Regarding virus prior to dysautonomia symptoms: My daughter (15) has had severe symptoms (dizziness, feeling faint, tachycardia when standing) for about a month. I have been desperately searching for help for her.
A couple days ago, I remembered the cold at the end of Sept. She has ALWAYS had sinusitus after colds, but not this time (apparently?). I asked the Dr. to consider a course of antibiotics (Septra). It's only been a couple of days, but she is up and around again. My fingers are crossed.
Subtle signs of chronic infection have been missed by the docs: low lymphocytes, low-grade fever (only very occasionally), wearing more sweatshirts, blankets (she usually feels HOT in all weather). Her normal body temp. generally runs LOW (97ish), (but docs do not acknowledge this), so 100.3 is pretty high for her.
For her whole life, sinusitis has knocked her flat. She has allergy history, and typically misses 25 days of school per year. I am now thinking the connection is that the dysautonomia makes typical infections far more symptomatic.
Other symptoms: Small Fiber Neuropathy (hands and feet numb/painful).
Heat intolerance. Postural Tachycardia -- BUT, not always hypotension. Often, blood pressure stays the same or goes up. Florinef gave her hypertension after 3 days, so d.c.'d. Now, she is supposed to try Toprol, XL beta blocker.
We are also continuing blood tests, etc.. to rule out many other conditions, including Adrenal dysfunction, food allergies.
i don't ever remember not getting dizzy/lightheaded, therefore I don't believe it started with a virus or anything. I have also had a few episodes of kidney stones, currently having multiple stones in both kidneys and they found some cyst on my ovaries sooo i'm wondering if any of this can be tied in in any way?? this is sooo frustrating!
and btw, do you have a Fx of autoimmunity?
Hi. Did you start off with a virus cold? I've had a similar story: fit, then a virus cold (which had a particular affinity for the ears). Then vascular problems, SOB, tiredness, probable myocarditis, postural tachycardia, etc. A beta blocker did nothing for me, either.
I'm practically cured now, after lots of efforet (including exercise, and also taking Mg) but the orthostatic hypotension remains, along with elevated DBP. I find a very strong connection with a persistent virus, likely just a plain adenovirus that got into various systems.
You find similar stories from Karinosa and mickey1313, e.g.
Hi miss nursesassy. I am 19 yr old and i have the exact same symptoms as you do. I read your post and i was like omg this is me, I could see myself writing the same post. My doctor has given me treatment with atenenol and drinking lotsss of water, but still i feel fatigued all day and heartrate is still up. Let me know what works for you.
-Soni
What about the tilt table test? Isn't that supposed to be used to eveluate othostatic hypotension?
I left out that I do believe I have orthostatic hypotension, my blood pressre sitting was 120/80 pulse 110, when I stood BP 80/60 and pulse 140