Aa
RULES?
ok this is WAY off base, but can a moderator please point me to the rules of medhelp? I want the original forum rules that is set forth in MH not just what someone thinks or says the rules are =)
I was sent a PM that I was NOT allowed to ask a question inside of someone else's question and I did not know that. I've about had enough of the "unknown" rules of this forum. I've seen daily where people ask questions within questions and get answers...it all started with a certain person in another forum and now I'm told not to ask questions in another person's thread even if it's on base about a personal experience and furthers the topic of conversation of the original post?
forum politics is almost as bad as RL politics LMAO
I was sent a PM that I was NOT allowed to ask a question inside of someone else's question and I did not know that. I've about had enough of the "unknown" rules of this forum. I've seen daily where people ask questions within questions and get answers...it all started with a certain person in another forum and now I'm told not to ask questions in another person's thread even if it's on base about a personal experience and furthers the topic of conversation of the original post?
forum politics is almost as bad as RL politics LMAO
I really wanted to quit but I need my support team as much as everyone needs me. I have such great friends and support here, not sure I could make it alone.
My pride and feelings were hurt and insulted but thanks to everyone who sent me messages of support I see I wasn't the only one treated this way and I would be foolish to leave.
I just have to watch what I say even when someone insults me - walk away and do other things besides trying to help others here. I've been putting way too much time in trying to find solutions and answers and just needed a break for a couple of days to get my head back on straight =)
My pride and feelings were hurt and insulted but thanks to everyone who sent me messages of support I see I wasn't the only one treated this way and I would be foolish to leave.
I just have to watch what I say even when someone insults me - walk away and do other things besides trying to help others here. I've been putting way too much time in trying to find solutions and answers and just needed a break for a couple of days to get my head back on straight =)
itdood bradycardia can be bad and can lead to problems such as fainting and ....oh wait a minute!
Thread-jacking is just an etiquette thing, not a rule. The etiquette being, don't thread-jack. In other words, don't change the topic of a thread and take away from the OPs (original poster's) question. Is bradycardia bad?
RNRita I am finding that out and the wealth of support through what seemed to be a simple easy thing turned into a fiasco. I did nothing wrong in asking my questions about lowered EF causing Arrhythmia's and vice versa, cardiomyopathy etc.
Jerry_NJ that is a great link and Connie has alot of useful info in there; and goes along with the rules of conduct for the forum.
There was alot of behind the "scenes" stuff going on and I truly apologize to anyone who read my outburst, I know not to post without calming down if someone ticks me off or makes my blood boil.
While we aren't all going to agree, but we have to respect other's experiences and opinions; when we stop having respect for others that becomes a problem. We can't know what someone else is going through or been through until we walk in their shoes.
Can I blame it on my new use of Vicodin? lol no that was bad behavior and I'm sorry. If I'm wrong, I'll be the first to admit it - if not, then I stand up for what I know is right.
Jerry_NJ that is a great link and Connie has alot of useful info in there; and goes along with the rules of conduct for the forum.
There was alot of behind the "scenes" stuff going on and I truly apologize to anyone who read my outburst, I know not to post without calming down if someone ticks me off or makes my blood boil.
While we aren't all going to agree, but we have to respect other's experiences and opinions; when we stop having respect for others that becomes a problem. We can't know what someone else is going through or been through until we walk in their shoes.
Can I blame it on my new use of Vicodin? lol no that was bad behavior and I'm sorry. If I'm wrong, I'll be the first to admit it - if not, then I stand up for what I know is right.
Please do not let that person run you off. We like your posts here. I like to hear everyone's opinion. Besides, you are not the only one who has had a "problem" with a certain CL. I think some people are just territorial. STAY!
COMMUNITY LEADER
Jumping in here late, and I didn't read every word in this long thread... but in case it was missed, our mod "momto3" has a permanent post at the top of the list:
http://www.medhelp.org/posts/Heart-Rhythm/WELCOME/show/529980
I think it does a good job of setting out how one can achieve a good benefit from participation in this forum. It may not reach the level of "rules", but I think if one takes the guidance to heart (ha) they will do fine without knowing or having any (or The) official rules.
http://www.medhelp.org/posts/Heart-Rhythm/WELCOME/show/529980
I think it does a good job of setting out how one can achieve a good benefit from participation in this forum. It may not reach the level of "rules", but I think if one takes the guidance to heart (ha) they will do fine without knowing or having any (or The) official rules.
I know what you're saying, BUT with acceptance nothing changes and we as patients need to change healthcare overall.
with this last note to some very dear friends; I wish you all well - because of the stress I've let myself get under with the heart disease forum fiasco and an unnamed community leader there - I will no longer be posting on MH; unless with my new therapist I can come to terms with coping with what's happened and I feel like it if something like this happens again it will not hurt my mental state.
BTW; I did get a 2nd message from another moderator - please do not stop asking questions; there is NOTHING wrong they have told me about asking questions - if it's on the topic of conversation and you don't completely take over the thread for your own purpose.
If we don't ask questions, we will never find the answers - keep searching until you do.
Good luck all =)
with this last note to some very dear friends; I wish you all well - because of the stress I've let myself get under with the heart disease forum fiasco and an unnamed community leader there - I will no longer be posting on MH; unless with my new therapist I can come to terms with coping with what's happened and I feel like it if something like this happens again it will not hurt my mental state.
BTW; I did get a 2nd message from another moderator - please do not stop asking questions; there is NOTHING wrong they have told me about asking questions - if it's on the topic of conversation and you don't completely take over the thread for your own purpose.
If we don't ask questions, we will never find the answers - keep searching until you do.
Good luck all =)
Uh, sorry, it will never happen again :D
I know you have a hard time with your arrhythmias. I can't even figure how difficult it must be (I had a really stressful day yesterday and when I went to bed I had a (in my opinion) serious flare-up of my PACs, I think I felt 50-60 of them before sleep. That would be 1-2 a minute. That can really ruin my day. I can't even imagine what 50.000 PVCs feels like, and I pray every day hoping that I never will experience it.
And I understand that it's hard to have a heart disease even the best cardiologist can't diagnose. My best guess is that you've at some point had a heart inflammation of some sort, along with ANS dysfunction, but that's only guessing.
Anyway, my point was that most people don't get heart inflammations or other serious heart diseases, so most PACs and PVCs are actually caused by stress. And I know how it can ruin the life quality to worry about the heart 24/7. Research shows that this condition is often more serious to life quality than a heart disease itself (of course, in your case you have the double effect). And an essential point is: If you can't trust a cardiologist, who can you trust? They are, in some way, the supreme court of heart diseases. But even the supreme court can make wrong judgements, but they are rare. At some point in life, most people just have to accept to live with risk. We accept that choice several times during the day, but most of the choices we don't even think about. Like driving a car. Walking along a road with heavy traffic. Life is dangerous, and we'll have to accept that.
I know you have a hard time with your arrhythmias. I can't even figure how difficult it must be (I had a really stressful day yesterday and when I went to bed I had a (in my opinion) serious flare-up of my PACs, I think I felt 50-60 of them before sleep. That would be 1-2 a minute. That can really ruin my day. I can't even imagine what 50.000 PVCs feels like, and I pray every day hoping that I never will experience it.
And I understand that it's hard to have a heart disease even the best cardiologist can't diagnose. My best guess is that you've at some point had a heart inflammation of some sort, along with ANS dysfunction, but that's only guessing.
Anyway, my point was that most people don't get heart inflammations or other serious heart diseases, so most PACs and PVCs are actually caused by stress. And I know how it can ruin the life quality to worry about the heart 24/7. Research shows that this condition is often more serious to life quality than a heart disease itself (of course, in your case you have the double effect). And an essential point is: If you can't trust a cardiologist, who can you trust? They are, in some way, the supreme court of heart diseases. But even the supreme court can make wrong judgements, but they are rare. At some point in life, most people just have to accept to live with risk. We accept that choice several times during the day, but most of the choices we don't even think about. Like driving a car. Walking along a road with heavy traffic. Life is dangerous, and we'll have to accept that.
this was the comment I got in my inbox.
I removed a couple of your posts because they're insulting (I'm referring to your statements that a member should "go back on his meds". Disagreement's fine -- everyone learns when that happens -- but we require civility.
I wrote back that ... the comment was a sarcastic one and one made in fun. I also said it is the way we Brits have a laugh, She didn't reply :(
I removed a couple of your posts because they're insulting (I'm referring to your statements that a member should "go back on his meds". Disagreement's fine -- everyone learns when that happens -- but we require civility.
I wrote back that ... the comment was a sarcastic one and one made in fun. I also said it is the way we Brits have a laugh, She didn't reply :(
Is_something_wrong....hey hey don't hijack my thread dude! rofl sorry i couldn't resist! and as you know I'm just kidding =)
sorry to disagree but I don't trust doctors - that's what got me to the point I'm in to begin with...maybe healthcare and doctors are different in your part of the world, and I've had my fill of overly priced pompass dr's, but I have to or I shorten my life span even further
No matter what is wrong with me, I've always tried to remain upbeat, positive and help others understand what's going on inside of them. We don't always understand and even doctors don't always know, but to be told if only I had a positive attitude I wouldn't be sick and be able to handle things better just bothered me...pointing out how I fail to to remain positive is not something I want someone to tell me - especially to use a flaw of mine in a public forum.
I'm hard enough on myself without someone kicking me when I'm down.
Until you've walked a mile in another's shoes you cannot compare yourself to that person or situation or know what they're going through.
sorry to disagree but I don't trust doctors - that's what got me to the point I'm in to begin with...maybe healthcare and doctors are different in your part of the world, and I've had my fill of overly priced pompass dr's, but I have to or I shorten my life span even further
No matter what is wrong with me, I've always tried to remain upbeat, positive and help others understand what's going on inside of them. We don't always understand and even doctors don't always know, but to be told if only I had a positive attitude I wouldn't be sick and be able to handle things better just bothered me...pointing out how I fail to to remain positive is not something I want someone to tell me - especially to use a flaw of mine in a public forum.
I'm hard enough on myself without someone kicking me when I'm down.
Until you've walked a mile in another's shoes you cannot compare yourself to that person or situation or know what they're going through.
I've found who I thought was a "moderator" is not really one - this person is a community leader - a completely different thing. Janpes what did the moderator think was "inappropriate"? do they quote rules? - the rules are at the bottom of the page and I didn't see a whole lot about inappropriate content, but I remember something about it.
Now I'll be the first to admit if I had been way off base or it was inappropriate content, and it wasn't. I was on topic with questions about EF and arrhythmia's and the effects it has on my EF and could it increase my arrhythmia's if it lowered, which was the original post so I didn't see the problem and others sent and told me they didn't see a problem.
Heck who knows how many posts I've asked questions and that particular CL has answered my questions inside of questions and some WAY off base of the original question. I didn't know this wasn't allowed until now - "hijacking" a thread is something I try never to do, but asking questions pertaining to the original question or inside the question I find nothing wrong with and is not "hijacking" a thread.
What I find funny is, in 2 years I've been here he hasn't said a word to me until now. He's just ticked because I didn't take kindly to one of his "friends" post to me - hopefully she will get banned for good - it seems like that forum has too many clicks and they use the 'buddy' system and not really to help others.
If there is a set of rules to go by; then they must be followed FROM the beginning not just at anyone's whims.
Now I'll be the first to admit if I had been way off base or it was inappropriate content, and it wasn't. I was on topic with questions about EF and arrhythmia's and the effects it has on my EF and could it increase my arrhythmia's if it lowered, which was the original post so I didn't see the problem and others sent and told me they didn't see a problem.
Heck who knows how many posts I've asked questions and that particular CL has answered my questions inside of questions and some WAY off base of the original question. I didn't know this wasn't allowed until now - "hijacking" a thread is something I try never to do, but asking questions pertaining to the original question or inside the question I find nothing wrong with and is not "hijacking" a thread.
What I find funny is, in 2 years I've been here he hasn't said a word to me until now. He's just ticked because I didn't take kindly to one of his "friends" post to me - hopefully she will get banned for good - it seems like that forum has too many clicks and they use the 'buddy' system and not really to help others.
If there is a set of rules to go by; then they must be followed FROM the beginning not just at anyone's whims.
I don't know this case, so I won't comment it any further. But I react strongly if someone harass you. You are a great support in this community and you do a great job.
It's at one point only I slightly disagree with some of your posts (but who am I to argue, you know heart diseases twice as good as I do :)
I believe, to get rid of anxiety towards your heart, you need to follow three important strategies: (given that your heart is healthy)
1. Trust your doctors (cardiologists). They may make a mistake, but they are more often right.
2. Don't self-diagnose.
3. Don't compare your situation to others.
So if someone is cleared by a good cardiologist, I always encourage people to trust their heart is healthy.
In those cases, I personally feel it can build up some anxiety to hear that your heart was supposed to be healthy, but then you got 50k PVCs a day and malignant arrhythmias. What I think I'm trying to say is that 1) I'm really really sorry this happened to you, and 2) your case is somewhat unique. I would guess that in 999 out of 1000 cases with PVCs, PACs and general palpitations, when you have done a stress test, an echo and a Holter test, and still don't get rid of the problems, it's in the mind and not the heart. And the only way to accept that is to don't let the exception be a rule and to trust your doctor until you get symptoms that definitely tell you otherwise.
But again, some people get serious heart issues that doctors can't diagnose, and this must be taken seriously, so I'm not really sure what I recommend or not. This is just some thoughts. What do you think? Where should we draw the line?
It's at one point only I slightly disagree with some of your posts (but who am I to argue, you know heart diseases twice as good as I do :)
I believe, to get rid of anxiety towards your heart, you need to follow three important strategies: (given that your heart is healthy)
1. Trust your doctors (cardiologists). They may make a mistake, but they are more often right.
2. Don't self-diagnose.
3. Don't compare your situation to others.
So if someone is cleared by a good cardiologist, I always encourage people to trust their heart is healthy.
In those cases, I personally feel it can build up some anxiety to hear that your heart was supposed to be healthy, but then you got 50k PVCs a day and malignant arrhythmias. What I think I'm trying to say is that 1) I'm really really sorry this happened to you, and 2) your case is somewhat unique. I would guess that in 999 out of 1000 cases with PVCs, PACs and general palpitations, when you have done a stress test, an echo and a Holter test, and still don't get rid of the problems, it's in the mind and not the heart. And the only way to accept that is to don't let the exception be a rule and to trust your doctor until you get symptoms that definitely tell you otherwise.
But again, some people get serious heart issues that doctors can't diagnose, and this must be taken seriously, so I'm not really sure what I recommend or not. This is just some thoughts. What do you think? Where should we draw the line?
thanks all I got a PM from Moderator Lira. She says that there are NO rules against asking a question within a question as someone sent to me - it's a courtesy to TRY NOT to hijack another's thread. You DO NOT have to make a post for each and every question as this person told me to do!
Can you imagine ALL of us with the same exact questions posting the same things over and over? that would really makes the boards difficult to post and follow.
Ireneo made a very valid point in the HD forum - if it is on topic with the original post (mine was) then it just adds to the conversation.
This conversation was about the effects of EF's and arrhythmia's. I found it interesting and something I needed answers about and I asked a specific person a question about their post to further the original question and conversation and to find out more about that particular topic - no PM was needed as others may be in my situation and actually NEED that information he told me one day.
This is the real problem - someone embarrassed me and said some things about me in a post, so I sent a PM to them asking what was going on and why they would say stuff about me and my "attitude"? she then took the PM and posted it in the forum under a post to do with how many pvc's are "normal" - to humiliate me and I didn't take kindly to that type of behavior. (apparently she does this to others too)
Well this person has "friends" I was told and next thing I know, I'm getting pm's about my posts and "hijacking" others threads and someone is posting behind me contradicting personal things I say - ensue drama - so I asked about the rules and found there are none about starting a new thread for each and every question we have lol
well there are rules - rules against harassment, embarrassing other members, taking private messages and posting them on forums etc etc etc some just use their power they have, in the wrong way and it needs to stop.
Can you imagine ALL of us with the same exact questions posting the same things over and over? that would really makes the boards difficult to post and follow.
Ireneo made a very valid point in the HD forum - if it is on topic with the original post (mine was) then it just adds to the conversation.
This conversation was about the effects of EF's and arrhythmia's. I found it interesting and something I needed answers about and I asked a specific person a question about their post to further the original question and conversation and to find out more about that particular topic - no PM was needed as others may be in my situation and actually NEED that information he told me one day.
This is the real problem - someone embarrassed me and said some things about me in a post, so I sent a PM to them asking what was going on and why they would say stuff about me and my "attitude"? she then took the PM and posted it in the forum under a post to do with how many pvc's are "normal" - to humiliate me and I didn't take kindly to that type of behavior. (apparently she does this to others too)
Well this person has "friends" I was told and next thing I know, I'm getting pm's about my posts and "hijacking" others threads and someone is posting behind me contradicting personal things I say - ensue drama - so I asked about the rules and found there are none about starting a new thread for each and every question we have lol
well there are rules - rules against harassment, embarrassing other members, taking private messages and posting them on forums etc etc etc some just use their power they have, in the wrong way and it needs to stop.
There are new doctors on the HD expert forum and they seem really nice, they answer quickly, qualified, and they even answer follow-ups! Problem is now, this forum is extremely popular and you really need to be quick to get a question posted.
I didn't know that it was bad to ask questions in other peoples posts, I comment them from time to time but I haven't asked questions. Good to know, but did you get the PM from a moderator or a member?
I didn't know that it was bad to ask questions in other peoples posts, I comment them from time to time but I haven't asked questions. Good to know, but did you get the PM from a moderator or a member?
WOW! There are rules! I NEVER knew that! Soo, thats why they delete links. We are not allowed to post links! One question I have is, I am not really understanding the 2 questions per 6 months. Is that only in reference to as a doctor where they questions are limited?
I am sure I have done that. Sometimes in answering a question seems u may need to ask a question.
If you look at the bottom of the page there is a link that says: Terms of Use
Asking questions in the middle of a post IS NOT against the terms of use, however publicly embarrassing someone and posting private messages and information obtained therein to harass or humiliate other members can be against the TOS.
I was told NOT to interrupt another's post with any questions I have EVEN if it pertains directly to the original post and furthers the conversation by posting personal observations and experiences and questions about the original post content.
Asking questions in the middle of a post IS NOT against the terms of use, however publicly embarrassing someone and posting private messages and information obtained therein to harass or humiliate other members can be against the TOS.
I was told NOT to interrupt another's post with any questions I have EVEN if it pertains directly to the original post and furthers the conversation by posting personal observations and experiences and questions about the original post content.
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