Aa
does anyone have this
Wow I am so glad I found this site. It is soooo great knowing ither people are going through what I am . I am happy to hear that the consensus from peoples dr are the same. we are not going to die from this. my dr, an EP, elecrtophysiologist, calls it a nusiance rhythm I have had it for 16 years.I was diagnosed with it when pregnant with my 1st child. During that time i usually felt pretty good and would have occasional flare ups when i would go about a month having very frequent pvcs. then it would calm down for months and I would feel almost nothing. for the past 2 years I have been in a constant flare up. I take toprol xl 25mg twice a day which I feel does nothing. Can anyone tell me what they take?do you feel it helps? any tricks or herbal supplement or vitamins that help? I am looking for any answers or advice. Also I can feel when I have bigeminy, 2 pvcs in a row, but did anyone ever feel 2 or 3 beats in a row that was not a pvc( i know, hard to explain) I appreciate any feedback
Hi
I have been trying to use a powder form of liquid magnesium with not much results
Is tablet form ok or is it not as well absorbed
The liquid mag I found is very expensive.
Do i bite the bullet and try it
Do you know the brand name you use
THANKS!!
I have been trying to use a powder form of liquid magnesium with not much results
Is tablet form ok or is it not as well absorbed
The liquid mag I found is very expensive.
Do i bite the bullet and try it
Do you know the brand name you use
THANKS!!
You could not be more "lucky" than to get posts from these three wonderful, insightful members of the board.
You know what one of the most frustrating things about all this is that all the "triggers" can go without "triggering" a flare up for months and you start to feel normal then BOOM 3 months of misery then BOOM gone again.
I've run many scenarios through my head, including the idea that maybe I have had infections that affect nothing BUT my rhythm. No fever, pain, lethargy etc, but a major blip in heart rhythm. Maybe my brain is the problem? Maybe for some reason I have cycles of adrenaline overdose without any trigger at all? Maybe I'm just WEIRD :-) (which is debatable with or without PVC's)
You've heard about the class action suit against Airborne right? Well, 1000's of people swear by that stuff, and I'll bet it stays on the shelf even though science doesn't PROVE that it helps at all. Well, most of what I do to avoid PVC's is probably the same placebo effect as this, but it works for me, so if it is a trick of my mind, I'm totally fine with that.
I take a magnesium supplement, a fish oil supplement, a low dose of Prozac and 1/4 tablet of Metoprolol daily. The Metoprolol MIGHT actually do something...the Prozac probably helps keep my anxiety levels down, but the Magnesium and Fish Oil probably does NOTHING at all. But it makes me feel good, and it doesn't hurt me, so if I want to believe it helps then it will help :-).
I also sleep at LEAST 7.5 hours every night, and expect flare ups if I get less than that. I always expect a flare-up if I over exert myself or if it is really hot outside. I can depend on a nice thump here an there if I have undiluted caffeine, and I can count on SVT if I have too much caffeine. Anger gets me going too. If I get really angry my heart reminds me of David Banner turning into the incredible hulk and I suffer the consequences for 2 or more days.
I try to have a sense of humor about it as much as possible. The less power I give these things, the less they affect my daily life. But, when I have days or weeks on end when they are persistant and relentless it can be hard. That's when I usually end up back at the Cardiologist or GP to request a good dose of "you really are okay, nothing has changed, your heart is sound and you'll get through this bout like you have the others." I used to be embarrased by that. But recently my GP responded to my embarrassment in a helpful way. She explained that she knew my heart beat funny...she had heard it herself many times. She realized that that sort of feeling had to be unnerving and frightening and that she would rather be safe than sorry. Basically she gave me permission to come in for re-evaluation and reinforcement.
She has heard my bigeminy and general lack of a normal rhythm in her office. While she is aware that the PVC's won't kill me, she has sent me to the cardiologist on several occasions as well just to "make sure," because it "sure doesn't sound right, does it?"
So, do what works for you and don't be afraid to seek advice or support from your doctor(s). If they don't provide you with the support you need, perhaps a new doctor is the prescription you need.
Good luck.
I've run many scenarios through my head, including the idea that maybe I have had infections that affect nothing BUT my rhythm. No fever, pain, lethargy etc, but a major blip in heart rhythm. Maybe my brain is the problem? Maybe for some reason I have cycles of adrenaline overdose without any trigger at all? Maybe I'm just WEIRD :-) (which is debatable with or without PVC's)
You've heard about the class action suit against Airborne right? Well, 1000's of people swear by that stuff, and I'll bet it stays on the shelf even though science doesn't PROVE that it helps at all. Well, most of what I do to avoid PVC's is probably the same placebo effect as this, but it works for me, so if it is a trick of my mind, I'm totally fine with that.
I take a magnesium supplement, a fish oil supplement, a low dose of Prozac and 1/4 tablet of Metoprolol daily. The Metoprolol MIGHT actually do something...the Prozac probably helps keep my anxiety levels down, but the Magnesium and Fish Oil probably does NOTHING at all. But it makes me feel good, and it doesn't hurt me, so if I want to believe it helps then it will help :-).
I also sleep at LEAST 7.5 hours every night, and expect flare ups if I get less than that. I always expect a flare-up if I over exert myself or if it is really hot outside. I can depend on a nice thump here an there if I have undiluted caffeine, and I can count on SVT if I have too much caffeine. Anger gets me going too. If I get really angry my heart reminds me of David Banner turning into the incredible hulk and I suffer the consequences for 2 or more days.
I try to have a sense of humor about it as much as possible. The less power I give these things, the less they affect my daily life. But, when I have days or weeks on end when they are persistant and relentless it can be hard. That's when I usually end up back at the Cardiologist or GP to request a good dose of "you really are okay, nothing has changed, your heart is sound and you'll get through this bout like you have the others." I used to be embarrased by that. But recently my GP responded to my embarrassment in a helpful way. She explained that she knew my heart beat funny...she had heard it herself many times. She realized that that sort of feeling had to be unnerving and frightening and that she would rather be safe than sorry. Basically she gave me permission to come in for re-evaluation and reinforcement.
She has heard my bigeminy and general lack of a normal rhythm in her office. While she is aware that the PVC's won't kill me, she has sent me to the cardiologist on several occasions as well just to "make sure," because it "sure doesn't sound right, does it?"
So, do what works for you and don't be afraid to seek advice or support from your doctor(s). If they don't provide you with the support you need, perhaps a new doctor is the prescription you need.
Good luck.
I've had these blasted things for 25 years, usually in the range of 10,000 to 25,000 a day during my flares. My last cycle lasted 13 months and beta's actually made them worse. My Cardio/EP is a big advocate of magnesium, and after some further research, I started the liquid magnesium. I started noticing daily decreases in my PVC's at about 2 weeks of 400 to 450 mg's. daily, and at week 7 or so, they stopped almost completely.
Except for the occassional blip, I was PVC free for 5 months and started neglecting the mag. and they came back with a vengence about a month ago. I started back on the liquid mag. 2 weeks ago and I've been pretty much PVC free for the last 2 days again.
I've talked to alot of others that have had success with magnesium, but as with all things, what works for some, doesn't do a thing for another,.... and results don't come over night. From what I've seen, it takes a good 3 weeks for alot of us to really see a difference with oral mag.
Here's a very short synopsis on magnesium :
"The relationship between magnesium and the heart, specifically, the influence of low levels of magnesium on cardiac rhythm, has been studied for more than 60 years. Magnesium has an essential role in normal cardiac electrophysiology, and inadequate concentrations of this cation contribute to a variety of cardiac arrhythmias. Most important among these are ventricular tachycardia (VT), ventricular fibrillation (VF), long QT and torsades de pointes, atrial and ventricular premature beats and all factors in sudden cardiac death.
To complicate matters, even though magnesium status is most commonly determined by measuring serum levels directly, less than 1% of the total body magnesium is in the serum. This is because magnesium is primarily an intracellular ion, and intracellular levels DO NOT correlate with serum levels. Unless one is extremely deficient, magnesium blood serum tests are almost entirely useless,
In a more recent study, numberous magnesium tests were performed during autopsies on 608 men and women who died of sudden cardiac arrest or VF over a 3 year period. Of the 608 men and women, 74% were shown to have significant magnesium deficiencies."
Other things I've tried with limited success are; sleeping more, tranquilizers, stress control/biofeedback, restricted caffeine/alcohol, increased exercise, acupuncture, chiropracty, prayer, valerian root, screaming, crying, etc. etc. ...
400 mgs. of daily Magnesium was my godsend.
About the 3 beat pvcs...if you talking about a rapid fluttering..kind of like a rolling, shaking, machine gun feeling...I get those too. Those are salvo's or runs of NSVT for me and are considered benign in a normal healthy heart also.
Ok, I'm rambling now, sorry about the lengthy post... Anyway, welcome to the forum! You'll find loads of wonderful, helpful, informative and compassionate people here.
I couldn't have made it through all these years without them.
Except for the occassional blip, I was PVC free for 5 months and started neglecting the mag. and they came back with a vengence about a month ago. I started back on the liquid mag. 2 weeks ago and I've been pretty much PVC free for the last 2 days again.
I've talked to alot of others that have had success with magnesium, but as with all things, what works for some, doesn't do a thing for another,.... and results don't come over night. From what I've seen, it takes a good 3 weeks for alot of us to really see a difference with oral mag.
Here's a very short synopsis on magnesium :
"The relationship between magnesium and the heart, specifically, the influence of low levels of magnesium on cardiac rhythm, has been studied for more than 60 years. Magnesium has an essential role in normal cardiac electrophysiology, and inadequate concentrations of this cation contribute to a variety of cardiac arrhythmias. Most important among these are ventricular tachycardia (VT), ventricular fibrillation (VF), long QT and torsades de pointes, atrial and ventricular premature beats and all factors in sudden cardiac death.
To complicate matters, even though magnesium status is most commonly determined by measuring serum levels directly, less than 1% of the total body magnesium is in the serum. This is because magnesium is primarily an intracellular ion, and intracellular levels DO NOT correlate with serum levels. Unless one is extremely deficient, magnesium blood serum tests are almost entirely useless,
In a more recent study, numberous magnesium tests were performed during autopsies on 608 men and women who died of sudden cardiac arrest or VF over a 3 year period. Of the 608 men and women, 74% were shown to have significant magnesium deficiencies."
Other things I've tried with limited success are; sleeping more, tranquilizers, stress control/biofeedback, restricted caffeine/alcohol, increased exercise, acupuncture, chiropracty, prayer, valerian root, screaming, crying, etc. etc. ...
400 mgs. of daily Magnesium was my godsend.
About the 3 beat pvcs...if you talking about a rapid fluttering..kind of like a rolling, shaking, machine gun feeling...I get those too. Those are salvo's or runs of NSVT for me and are considered benign in a normal healthy heart also.
Ok, I'm rambling now, sorry about the lengthy post... Anyway, welcome to the forum! You'll find loads of wonderful, helpful, informative and compassionate people here.
I couldn't have made it through all these years without them.
Hi,
Bigeminy is a PVC every other beat, or Beat, PVC, Beat, PVC, Beat, PVC. Trigeminy is as follows, Beat, Beat, PVC, Beat, Beat, PVC, etc. Quadrigeminy is Beat, Beat, Beat, PVC, Beat, Beat, Beat, PVC.
Two PVCs in a row is referred to as a Couplet.
I was not to successful on Toporol, nor my wife. She now take 40mg Nadolol and I about 75 mg Atenolol (50 mg in the morning and 25 mg at night).
Stay away from Caffeine, get more sleep, watch the supplements, as some of them can make things worse. Avoid tension (LOL).
Anyway, that's all I have for now, I need to get more sleep as well.
Be well.
Bigeminy is a PVC every other beat, or Beat, PVC, Beat, PVC, Beat, PVC. Trigeminy is as follows, Beat, Beat, PVC, Beat, Beat, PVC, etc. Quadrigeminy is Beat, Beat, Beat, PVC, Beat, Beat, Beat, PVC.
Two PVCs in a row is referred to as a Couplet.
I was not to successful on Toporol, nor my wife. She now take 40mg Nadolol and I about 75 mg Atenolol (50 mg in the morning and 25 mg at night).
Stay away from Caffeine, get more sleep, watch the supplements, as some of them can make things worse. Avoid tension (LOL).
Anyway, that's all I have for now, I need to get more sleep as well.
Be well.
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