry! I know its easier said than done, the discomfort wasn't too bad and no afib since the procedure. Hopefully i can be weened off of the anti arrhythmic and blood thinners in a couple of months. I appreciate reading everyone's comments and they helped me through it, hopefully I can return the favor.
Hi, I am 32 and I just had my ablation Thursday. They sent me home the night of. When I got home I was having so many palpations I was barely getting a regular beat in it lasted hours. I also have been having bad chest pains and was wondering if anyone else experienced chest pains after their ablation?
If they examined the left side of your heart or did a number of burns, you may feel some achiness or downright pain dead center in your chest. It may last for a week or more before it slowly subsides.
Thank you for your reply. It's been a week and I still feel a lot of palpations and some pain. Looking forward to feeling better.
Do let the skips and runs of SVT shake you up. This is very typical for someone fresh out of an electrophysiology procedure. I felt stuff for nearly a year after mine. Your heart has been through a degree of trauma. Give it lots of time to heal. I found Ibuprofen helped a lot with heart pain, as well as the pain in the groin area when I walked. Good luck!
hi my name is Dean I'm 30 years old turning 31 at the end of June I've had SVT for about six and a half years Ago when my brother in law broken in my house and tried to kill my wife me my son nephew and my sister in law he stabbed me in the head I got 190 stitches and 48 staples I never felt my head pain which was a good thing but a couple months after that I got this massive chest pain and I thought I was having a heart attack but it was the start of Svt I had massive anxiety for a long time about four and a half years went to doctors and they said it was just anxiety even with my heart flutters and rapid heart rate about 5 months ago in December of 2014 I got some serious testing they then recognized that I had SVT and put me on beta blockers they work but not a hundred percent so I saw my doctor on April 26 and he told me about this procedure Catheter Ablation so I was pretty scared and I decide to go through with it because this problem I've had for 6 years and I just wanted my life back so I can spend time with my wife and my two wonderful kids so on may 6 2015 I went in for the procedure I was awake the whole time and it was pretty discomforting especially when they burned the heart but it was for a good cause after the procedure the first two days we're pretty good after that it's been pretty challenging it's been a week since my procedure and I get these flutters a lot it happens for like a second then it goes away but it happens from all good 5-10 minutes and then I'm good I don't get the rapid heart rate though which is nice So it make's me a bit scary but I read up that I'm still going to get him because the heart needs to heal and get back in rhythm I'm a very healthy 30 year old man I'm curious if anyone's had the same problem and does it go away I look forward to any reply thank you
Please read my post directly above. What you're experiencing is vey normal.
I am 67 and had a heart catheter ablation for afib and aflutter jan 2014. I weigh 165 and have been an active runner and mountain biker for over 30 years. After the ablation i was put on 50 mgs Atenolol once a day. I started back running and biking 10 days after the ablation. I then went to 25 mgs, then 12 and the past 2 weeks 6 mgs. My heart rate ranges from 68 to 72 and BP 110/70. After a bike ride lower. Overtime I have tried to get off the 6mgs, 3 hrs after a bike ride my HR is 80-82 and heart rate 140/85. I wouldn't think 6 msg would have that much impact. If I stay off it and just keep doing what i'm doing, will my HR and BP eventually lower? My EP is great at ablations but not a great communicator. I am back on 6 mgs and going for a ride. thx!
I have had a-fib for 40 years. At first it was very disruptive to my life leaving me tired, lightheaded, and disoriented when it would kick in. Over the years it occurred more frequently until, eventually, it became chronic (all the time). My body eventually became used to it and the disorientation deminished. Only once every 3 months or so do I get lightheaded and break out in the sweats. This lasts about 20 minutes then I recover. I run but cannot get my mile to be under 10 minutes. I am scheduled for PVI Ablation on Friday. The doctor in Colorado Springs is very experienced 16 years of doing this procedure. He says, because I have been chronic for so long , my chance of success the first time is 50/50 then improves to 70% with a second procedure. I still plan to go thru with it, hoping and praying for the best. Anyone out there had an ablation after having a chronic case for years?
I don't have any experience with chronic afib but have heard it can be hard to treat but I do wish you the best of luck getting it corrected on the first try. A 50% chance is better than none. Let us know how it went. And listen to the doctors instructions fully afterward for the best outcome.