ANYBODY WITHOUT A MENU, READ ON. IF YOU FEEL GOOD, DO NOT READ!!

[willows]

Well, I'd give a MENU of what I ate when I was on tx, but going for two and three days without eating from nauseau makes for a short list, this all happening after tx for 12 weeks. And now, it is happening again with cirohissis. Oh, I forgot, this is not the place for me to share my own experiences, lest I scare someone with my perspective, truthful as it is.

My anger is going to show, but I'm not caring too much right now, the undeniable, sad freakin fact is thtsome of us today will be non-responders in a year.  I'm so damn sorry about that, but truth is truth, and I damn sure you hope all treat them better than this weeks chastisment about sharing the frustration and trught of treatment or sharing pollyanna lectures bout how any of us SHOULD be posting.

My Own, your daily menu was great, especially for anyone having a great time with side effects. But what the hell are you doing for sympathy for those folks who do NOT have as easy time as you? You give as good as you get, girl. I am frustrated badly right now, not for your good luck, but those folks, sick, looking for help and encouragement. Do you offer that in your menu? I couldn't find it. Find a dictionary , lood up sympathy and EMPATHY, girl. And then praise god that you are having the luck you are. But never forget one minute that you are lucky and there are soo many folks out there suffering.  If somebody figures out the correct pc balance in posting, please let me know.  Because it ain't happenning now.  

Bent Willow

[FlGuy]

There should be little for us to do in this.  The way it was explained is that the pharmacy (or ins) reaches out to the doc and the doc provides some response. But. it's worth a follow up by the patient just to insure against gaps in refills.

[merlino]

Hello my friend. Happy to hear from you. Believe it or not knowing you are right with me does help make it easier. I try not to complain but some days are just so hard I need to vent to get through!!! Congratulations to you also!! This is week #12. Second week no Procrit and HGB is up to 12.6. How r u feeling! Any appetite? Our friend is at the end of a long long journey. I pray it all goes well for her. Our day will be here before we know it!!!!! Look how quick the time has gone since my first post to shot #12!!

[merlino]

I am on week 11/48. My taste buds are totally gone. There is not one food that I can say tastes good. I eat to survive. I have tried everything from Rockers beet powder to NYGirls fudge pops and nothing nothing has a good taste. At this point I feel if I can get it down I don't care if its good for me or not its some kind of nourishment. My Dr. said eat whatever you can. I just keep telling myself its not forever. I do get a little frustrated everytime someone says OMG your so skinny, your so lucky - they should only know!!!!!!!!!!

[FlGuy]

I was looking for you to tell you congratulation on getting a quarter through this junk.  I'm pretty sure it's week 12. And with the the angst of starting, all the stuff you had to get through, the holidays and the anemia - I think you've seen and been through the worst of it.  Congratulations in having made it a quarter of the way, in no time we'll be halfway.  And for our pal, 3 to go.

[compulsive]

Willow - Thank you for letting your feelings out - if you hadn't I would have continued to believe I was alone with my extreme food issues..

Jim - *s*  I think I get the Marinol thing now.  I am still not sure how I feel about messing with it or MJ, but I will talk to Doc some more about it as I am pretty well willing to try anything right now.  The MJ tea is tea brewed from the leaf - possibly as effective and surely less harmful than smoking.  I am just not real sure I want to do anymore drugs of any sort.  *smile* kind of feel like the peg, riba and antibiotics are as much as I can handle right now.


Kalio - yeah I made the mistake of taking antibiotics with the Riba twice - figured out very quickly not to do that!


  I have been chugging down icecream/ensure/fruit smoothies - and they are staying down!  Yipiee!!!  I am also gonna try to work a little more very mild exercise into the mix since part of this seems to be not related to my eating but a general wasting problem.  Hoping to get a handle on this soon...

I'll be looking for protien powder, cheese cake, and prosure on my next food shopping endurance experience on thursday...


Thanks all for your suggestions and support.

willow - I know I won't take it well at all if  this H E double toothpick TX results in a viral relapse...I am with you there - that really s*cks...

[Cindy10]

Peg Intron, no nausea