Hepatitis C: Post Treatment Issues Community
291 Members
Avatar universal

Post Olysio Savaldi blood clot and brain tumor

I was put on this combination to cure my hepatitis C and my life is never been the same. Not only did I suffer a complete occlusion to my left femoral artery after taking this combo with a blood cloting disorder (never told that this combo was dangerous to those who have issues with clotting) but shortly after my treatment a very smal tumor was found at 6 mm. Today, 20 months later it's 2 cm and needs to be taken out. At the current growth rate, the tumor must have started during treatment or shortly thereafter. My brain fog is horrific and it's not from the tumor it's from the moment I stuck that first pill on my tounge!  i have talked with so many others who have experienced much the same as I. This drug is dangerous!!!  My email is ***@****. I don't care about sharing it, I just want answers. I'd rather be slaying the dragon ever day than fighting for my life now. And please don't bother with comments about it being a coincidence. It's not!  I had an MRI of my brain a month before treatment from a sledding accident and it was PERFECT!  6 months later by accident this was found. I had an autoimmune response prior to surgery so they did a brain MRI to make sure I didn't have inflammation prior to surgery on my fractured neck.
4 Responses
7002065 tn?1443077214
maybe it's your immune system gone haywire. when you carry a virus (i mean, look,  a virus has millions of years of evolution behind itself) and the immune system is in balance with the virus everything is fine (except the fact that HCV ruins your liver) but as soonas you remove the virus, the balance is broken. andeverything has to adjust itself newly. that's what i experienced... it's a hard road...
Avatar universal
I took the same combination and experienced great discomfort post treatment. Never did I believe that keeping the virus over taking meds and getting better was an option. In Oct 2015, I had a year free from the virus. I was still experiencing terrible pain and discomfort...but lately and I mean just this past week, I actually felt better. If I exercise, drink lots of water and pay attention to what I am eating, I will get better.
I appreciate what "Lookbehindyou" shared. It was an accurate depiction of how I felt last year. Hang in there! Never give up!
317787 tn?1473362051
I'm so very sorry to read your story.  Everyone was told that the new tx's would be so much better  easier than interferon.  I had hoped that was true.  I had a hell of a time getting over Incivek, Interferon and Riba.  It was much worse that just the Inf and Riba. which I took 3 years before.
I guess, in hindsight the tx has to be hard to kill the virus.  Saying that, if you felt great before treating, worse after, it is heartbreaking.
After I treated and was cured.  I started looking for anything to help me.  I tried a lot of different things.
Then I read that interferon could reduce our dopamine levels I started taking L'Tyrosine and it has helped me.  I am no longer staring into space.  I am functioning much better than I was.  I hope you can find something to help you, Dee
Avatar universal
My Mom died from Solvadi and Olysio in Oct 2014.  I am emailing you for more information.  I know the forums do not like for me to talk about my Mom.  They will either lock or delete my post.  .. but I will never go away and I will never stop talking about how Solvadi and Olysio killed my mother.  PM for me information.
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
683231 tn?1467326617
Auburn, WA
7469840 tn?1409849436
San Diego, CA
475555 tn?1469307939
Woodhaven, NY
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.