Twinki I am sorry I don't know anything about B as I have C. I hope that you can get some advice but if I was you I would do what I did = google it and learn everything that you can.
I missed getting in to the CONGRATS thread - I just wanted to say best luck, congrats. There are too many internal thoughts right now regarding you and treatment and SVR to possibly put in to a post.
It must be wonderful to not be putting those poisons in! You know the doctors believe that I have Graves Disease as a result of the Interferon. Imagine that me the most pro treatment person being the odd .4 % of people who ever have this happen. So now...I realize what POISON it really is. Oh yes I would do treatment again to kill this disease but...I would have my eyes a little more open than they were.
I think it's fabulous you are finally off of them. Imagine in a few weeks how you are going to FEEL. You can finally have your life back and your health.
Certainly though I know you won't abandon us...but I just want to remind you...and say please don't disappear we need you.
You made a difference in my life.
even though there are no physicians answering questions in this forum and most members are dealing with hep c, someone might have some insight on your concerns. In the meantime, I had bookmarked this site on hep b, just read what is pertinent to your situation:
Thank you so very much and very sorry you now have to deal with Graves Disease. Don't really know much about it but hopefully you've seen or will see a specialist soon.
Like you say, treatment is a kind of poison and the risks have to be constantly weighed against the rewards. Hey, I put off treatment for three years after a stage 3 biopsy! I'm in no way trying to be a role model here, but just want to give you my mindset of how much I respected the potential damage these treatment drugs can do.
Hopefully, I'll get out of treatment pretty much intact, but if I not, I'm comfortable I only took the risks when warranted.
In your case, you have shown great valor and an infectious positive attitude rivaled by none. Keep up your attitude but never get too agressive in treatment to the point of jepordizing your long-term health.
All my best and hopefully this Graves thing will not end up being too serious.
Now that you are finished, you might want to consider just enjoying your health coming back and forgetting about the hep C for 6 weeks. Get your 6 week test, then forget about it for 6 months. It is not that hard to do once you convince yourself you are cured. I know geno 1's have it tough in that they claim the cure rate is 50%, but you were 100% compliant (I think) and cleared at 6 weeks. You'll be fine. Don't sweat it if you have RUQ discomfort for the next couple months as it is simply your liver remodeling.
Off now to have some corned beef. I'll have a Guinness for ye.
I'm so sorry to hear Graves disease. Did they do any test yet? What will they do now?
With all you have been going through and now this. I just don't what to say, but we are all here for you.
Hi Jim. So glad to hear that you have completed tx. Your courage, strength and compassion have been an inspiration for many. I personally want to thank you for always taking the time to respond to my questions, and for keeping an open mind and heart to all who come here. May you rest easy in your mind knowing you have valiantly fought the dragon, and live each day confident of the victory you have achieved. Best wishes to you for a happy, peaceful, hepc free life! DJ
ohhh baby,tell me it's not threatening situation..What is Graves disease????will this possibly end trx??? GOODLUCK GIRL
K-i'm hangin in there just fine-did me a proper pill tonite-always days2&3 after the shot worse for me-go figure? Glad to hear you are taking xtra riba in stride,you are #1 Dragonslaying fighter-no lady in waiting! hey,i like that french actor too,rene?-the one in 'the professional' can't rem name-go figure that! who was actress played the young protege?
Good morning, Did shot 3 last nite at 530 pm and the sx's are not too bad. Did a pain med. about 3 hours after the shot, right before the sx's were to kick in. Ha I seen that movie, it stars John Reno. Man does that little girl ever put that hitman thru. some real ****! How are you guys doin this good morning?
I admire the way you got right back on the horse with stronger meds than ever. Just be very careful as you raise the riba. In general, it takes about two weeks for the riba (or a dose change) to kick in. So, it's possible what you're feeling now isn't 1400 mg/day but closer to half that. Are you planning on taking any Procrit? If you haven't already, at least getting an rx processed through the insurance system will save time should you need it. Procrit also will allow you to dose the riba even higher if that's what you and your med team want.
All the best moving forward.
BTW maybe you can share your personal experience of "de-toxing" from the drugs. Did you stop everything at once, or did you continue with the riba for another week after your last Peg shot?
My last riba was this past Wednesday night and my last Peg shot, the Wednesday before. No increase in energy yet or anything dramatic although I seem to be sleeping sounder. Still waiting for my taste buds to return to normal.
Saw the post where Jim asked about the detox from meds, but didn't see the first post about it. What happened with the detox? Were yousick from it?
BTW--congrats on starting tx again! Did you change any other the meds from the first time?
Morning folks-post st. pat day blues? or is it greens? leastwise i know we aren't sufferin w/ Irish whiskey & guiness hangovers-our little college town has deep irish roots so lots of whoop-up last nite;ther but for the grace of god .....Dyce:who was that little girl?i seem to think she has become bigtime,drop-dead gorgeus starlet??ahhh what diff does it matter;all i gotta rem. is to take my meds!
Good morning , How are you feeling with sides?
BB, I'm answering a ? you ask me yesterday. You asked if I found my paperwork on my 1st clear pcr to figure my end of tx date. I won't get my 1st pcr after starting tx until june 1st, that will be the 12 week mark and I'm not overly concerned about a 4 week pcr bein I'm geno 1-a with 0 liver damage. I have some thought of sneaking a 8 week pcr in and I could probably have my pcp help me with this. How are things today?
Beam, The little girl in the movie the professional is Natalie Portland. Her newest movie I believe is star wars 3 but she's bald in this presentation, but still a fox! How is the dragon battle goin today?
Sorry about that I thought I asked about PCR to some one else. I know your doing #3 this week-end. Wow what brain fog I have.
With #'s like that I agree you should have a PCR at 12 weeks, I'll have my PCR this thurs or FRi. Can't wait to find out what it is and on the other hand scared to know. How are you doing today? Did you do you shot last night or today?
Good morning BB, I have a little nausea today but it's managable so far. I did my shot at 5.30pm yesterday and the sx's didn't treat me to bad. I know your nevious about the upcoming pcr, but you'll get good results. You've been dilegent about taking your meds. and with the blood trans. I look for your 2nd 1/2 of the tx to be good. I pray for your results to be undetectable.
Thanks, Hope your right.
I'm glad this week's shot was not to bad. It does get better or maybe we just get use to the meds. I found the water very important to stay hydrated as in the beginning I wasn't drinking enough and had problems. Hope the rest of your week end goes well.
Dyce-thanks for actress name-Did the movie theatre tonite w/ my daughter- saw Natilie in the new release-V- from the guys who did matrix....We agreed,best movie we have seen in long while.. but then i did have the most excellent company!....... about nausea:don't take riba on empty stomach-ever! try ginger-yu can get it dried& sugared;papaya in caps;mango juice or bettr yet whole ripe fruit;apple,esp peel has pepsin....I do yogurt(or ice cream-NYGIRL!!!) w/ riba and of course lots of water before&after!!! them pills mess w/ my guts and i'm not prone to digestive problems whatsoever..Goodluck
Beagle-glad to see you feelin some better...About the B-12 shot: what dosage?? i'm looking for more energy myself!
That movie sounds good willhaveto see it. I know what youmean about your gut, I'm still having problems but not as bad as the first month. My daughter was feeding me organic foods low in fat and that was the worse thing to eat with the riba. Now I take it with ice cream or any thing with fat and it has helped.
About the B-12 shot, you can get the shot at your dr.'s office. Some order it from Canada but for me it's easier at the doctor's. I did see someone up on another post that they give them self 600mg., but I don't know how much the norm is. I can tell you it has helped and now I look forward to getting it and feeling good. About the ginger, I drink ginger-ale with my meal and it helps too.
Have a good night,