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Avatar universal

pvcs and going crazy

I am having pvcs all the time.  They are ruining my life and I am not able to handle them.  I have been tested in the hospital and my heart is good they say.  I don't know how to cope.  I jog and this helps for about 1 hour and then they come back stronger.  I have bradycardia as well and very low blood pressure.  Please give me some advice before I check out.
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Avatar universal
You need to see an "electrophysiologist" to look at your case not a cardiologist.  I learned the hard way that a lot of GPs don't understand or know what to do about pvcs.  A cardiologist will not be as familiar with them as an electrophysiologist who specializes in arrythmias.  My GP initally told me I had bradycardia and come to find out, after numerous doctor visits including a throurough workup by a cardiologist, I had no heart problems other than the pvcs.  My heart rate was normal, I just had so many skipped beats my pulse was registering in the 40's.  I was having 25-28,000 pvcs a day.  I had two ablations because the first one didn't work but since the second one I have been totally pvc free.  I finally have my life back and able to do so many things I had "lost" because of the multiple pvcs.  If you can, I would recommend trying the Cleveland Clinic doctors as they have extensive experience with these pvcs and ablating them. Good luck
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Avatar universal
When I first started getting these things, aged 23, it was sinus tachycardia, with my heart racing at around 150 bpm. It would last for anything between 10 seconds and several hours. Between these bouts, I started getting ectopic beats (PVC`s).   I was told it was all harmless, which was no comfort to me as I too thought I was at deaths door.   It took me a long time to come to terms with it and accept the fact that it was not life threatening.  But I did eventually, and now, nearly 50 years later, I`m still here, in excellent health, but still getting the PVC`s and short bouts of tachycardia (flutters) daily, which I long ago learned to accept as part of my daily routine.  If you`ve been told that yours are benign, then believe me, you`re not going to die - you`re going to grow old with your kids, just as I did.   Re - the drugs you`re taking, I`m not convinced that they`re effective - read my earlier postings above on the subject.   I`m NOT a medic - just a fellow sufferer who, after 50 years experience, has tried a few things and learned a few things along the way.   Take heart - it feels a hell of a lot worse than it ts, and you WILL get used to it eventually.                 0tt0  
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Avatar universal

Hang in there Pal! I certainly can relate to your frustration and despair. I too get depressed and hopeless with being constantly spooked by heart flutters. I also get so angry sometimes with all this funk. I WANT MY LIFE BACK.

The best I can say is to take heed to the advice of others here on this site. Pray, change your lifestyle, change your reactions when they happen and I also feel having some drinks to calm your nerves is OK too. Also, please seek some help if it gets real bad. I

Best wishes my friend.

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Avatar universal
YOUR WORDS ARE COMFORTING.  I AM 41 AND AS OF THIS SUMMER ALMOST PASSED OUT AND THEN MY HEART WAS RACIND TO 160 BPM.   I WENT TO THE ER AND THEY SAID JUST SINUS TACH AND PUT ME ON ATENOLOL AND TO SEE A CAEDIOLOGIST, E.P.  I HAD AN E.P STUDY AND NOTHING COULD BE INDUCED. SO I CONTINUE WITH THE BETA BLOCKERS AND HAVE HAD AN EVENT MONITER AND THEY HAVE TOLD ME I HAVE BENIGHN PVC'S.   I FEEL LIKE THE PVC'S ARE STEADILY INCREASING . LIKE MANY OF THE OTHERS I FEEL LIKE ANY DAY I AM GOING TO DIE. THIS IS SCARY TO ME SINCE I HAVE 3 KIDS , THE YOUNGEST 5 AND AUTISTIC. VERY SCARED
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Avatar universal
My parents had an old book - "The Modern Home Doctor" published around 1930.  Under heart disorders, it states "arrhythmias are frequently caused by stomach distention of a flatulent nature". I`ve suffered mild chronic stomach upsets and wind most of my life. I used to drink beer fairly heavily AND eat huge meals. I cut out beer and carbonated drinks completely, and started to eat smaller meals.  It DID make a difference for me - I still got the PAC`s and palpitations but less frequently.   So I believe that there is a lot of truth in this.  
     All your checks are good.  Your 95 monitored PAC`s in 24 hours is also pretty good.  Some days, I get far more than that.  Some people get thousands of the things.  
     I`ve just done a BPM on myself - 45!  Not all that much more  than yours - AND I`m not at all athletic.  Athletes frequently get very low resting heart rates.  50 miles running a week is pretty athletic in my book!   Get your 36 BPM checked out for your own peace of mind, but after running 50 miles a week, if there was anything seriously wrong, I think you`d be long gone!!   As I`ve said before - keep learning to live with it - you`re healthy enough otherwise.  I`m looking forward to my 100th in 30 yrs time!!      0tt0  
PS - try red wine instead of beer - they say the odd glass is good for the heart!
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Avatar universal
I believe you.  My husband drinks beer every night since he was a Teenager, and he is healthy as a horse at the age of 65 except for COPD which comes from his heavy smoking all these yrs but quit 4 yrs ago.  He had an angiogram because of some symptoms he had (failed the stress test because he couldn't catch his breath like he should blamed on the smoking) his angiogram came out excellent no blockages at all.  He was 60 yrs old when he had that angiogram done.

I can't tolerate any alcohol it gives me a splitting headache.  Trust me, if I could tolerate it, and if it would take away my anxiety and PVC's I would go that route too.

But like you said you have got to be careful not to become an alcoholic because that is a whole other problem.

  
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Avatar universal
Prayers do help me too with my PVC's
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Avatar universal
PVC's made me want to kill myself.  every one triggered a panic attack - 50-100 per day.  No one knew why they triggered these responses, and I got sick of hearing that everything was "OK".  I hesitate to post this, but like i said, I wanted to kill myself to make them stop.  Alcohol made them stop.  2 or 3 beers gave me more relief than thousands of dollars of doctor bills and hundreds of dollars of medicine.  BE VERY DAMN CAREFUL IF YOU TRY MY CURE!!!  Alcohol dependency causes a brand new set of problems.  Best advice is to realize that if PVC's were life threatening, you wouldn't be reading this.

Good luck to all,

marc
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Avatar universal
I have been healed of this horrible PVCs.  It is only by the power of prayer that this can be explained as I have not changed any of my other habits.  I have been PVC free for over 1 week.  I praise GOD for healing me once again.  
plum143
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Avatar universal

OK here is an update........

Blood Tests = OK
Nuclear Stress Test = Random PACs but OK/Normal
EKGs = OK/ Normal
CT Heart Scans = Calcium score = O
24hr Holter Monitor = 95 PACs, Ave heart rate 70, with low event of 36 = bradycardia. (report says also possible sick sinus syndrome)
Fam Doc says even though I am a runner 36bpm is still a tad low and should be looked at.

My Fam Doc is concerned about the 36 bpm event as a possible sick sinus. She has suggest I see yet another specialist to get it checked out. This only increases my wory anxiety. She told me if I ever pass out I should go to the ER ASAP. In the mean time I am still having these unexplained flutters in my mid-gut that takes my breath away.

Again,I am a rather physically healthy 51 yr old (usually running 40+ miles a week). These so called “harmless” PACs have turned my life upside down. I also get these flutters after a big meal, when lifting anything heavy or drinking anything carbonated (like beer). So I am now very cautious what I eat and drink too. My weight is dropping without exercise.

I am once again spooked. Any calming advice ?  Thx!

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Avatar universal
Never EVER drive while you have that fainting condition.  You should also have someone with you at all times especially if you go out.   How long are you usually unconcious for?  Rare PVC`s and PAC`s are probably not mentioned here too often, as most of the postings are from people who are getting them regularly (like me!).  You`re lucky to only have them rarely.  Your incomplete right bundle branch block MAY not be anything to worry about, but with your fainting and enlarged atria, there may be a problem that needs treatment.  Take it easy until you see your cardiologist, who will be able to answer all your questions.  Keep us posted as to how you get on.  0tt0.
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337209 tn?1200969778
Hello, I am a 19 year old female.  I have been fainting off and on for almost 5 years. Now it occurs at least 3 times a week, and I'm scared to drive or do anything.  My ECG revealed right atrial enlargement, incomplete right bundle branch block, rare premature ventricular and rare premature atrial contractions, and said abnormal ECG. I haven't seen anyone here use the word rare. Why are they rare? I've also experienced these symptoms, but I just thought it was stress. I have an appointment with a cardiologist in a month, can anyone explain to me what's wrong with me?
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Avatar universal
Sounds to me like you`ve just taken the first giant step forward towards accepting these rather annoying things. Always remember every time you get a bout of them that you`re perfectly healthy; your heart is perfectly healthy; they are quite harmless. By not getting wound up and accepting them with a worry and stress free attitude might also serve to reduce their frequency.     Everyone else that`s read this and the previous few entries - please take note!  It`s not as bad as you think!       0tt0
PS - I`ve had 5 or 6 "missed" beats myself, just while typing this bit.  Oh well - that`s life!   They`re better than a migraine headache!!
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Avatar universal

Thank you for your kind insight! It feels very comforting knowing that I am not alone with this flutter funk. I guess I just need some time to  adjust to this new challenge of not getting excessively worried(panic) with every flutter. Ughhh, just as I am typing this....... flutter.

Thanks again!

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Avatar universal
Nearly all the things you`ve listed that cause your PVC`s have, at one time or another, triggered mine.  They can literally start at any time. I often wonder if we get bouts of them while sleeping!  I don`t think they`re necessarily triggered by anything specific that we eat, drink or do. I`ve spent a lot of time trying to fathom exactly what might cause them, but have never come to any definite conclusion other than knowing that it`s not a heart problem. The heart is just the recipient of signals sent by the brain/nervous system, and the fault lies somewhere within this system.  Mercury in tooth fillings have been known to trigger arrhythmias by generating minute electric currents which interfere with those transmitted to the heart.  Many people have tiny traces of heavy metals elsewhere in their bodies which could cause similar effects. Who knows?   Come on, all you scientists and researchers out there!  How about an in - depth investigation along these lines?  
Anyway Barbarella, although I agree with you that they`re not the most pleasant things that can happen, I`m glad to know you no longer worry about the things -  reets80302 please note. As I said to you, it can be done.  Good luck.   0tt0
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Avatar universal
I've been having these PVC's off and on for 40 yrs now.  Caffeine does not cause them.  With me its Adrenaline Rush.  NOT from Caffeine, but unexpected bad news, severe suspense about an outcome, severe anxiety about something or severe anger when confronting the situation.  Then the PVC's start and stay for a long time till they finally stop.  My heart through these PVC's episodes is so sensitized that after a meal, or just eating a banana or an apple, or a sandwich the PVC's will come in full force.  Just getting up will bring them on, being in icecold weather with a cold wind blowing will bring them on, and the list goes on.  When I'm PVC free none of the above will bring them on except a severe adrenalin rush.

Beta blockers nor tranquelizers have stopped my PVC's in the past.  I lost the fear of it, but still HATE them when they come.  
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Avatar universal
I feel your pain guys/gals. I too have PVC's. I recently started taking Omega 3, 6, and 9 Fatty Acids and my PVC's are virtually gone...I am so relieved!!! I take 1 capsule three times a day and my heart is palpitating only several times a day now! I read medical research that says that it stabilizes cardiac cells, making them less excitable, thus reducing PVC's. It also has been found to dramatically reduce one's chances of sudden cardiac death in those with diseased hearts. I take Rexall's Flax, Fish, Borage Oil--it's sold at Wal-Mart and is a Godsend. Please ask your doctor and try it! What do you have to lose? Take care everybody.
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Avatar universal
You`re getting exactly the symptoms I`ve been getting most of my life.   I frequently get 5 to 10 second flutters - I had one this morning shortly after getting up, other times I just get the odd one premature beat here and there between normal beats.  And they can give the sensation of breathlessness.
  BUT - what your wife and friends are thinking is slightly unfair, as you do have the anxiety problem, but they are right in thinking you`re perfectly healthy, because you ARE!    All your tests prove it!
They are also right in saying that you have got to get over it, because that`s the only way forward.  Very easy to say, don`t I know it!!   But true, all the same.  
  But your wife and friends do need to understand the depth af anxiety and panic that these "flutters" can generate. It`s impossible for anyone - even doctors and cardiologists - who have never had them, to fully understand the feelings that they cause.  I suggest you get them to read this forum.  It may give them some idea of what you are going through.
  However, you really have got to try and get these feelings of doom and gloom from your head.   I suggest that RIGHT NOW you get your jog kit on and go for a run. Set out with the idea that you WANT to bring on a bout of your arrhythmia.  EXPECT it to happen, and if it does, just stop and take it easy, (don`t panic - remember you`ve started this bout deliberately) and go through what`s happening in your mind:   You can feel the erratic beats in your chest - they are uncomfortable, but they are not painful.   You can feel the "void" sensation in your chest, and a feeling of breathlessness, but you`re not really breathless - just the discomfort of the whole thing.  You don`t really feel dizzy, or sick. Everything else feels fine - and, of course, everything else IS fine.      Do the same tomorrow and the next day and as often as you like, but always set out with the intention of STARTING a bout deliberately.   This way, you won`t be worrying about when the next bout is going to start, because you`ve taken control of the situation by starting at least one bout each day, yourself.  If one doesn`t start this way, then fine - just try again the next day.    If a bout starts spontaneously, just relax and concentrate on what is going on, as above.   Gradually, you`ll come to terms with them and come to accept them for what they really are - just an annoyance.   Also, when you`ve shaken off the worry and anxiety, you`re likely to get fewer bouts, as worry can be one of the triggers for the things.     Keep in touch.  0tt0
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Avatar universal
Wow....thanks for your thoughtful post.

I have had:

Blood Tests
Nuclear Stress Test
EKGs
CT Heart Scans


All of the medical tests above indicated  that I have a normal functioning heart. But, I stll get these unxplained flutters in my mid-gut that takes my breat away. These little bouts last at most 5 seconds but can happen in clusters. It scares the heck out of me.....I get this uncontrollable rush of panic and anxiety. It's a feeling of .. I won't be able to breathe and my heart is stopping and I'm going to die feeling.

I was once a very healthy 50 yr old(runnig 50+ miles a week - under 3hr marathoner). But about 6 months ago I got a real funky bug from an accident of consuming some creek water. I took the necessary meds to clear out all bugs but developed these funky flutters. The cardio people (during the stress test) said they were harmless PACs. Maybe harmless but they have turned my life upside down. I am now fearful to run  or do anything the raises my heart rate because that is when the flutters act up.

I am a very unhappy guy right now ! AND... what's worse is that my wife and friends think I some hypocondriac because I seem healthy but wrought with anxiety about these flutters. Everyone saying.." just try to ignore them if they are harmless....get over it". But, I wish for just once they could experience what I do when I get a flutter so they would understand how much strenght and courage it takes to deal with this funk.
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Avatar universal
"Skipped" heart beats are one of two types.  They are either Ventricular Ectopic Beats, (VEB`s), otherwise known as Premature Ventricular Contractions, (PVC`s).  Or they may be Atrial Ectopic Beats, (AEB`s), otherwise known as Premature Atrial Complexes, (PAC`s).   Symptoms are similar for either - a very weak beat occuring very quickly (prematurely) after a normal beat. As these weak beats can`t usually be felt, most people get the feeling that the heart has stopped, until a very strong thumping beat is felt. This strong beat is necessary to pump the extra amount of blood left behind by the earlier weak beat. That`s all the thumps are - nothing more sinister than that!  It just tells you that your body is doing the right thing to keep the blood flowing correctly.  For those of you who can monitor your own blood pressure, you`ll almost certainly find that it remains normal during bouts of this.    Tens of millions of people regularly get these ectopic beats.   PROVIDED that you have NO underlying heart disease,  then they are quite harmless.  It is NOT a heart disease itself; you are NOT going to have a heart attack; you are NOT going to die!  As I said before, I`ve been getting these for going on 50 years, and I`m still in good health.   However, if you DO have a specific heart complaint, and particularly if your ectopic beats are VENTRICULAR, (an ECG should determine this), then you will need to keep in close contact with your cardiologist, as they may cause complications.  There isn`t a doctor on the planet that knows for certain what causes these things. It has been said that caffeine, alcohol, cold remedies, smoking and stress could trigger them. In my particular case, smoking, caffeine and cold remedies were not the cause, as I gave them all up a very long time ago.  I also gave up all alcohol for an extended period, to no avail.  (This does not mean that these things will not work for you - they may be well worth trying).  What can sometimes trigger them off for me is vigorous exercise - but NOT always, a sudden sharp intake of breath, worry, and anger.  A case in point - I was very annoyed by a letter received only this morning.  I phoned the writer, which resulted in quite a heated argument. This triggered ectopic beats. After the call and I`d calmed down, they ended.
I can sympathise with everyone that gets them.  I know EXACTLY how you feel. I`ve been all through it and used to be terrified of them. But over time, I`ve learned to manage mine. It took me a while to come to terms with them, but now I hardly give them a second thought, especially as I know they`re harmless.  They can be uncomfortable - very uncomfortable at times.  But so can a pain in the ***, and none of us worry about that, do we?     We all have loads of discomfort with other things, especially as we get older, but we all learn to live with them. These ectopic beats are just another one of those things. They`re not even painful.   So all I can say is - when they happen, try not to worry. Just look upon them as being a bloody nuisance!  Sit or lie down for a while and try to relax. Once you master the art of taking this attitude to them, you may well find that you get them less frequently. I know I did.
       I sympathise with those who dislike taking drug medication. I won`t take them either.  The side effects bother me much more than the ectopic beats themselves.   As far as I am aware, there isn`t  a drug yet invented that will actually stop them.  If one of them did, we`d all know about it, and the makers would earn themselves the odd billion or two!   If your doctor prescribes drugs for this complaint, then by all means try them.  But if there`s no improvement, you should give serious thought re - coming off them, as it`s possible that they may make you feel worse. But ALWAYS do it with your doctors knowledge.
       Remember, if you get any kind of arrhythmia, FIRST OF ALL, tell your doctor and get your heart checked for any possible heart disease.   If it gets a clean bill of health, then the foregoing may be of some help to you. If, like I did, you make certain decisions for yourself re - taking medication, etc.,  keep your doctor informed.
   If I can help anyone, let me know.      Good Luck.  0tt0    
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Avatar universal
I would look into those constant skipped beats be related to the two nodules on your thyroid...It's shocking how much impact that little thyroid gland has on your body
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Avatar universal
I am 41, female, have asthma and two nodules on my thyroid that so far are testing as benign, and have had panic attacks and anxiety for years. I have a son with epilepsy and so stress is a big aprt of my life. I take lorazapam as needed, but thats more and more frequent these days. Two years ago I noticed this flutter and sudden bogged down feeling in my heart. It faded, and then returned and never seemed to let up over the course of a week. I saw my doc whos ent me to a cardiologist. I wore a 48 hour holter monitor and after having it read was told I was having thousands! of PVC's. He said many many people walk around having them and dont know it - others are extremely sensitive to them, such as me. He prescribed a beta blocker, but after learning it could worsen my asthma, I did not take it. I am not a fan of taking prescriptions to begin with, and read up on everything before putting it in my body; perhaps sometimes I have too much information for my own good? Anyway, I tried to deal with the increasingly strong PVC's as best I could, and like amny of you have mentioned, when walking, I felt them less and less. But I'm not always walking. I began to get these sudden, completely out of nowhere hard heavy thumps right in my heart. Scared me horribly.. they take my breath away. Its not a sharp pain, more like a swift unexpected punch directly in the chest. So my cardiologist had a stress echo done, etc. They said there was nice blood flow, etc. and had no particular reason for these sudden thumps. Well these ahve been increasing and there is no rhyme or reason to them - apple picking, paying the bills, riding in the car, stepping out of the shower, reading in bed. Boom! The PVC's are stillt here, but these are soooooo intense. I saw my cardiologist 2 days ago. My blood pressure was 104/74 and my heart rate was 96. My average bp is 120/74 but my heart rate is consistently in the mid to upper 90's and low 100. I am a walking stress case and wish I could learn to calm down. It sucks, but I just cant. He said the tests show the PVC's all come from the same location, and he did talk to me about the ablation but said if it could be calmed by meds rather then something invasive, we should try that first. So I have been prescribed DILTIAZEM 12 hour extended release 120 mg to take once daily. It makes me so scared to take something that will change the way my heart beats. I have just read all the possible side effects. These PVC's are scary. I cant wrap my head around the fact that something going awry with your heart beat can be not life threatening. I am afraid to take this pill tonight, and afraid not to. Can you guys share with me any side effects of Diltiazem? And can anyone offer insight to what these out of the blue sudden thumps are? Thank you for all the info you share of your own stories. In the very least, Im not alone.
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Avatar universal
hi there,i am also 47 years of age, over the last 6 weeks i have been getting the skipped/missed heartbeats have had several tests and all came back normal,my last episode lasted about 3-4 hours and drove me mad, mixed whith the fear etc can bring you down. i have faced many fearfull times in my life but this thing takes me to places i havent been before. dont know how otto has managed to cope.i hope one day with treatment this thing will leave me so i can go back to the REAL ME.
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Avatar universal
g.  I own my own business and I am working hard to increase sales and get my mind of my heart.  I have many complications with kidney stones, gall bladder and now this so I can not take herbal supplements.  I am also allergic to so many things that I have to be careful of everything I put in my mouth.  This has only been the case for about 6 years and before that I was a healthy type A personality with out medical issues.  Something has gone wrong or maybe it's an age thing  47 years old.  I know that I wake up everyday so I have to let this go.

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