Sorry I can't help, just bumping this back to the top. In my years of supporting this board it's a very uncommon question.
Has your son had an echo yet?
Yes, they have done 3 so far and he gets them once a week now. His heart rate seemed to be under control for a few days and the fluid around his heart was back to normal but when I was on the monitor yesterday it jumped back up to 240 for a few seconds twice. From what everyone is telling me this isn't a very common thing. Sigh
prayers for you and your sweet baby
Have they recommended an ablation yet?