My daughter sounds like she has the same thing. She passed out during the tilt table test twice. It started when she was 18 and she is now 21. She has seen 100 doctors and nobody have been able to help. We have tried many of meds, no help. She was a college softball player and she has been in a motorized scooter for 2 years. She has past out for as many as 5 hours at a time. It's an every other day event. We need to find a doctor to help also. We have looked most in GA where we live but have went to the Mayo Clinic in FL and Vanderbilt in TN.
Good Luck!
Steve
Like I said before, try and see if you can find a doctor who specializes in Dysautonomia. I am not certain you have it but you seem to have some symptoms that tie in especially since your heart checks in fine. As to your question, I am not a doctor so I can't say this with all certainty, but from what I understand you likely won't die of a heart attack from a fast beat. That said, over time your heart can tire out and lead to congestive heart failure. Have you been offered BP meds to try? I am not sure how it would affect you if you have low bp but it may slow down your heart rate. In any event, regardless if the situation is not dangerous but just annoying if you are having trouble functioning then go back to your doctor to see what they can offer to help you feel better or go seek a second opinion. Not being able to get out of bed is a problem. Take care.
Thank you. I got the blood work and everything looks fine. Just not sure what is causing this and why it is so bad. I think I still have a pretty long road ahead of me
I would say also go see your GP and get a full blood panel done to see where your levels are at and if there is anything that is out of balance.
It is not likely your cardiolgists would steer you wrong yet they all have specialties they focus on so the ones you have seen may not know the appropriate avenues to take for someone with dysautonomia. The reason your bp is low is because your heart rate is too high and the heart isn't able to pump effectively. The cardiologists are likely right that your heart is fine but there may actually be an issue with your brain signals that is possibly causing the problem. I would try to find a cardiologist who specializes in Autonomic Dysfuction or Dysautonomia. I would definitely keep with the salt if you have been cleared by your doctor. Gatoraid is full of sodium and if your body was use to it and now you have gone cold turkey it could be a little freaked out or you need a high sodium intake and eliminately gatoraid revealed this. In any event, I would seek a second opinion and or the dysautonomia doctor because clearly you are having trouble functioning and something needs to be done. Take care, I hope you feel better soon. Keep us posted on how you are doing.