I'm a mess, I have a couple of chronic illnesses that have me bed bound at the moment and on good days I can use a wheelchair. I became ill when I was 17 year old, I got Epstein Barr Virus from which I never recovered. My immune system was so damaged that the door was open for a lot of other viral and bacterial infections that are still in my cells and some in my DNA and every now and then they act up.
I also have late stage Lyme disease with the co-infections Bartonella, Mycoplasma and Babesia.
On top of that I have TOS or Thoracic Outlet Syndrome. I was born with 2 extra neck ribs that push down on my major arteries and nerves in my collar bone area and neck.
When you are ill for such a lot time you acquire all kinds of complications.
One is that I have hyper coagulation and POTS plus myocarditis.
The POTS always bothered me a lot. When I was still mobile I would be out shopping an suddenly be struck by a drop in BP and I would faint. I learned to get the POTS under control but I could never leave the house by myself anymore.
Recently I added another complication to my cardiac problems, I would have a tachycardia that lasted a couple of hours a HR of 135/140 and suddenly it seemed as if the world stood still and my HR dropped to 35 and stayed there for at least an hour. The slow HR worries memory than the tachycardia.
It even cause panic attacks. I do everything I can, meditation, breathing exercises, try to relax. In the end if nothing works I take a Xanax which will give me relieve after 20 min.
I have a HR monitor, a wireless watch with no strap. I use it to pace myself. It has an aerobic alarm, my top rate. It's 112 and lowest is 50. It tells me when to stop and take rest. I try to walk a few steps to my bathroom and the alarm goes off. In a few steps I go from70 to 112.
The drop in HR worries me. My BP is sometimes a bit high and sometimes low, no rhyme or reason why.
In the past I tried beta blockers but they have the opposite effect on me.
I have one physician who treats all my symptoms. I have seen a cardiologist, no surgery for the extra ribs is possible, my necks would become too unstable.
I have now become so weak that no invasive treatment is possible without my life being at risk..
The latest cardiologist I saw a year ago for the tachycardia took said my heart had a little murmur but was fine and advised me to exercise 3 times a week. She obviously did not read my history.
At the moment I'm very ill, I have a major inflammation and infection in my spine, hip and leg which causes oodles pain. I'm not a whiny person but this pain is the worst. On top of this and this is why I'm writing this long story my constant HR is now around the 110/120.
I have sleep meds that give me a few hours sleep and relieve from the pain but when I woke up this morning I immediately felt my heart racing. I did the whole program, blow my ears, cough, the manoevre, cold water in face. Nothing helps. It's now afternoon and it's still high.
I have searched the web for a cause and I was wondering if elevated pain and fever and inflammation could increase your HR?
The nasty Babesia is responsible for a lot of inflammation around my heart. Difficult to treat, all meds have cardiac side effects. I use as many herbal and natural supplements as possible, like Hawthorn, Magneium etc.
Has anyone else experience with high heart rate during illness? I would like some opinions and hopefully some tips.