Thank you for shering your expiriance.
thank you for your post
is there a feature on this forum to keep important posts always first?
i think this post, alinia post, interferon+lam hbv eradication post, drugs that make resistance and maybe some other posts need to be always present otherwise they get lost among other posts less helpful or important
Thanks stefano. I don't know if there is any way to have specific posts first. I believe only the forum admin can set this up like welcome messages.
Thanks so much for this important post. I'd love to see your next results. This is the issue that I would like to know. My doctor said he would not experiment this until there is clear guideline about it. I plan to have a baby too. I'm on Viread since August.
Thanks for the info. I too breastfeeding right now and baby just took the 2nd hepb shot. I pray to god all the time that he will not get it!!
Very nice,thanks for the post.I too was diagnosed with heb b and is ready to have a baby with my husband before this gets too serious and before i start any medications. So am very happy reading your post,it makes me feel like i have a chance to have a family.Thank you Enolia and happy new yr to u and your family......
You are very welcome. I hope this helps. Happy new year to all!
I will update as soon as I have the next results.
Update about Viread vs breastfeeding.
My baby's phosphate and creatinine test results came back normal so it is fine to breasfeed, I guess this means that baby's kidneys functions are not altered by Tenofovir, I was told if the results came back normal after one month of breastfeeding then I can continue otherwise I should mix both Formula and breastfeeding which I was doing anyways since he was born. Thanks god, these are good news!
I believe each baby needs to be tested to see how they react to the drug before using breastfeeding exlusively.
Thank you so much for you post. I am 20 weeks pregnant and taking Tenofovir. Blood work looks good and liver ultrasound looks good. I would love to breastfeed my baby but my specialist and several doctors have told me NO. I am devastated but reading your post has given me hope. Will you update your son's progress.
Update on my baby's condition regarding HBV transmission:
Blood test after the HBV 3 vaccine shots came out normal! I am so happy! He doesn't have HBV and has acquired immunity 268 UI per ml in the antibodies count!
So my baby didn't get any HBV from me.
As a reminder:
- I am a chronic carrier with Hbe Neg,
- My original pre-treatment DNA count was 59 000 UI per ml. ALT values were around 32 when I started treatment and are now around 20.
- I was undetectable throughout all my pregnancy after taking Tenofovir. I started Tnf before getting pregnant. That was my doctor's recommendation.
- I had a normal delivery (not ceasarian),
- After a lots of discussion, I have been told at the hospital after delivery that it was fine for me to breastfeed baby while on Tnf unless tests show harm to his kidney function (check levels of creatinine and phosphate) after 1 month of life to ensure he is not affected. I am still on Tnf and still breasfeeding. He is now 7.5 months old.
I thought I would share the good news :)
i am very happy for this
also the fact to prevent any hbv entering the baby is very valuable because liver cancer rates are statistically the lowest among those that never met hbv while acute hbv who cleared have some increased risk although we are talking of very smll numbers
Yes it was very important to us make sure the baby is HBV free. I believe I got it from my mom and my mom from her mom, etc. It was time the break this terrible chain, at least from my side! I feel so relieved!
congratulations! Take very care of your son.
Hi Enolia and hlllove
are you suffering from any side effects from taking Viread. I did some study about the side effects of Viread and they are quite severe (damage to liver and kidney).
Appreciate your feedback. I am thinking of taking Viread to reduce the risk for my little one. I am desparate.
Hi Enolia and hlllove,
Enolia, I hope your son is healthy now.
hllove, what is your experience? How is your baby?
It's been quite long time you both from the community!
I am on Viread while pregnant. Now, I'm on 8th month pregnancy. The ultrasound indicates that my baby is in good shape, but the level of amniotic fluid is low. Is it a normal problem for those taking Viread?
Thanks and wish you both good luck
It's more than 1 year after your posts! I'm so happy for your son and you!
I'm having very similar situation as yours back to 2 years ago, and searching the information regarding breastfeeding with Tnf (my baby is not born yet). Your information is definitely helpful. Thank you so much for sharing.
All the best to you, your son, and your family! Merry Christmas.
I hope all is well! Thank you for sharing your experience.
My AST, AST and virus count were way out of normal range when I found out I was 8 weeks pregnant. I was hoping to wait till the end of my first trimester but all my doctors I consulted with urged me to take Viread asap. So I did.
I am 17 weeks pregnant now and my latest blood test shows that all the numbers are back to normal. I just hope that my baby will be fine because I really hate taking Viread every morning.
I saw that you were monitoring closely the kidney function of your baby during breastfeeding. What about your kidney function? Did you monitor your own kidney during pregnancy?
Thanks again for sharing this with us and stay healthy!
You are very welcome. It's been a while since I posted here.
My baby is now over 2 years and he is doing great, he is very healthy, I don`t have personally any side effects. During pregnancy, I was only checked for AST, ALT, I am not sure about creatinine, when you don`t have previous kidney issues or reactions to viread, they usually don`t check but you can ask your doctor to prescribe them to you. I hope all goes well with your pregnancy. Take care. Babies are wonderful :)
Thanks Halen, I m glad this info was useful to you. :)
I have no side effects for now but I know that some people do not react well to viread. I also know that the company is working on a version of vireal thats less harmful to kidneys, if you want a baby, viread is the only solution.
Thanks Enolia for sharing your experience! It's very positive result and you have given me a lot of hope that even with the treatment it's still possible to have a family! THanks a lot! And I hope you will not mind to replying to our questions from time to time!
If these drugs cause these side effects in one that is taking them. Imagine what will it do the developing fetus.
These drugs themselves are the biggest reason behind fatty liver and abnormal body fat distribution.