Aa
Irregular Heart
Hi
I am 58
like a lot of you I have a very irregular Heart ,started 4 years ago 3am and have not got it resolved yet after 5 cardiologists and 4 years they say everthing from A/f to eptopics but they have not told me what causes the irregular fast to slow Beats, I think it could be my Sinus Node but they will have none of it.
I have been on every Beta Blocker but the normal dose slows my Heart down to 47 to 56 beats and as such makes me feel very ill, I have tried Verapimil 120 s/release but this sent me into a fast resting Heart Beat 180 but went back to normal at the Hospital .
In June I was admitted to Hospital 3 times by Ambulance with difficult Breathing and as noted by a Nurse Bardicardic 53 B/per min and irregular , ECG was done and I could feel my irregular beats but was told the ECG machine was faulty, no re -check was done in A&E, I was moved to a ward for several hours and put on a 12 lead monitor which kept going off with an alarm due to my irregular pulse I was told I would be going to Cardiology Ward but later they discharged me with no explanation.
I have had an MRI, 48 Hrs Monitor Ultra Sound and Stress Test all show no real problems other than this slow to fast pulse which now wakes me up at night. I cannot get any Doctor to explain why my Heart can go from 70 to 53 per min and back up to 75 in less than 5 mins at rest and some times stay in the 50s for hours making me feel light headed and ill.
Sorry to go on but is there anyone who is suffering like me and anyone who can give advise .
regards
Roland
I am 58
like a lot of you I have a very irregular Heart ,started 4 years ago 3am and have not got it resolved yet after 5 cardiologists and 4 years they say everthing from A/f to eptopics but they have not told me what causes the irregular fast to slow Beats, I think it could be my Sinus Node but they will have none of it.
I have been on every Beta Blocker but the normal dose slows my Heart down to 47 to 56 beats and as such makes me feel very ill, I have tried Verapimil 120 s/release but this sent me into a fast resting Heart Beat 180 but went back to normal at the Hospital .
In June I was admitted to Hospital 3 times by Ambulance with difficult Breathing and as noted by a Nurse Bardicardic 53 B/per min and irregular , ECG was done and I could feel my irregular beats but was told the ECG machine was faulty, no re -check was done in A&E, I was moved to a ward for several hours and put on a 12 lead monitor which kept going off with an alarm due to my irregular pulse I was told I would be going to Cardiology Ward but later they discharged me with no explanation.
I have had an MRI, 48 Hrs Monitor Ultra Sound and Stress Test all show no real problems other than this slow to fast pulse which now wakes me up at night. I cannot get any Doctor to explain why my Heart can go from 70 to 53 per min and back up to 75 in less than 5 mins at rest and some times stay in the 50s for hours making me feel light headed and ill.
Sorry to go on but is there anyone who is suffering like me and anyone who can give advise .
regards
Roland
I know what you mean, mine was explained as diastolic dysfunction and possible systolic function in the mix along with my very frequent pvc's and tachycardia episodes mostly related to my autonomic nervous system failure and miscommunication with the brain/heart.
My hr would go from 40's to 125 in a blink - less than a minute, then be steady at 60 or 70 and then turn around and be 195. I had a pacemaker/icd implanted for the bradycardia dx on a TTT where my heart stops and my bp tanks, which helped with the low hr's (with no meds). Now I can go from a set 60 to 195 with no exertion or provacation even at rest.
It's important to understand the autonomic nervous system and it's role it plays in blood pressure and heart rate - google the ANS or go to www.ndrf.org and read about it. Our dysautonomia forum here has a lot of info on the ANS and links to dr's who know about this and treat these disorders http://www.medhelp.org/health_pages/Neurological-Disorders/Autonomic-Dysfunction-FAQ/show/181?cid=196
Another thing is, many meds do cause bradycardia, so it's important what your heart was doing before any meds were started, did you have this then or is this a side effect of medicine?
Children can have ANS issues also, I've had it since I was 9 but it took until I was 42 for a doctor to recognize the symptoms and send me for a tilt table test and check my bp/hr responses.
My hr would go from 40's to 125 in a blink - less than a minute, then be steady at 60 or 70 and then turn around and be 195. I had a pacemaker/icd implanted for the bradycardia dx on a TTT where my heart stops and my bp tanks, which helped with the low hr's (with no meds). Now I can go from a set 60 to 195 with no exertion or provacation even at rest.
It's important to understand the autonomic nervous system and it's role it plays in blood pressure and heart rate - google the ANS or go to www.ndrf.org and read about it. Our dysautonomia forum here has a lot of info on the ANS and links to dr's who know about this and treat these disorders http://www.medhelp.org/health_pages/Neurological-Disorders/Autonomic-Dysfunction-FAQ/show/181?cid=196
Another thing is, many meds do cause bradycardia, so it's important what your heart was doing before any meds were started, did you have this then or is this a side effect of medicine?
Children can have ANS issues also, I've had it since I was 9 but it took until I was 42 for a doctor to recognize the symptoms and send me for a tilt table test and check my bp/hr responses.
I have no answer i only have a story to share.
It was 4 years ago that i decided to take a class and become an EMT-B. i fell in love with the class and was always practicing my new skills on family and my children, blood pressure, llistening to their lungs, listening to the chambers on the heart.
On my then 5 year old daughter i noticed her heart will speed up beating very fast and then slow down to nearly stopping, i was scared and freaked out. I made an appt with her Dr as soon as we could get in. He said it is an irregular irregularity, he said it is because it does the fast beats and slows down in an irregular un-patterned way. He says she should grow out of it. 4 years later and it is still here. She is active in sports and i worry for her, for us, because of the stories of HS kids collapsing and dying and is later found out thatsit was due to heart conditions that were unknown.
if anyone knows anything about this condition and can offer feedback it will be very appreciated.
It was 4 years ago that i decided to take a class and become an EMT-B. i fell in love with the class and was always practicing my new skills on family and my children, blood pressure, llistening to their lungs, listening to the chambers on the heart.
On my then 5 year old daughter i noticed her heart will speed up beating very fast and then slow down to nearly stopping, i was scared and freaked out. I made an appt with her Dr as soon as we could get in. He said it is an irregular irregularity, he said it is because it does the fast beats and slows down in an irregular un-patterned way. He says she should grow out of it. 4 years later and it is still here. She is active in sports and i worry for her, for us, because of the stories of HS kids collapsing and dying and is later found out thatsit was due to heart conditions that were unknown.
if anyone knows anything about this condition and can offer feedback it will be very appreciated.
Hi
Hope you are well and thanks for your post, my pulse is at best is 65 and at worst 47 at 65 I still have for want of a better word palpitations but 55 and lower light headed a faint, and beta blockers make me even worse, 1 Doctor who was looking at my knee problem asked me about my Monitor which I had on and as we got talking he said he meet someone who had a similar problem and had a Pacemaker Fitted and then low. dose Drugs just to control his arrithmias and is now getting on fine .
The cardiologist I am seeing is said to be very good but whenever I mention my slow Pulse and how Drugs make it worse all I get is well you look OK , my GP is great and now I have to wait until December before I can see the cardiologist again but this time with a supporting letter and phone contact for my GP.
Well nice to hear from you and now you have me thinking of all the happy holidays we had in the States Florida,Texas Arizona Nevada ,Alabama great times.
keep well
regards
Roland
Hope you are well and thanks for your post, my pulse is at best is 65 and at worst 47 at 65 I still have for want of a better word palpitations but 55 and lower light headed a faint, and beta blockers make me even worse, 1 Doctor who was looking at my knee problem asked me about my Monitor which I had on and as we got talking he said he meet someone who had a similar problem and had a Pacemaker Fitted and then low. dose Drugs just to control his arrithmias and is now getting on fine .
The cardiologist I am seeing is said to be very good but whenever I mention my slow Pulse and how Drugs make it worse all I get is well you look OK , my GP is great and now I have to wait until December before I can see the cardiologist again but this time with a supporting letter and phone contact for my GP.
Well nice to hear from you and now you have me thinking of all the happy holidays we had in the States Florida,Texas Arizona Nevada ,Alabama great times.
keep well
regards
Roland
COMMUNITY LEADER
Sorry I can't help, but I can comment that as a suffer of AFib, my resting HR can range from 75 to 90 within one minute observation. Or said another way, I don't see what's wrong with a HR swing from 70-53. I'd guess I'd not even notice, I don't notice the 75-90 change, I know it happens only because I normally sit on the toilet first thing in the morning, when my pulse is lowest, and watch my heart monitor.
If a HR in the 50s (bradycardia?) causes symptoms, then it needs to be treated...are you saying the doctors do not recognize your symptom as something requiring treatment. At the moment I don't recall what I've read about treatment of bradycardia, other than a pace maker.
If a HR in the 50s (bradycardia?) causes symptoms, then it needs to be treated...are you saying the doctors do not recognize your symptom as something requiring treatment. At the moment I don't recall what I've read about treatment of bradycardia, other than a pace maker.
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