I have been taking Flecainide for 14 years at 150 mg 2 x day. So far it has worked better than any other med for me. I was pretty nervous to start it but was running out of options. The only side effects I had was minor fatigue and blurred vision once in a while. The med has kept my rythym under control so far I have not had any sustained V-Tach or needed defibrillated for 14 years.
I agree with the above that all meds have side effects and can be dangerous, Do your research and ask your doctors lots of questions.
By the way I started that dose at home not in a hospital, But I do have an ICD/Pacer.
I was on Flecainide and was also scared to take it but my doctor said that he believed the benefits out weighed the risks. So I took it and it helped me a lot. I am no longer on it but it definitely kept my heart in rhythm. All medicines have side effects. You just have to decide what is right for you. Good luck!
My cardiologist and my consulting EP said the only way they would prescribe Flecainide for me is if I am willing be hospitalized to test the drug. That is they require I be on in a full ICU hospital environment for starting the drug. The reason? Well for one, my doctor tells me, the drug can cause ventricle fibrillation (which could result in death before I could get to the ER)..but if I was already in the intensive care unit they could save me. He didn't say it was even likely that would happen, but said it was possible, and thus he would not write me a prescription to "try at home".
I have read many posts on this Community about anti-arrhythmia drugs and I have taken myself Propafenone (which helped keep me in NSR following electrocardioversion a couple of times) and Rhytmol SR, which didn't. I am now in permanent AFib. But, the symptoms are not severe, not good, but not severe.
I have read some threads on this Community specifically on Flecainide, you may want to do a search on that word. I recall one was a poll on starting Flecainide with and without hospitalization. As I recall the vast majority was without hospitalization. But still my doctor say "NO".
I was diagnosed with having lots of Premature Ventricular Contractions (PVC's) and prescribed Flecainide also. Like you, I got it filled, read the literature, etc. and finally decided (in my particular case) I was better off not taking it.
I was also very reluctant to take Flecainide for the same reasons you mentioned reading about in the literature, etc.
After consulting with several doctors regarding Flecainide and all having differing opinions on whether I would personally benefit from taking it or not, it left me having to make the ultimate decision and (in my case) I decided not to take it.
I know how you feel (your concerns) about taking Flecainide and the possible side affects, etc. But, in no way am I suggesting to you to take it or not to take it. I am sharing with you my personal experience in that I felt very much like you regarding this medication. I've heard some people say it has really helped them and others that it did not.
I hope you find relief soon.
Blessings and Pleasant thoughts to you Middy.