thank you for the link very interesting, hope this is a sign of political change (end or at least mitigation of FDA corruption)
i will try to be there and i suggest anyone to storm them with replicor fast track request as hdv and hbv in combination treatment as it is the only one who achieved cure rates
as it is the only treatment that achieved good percentages of functional cure
i used PFDD Submission form to hepb.org and this was my question straight to the point: why replicor rep2139 or rep2165 nucleic acid polymers are not approved yet?their remarkable safety and tolerability is known since many years plus these compounds are also the only cure for HDV infection yet no fast track approval.our hbv community does not understand the pushing of new compounds with poor safety and no results from other companies in 2018-2020 while we had already previous results from replicor, we can only think bad about this situation.thank you
They want us to buy the medicines lifelong and keep filling there pockets.
stef2011, I commented the same question you asked. to make the question more visible.
There are a few things patients wanted. I actually participated in the survey but could not attend this. Of note, results were said as follows:
- We want a one pill cure, no injections, to this. No lifelong treatment and less sides
- We also said while a full cure is ideal, we would accept a functional cure (I'm not sure how I feel about this)
I have not seen the rest just yet, but the Hep B Foundation posts on twitter a lot and also share links there with any news etc.
is the live stream saved and linked somewhere?