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Hepatitis C Treatment - 6 Months Past Treatment and Beyond
What was your treatment drugs? How long since treatment ended? Has Hepatitis C treatment improved your life
and how?
and how?
Best Answer
This was written by another member a year ago. It really hit home for me. I hope it is ok to share it here
Before taking interferon and ribavarin (Roche's Pegasys Copegasys), I was a busy office manager at a successful structural engineering firm, I ran our own online family business, I traveled regularly, I was active in the community and at my children's schools and activities, I was social and gregarious, physically active, upbeat and generally quite happy and content. I was able to multi task and was energized in large groups if people. I was successful and felt good. After discovery of the hep c virus and recommendations by three gastroentenologists for me to try the treatment I embarked in the worse medical nightmare if my life. Oh yes I'm still, over five years later hep c free after the horrific 48 week treatment but my life has never been the same. I lost my job within months if starting, then I lost my mind. I am now agoraphobic, anxious, have panic disorder, am agonizingly depressed, suffer from bone pain, nerve pain to the point if soft touch hurting me and exhaustion that never ceases. Medications do not seem to help enough that I can feel normal. I go nowhere now. My husband lost his sexy loving wife, my kids lost their happy healthy mom, my friends lost their copilot and I lost me. This is no kind if life I'd wish on anyone and I am one of the lucky ones. I just pray sometime soon these poisons are removed from the market. Every life is worth saving. Learning to live with hep c would be my choice if I ever had to make it again. The profit should not be worth these kinds of human costs. What ever happened to compassion and logic. I hope you never have to experience this kind of living death. If you're thinking of the treatment, don't do it. Exhaust every other healthy safe alternative. Something better will come. Peace and love be with you.
Before taking interferon and ribavarin (Roche's Pegasys Copegasys), I was a busy office manager at a successful structural engineering firm, I ran our own online family business, I traveled regularly, I was active in the community and at my children's schools and activities, I was social and gregarious, physically active, upbeat and generally quite happy and content. I was able to multi task and was energized in large groups if people. I was successful and felt good. After discovery of the hep c virus and recommendations by three gastroentenologists for me to try the treatment I embarked in the worse medical nightmare if my life. Oh yes I'm still, over five years later hep c free after the horrific 48 week treatment but my life has never been the same. I lost my job within months if starting, then I lost my mind. I am now agoraphobic, anxious, have panic disorder, am agonizingly depressed, suffer from bone pain, nerve pain to the point if soft touch hurting me and exhaustion that never ceases. Medications do not seem to help enough that I can feel normal. I go nowhere now. My husband lost his sexy loving wife, my kids lost their happy healthy mom, my friends lost their copilot and I lost me. This is no kind if life I'd wish on anyone and I am one of the lucky ones. I just pray sometime soon these poisons are removed from the market. Every life is worth saving. Learning to live with hep c would be my choice if I ever had to make it again. The profit should not be worth these kinds of human costs. What ever happened to compassion and logic. I hope you never have to experience this kind of living death. If you're thinking of the treatment, don't do it. Exhaust every other healthy safe alternative. Something better will come. Peace and love be with you.
Intron A 3 shots a week treatment ended 20 years ago
Interferon with Ribavirin treatment ended 14 years ago
Interferon, riba plus a trial med treatment ended 10 years ago
Sovaldi Olysio treatment ended 9 months ago
Currently treating with Harvoni
No known impact on my life except for not being cured and the damages from cirrhosis
Interferon with Ribavirin treatment ended 14 years ago
Interferon, riba plus a trial med treatment ended 10 years ago
Sovaldi Olysio treatment ended 9 months ago
Currently treating with Harvoni
No known impact on my life except for not being cured and the damages from cirrhosis
Interferon + Riba = 72 weeks of pure h*e*l*l*.
Ended July 2005.
... after reading thru my list of post treatment issues (about 1 year later) to one of the head nurses at the University of Pittsburgh Liver Center the nurse repeated a number of times "I am sorry we destroyed your life!"... things have not gotten any better so I would have to say that treatment not only destroyed the hep c virus but my life.
Thru it all I do try to stay positive but I will never forget those words. At least a validation but WoW!
Ended July 2005.
... after reading thru my list of post treatment issues (about 1 year later) to one of the head nurses at the University of Pittsburgh Liver Center the nurse repeated a number of times "I am sorry we destroyed your life!"... things have not gotten any better so I would have to say that treatment not only destroyed the hep c virus but my life.
Thru it all I do try to stay positive but I will never forget those words. At least a validation but WoW!
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Ya know, life is really interesting! I have come to believe that there is a reason for everything. Call it destiny - some can decide to turn their back on it...
I usually grab my destiny with full gusto... that old saying about lemons and lemonade, right! I know so many people who are so lucky going thru life looking for whata, coulda, shoulda!
I was diagnosed while living a great life in San Francisco! The life of an artist! At 40 I was running and single gear cycling the hills of SF! Fit as a horse! The city had no funds to treat and told me what healthy things to do and I did them.
I was called to help my parents in PA. PA had tons of money to play with peoples health. Once disabled, and fighting for years I won disability. With my parents help and destiny have a beautiful home. Lovely things in it. I live a simple life but miss many things!
My big destiny was to save my parents life. I won't go into details but it was the reason I was brought home!
Becoming an advocate for oneself and others is an amazing tool to have. Most doctors really appreciate it and a few fear us. Maybe that is the greatest gain from treatment!