Aa
Aa
A
A
A
Close
1823708 tn?1317877614

1yr post interferon treatment a success .but still suffering

its just over a year since i finished my inter/ribv treatment for geno type3 hep c. I went through some of the worst symptoms and had never felt so sick ,ill, and helpless in all my life .after 3months the med staff wanted to take me off the treatment due to severe side-effects of fatigue,sickness ,headaches .Not being able to lift myself to the tolet.i was lying on the settee for 18hours a day in dreadful sate and in bed for the other 6.My joints felt and do now feel like they are on fire,my hands and feet are so swollen in the morning s ,i have to get -up 2/3hours before i can do normal everyday things.Which is still difficult.I lost alot of my hair .Which is not a nice thing.i never felt like eating because of the sores in my mouth and oulcers .Im still battling with symptons 1yr on .And although my treatment was a success ,when i was hep c geno type 3 i never suffered the effects.Now im always ill ...and catch every cough and cold going .Im currently fighting phemonia .It makes me think was it all worth it .Sorry to sound so neg .But im a young widow with a daughter.Who was (what i though in the best of health) until this interferon /rabv seem to ravage my body ......
7 Responses
Avatar universal
I am sorry your still suffering..I pray you will find some relief soon. I worked for several year in a VA Hospital drawing blood and what you describe and described I saw so often it scared me right out of treating for myself.
Avatar universal
Please do read the prior threads on 'lont term' effects from interferon therapy.  There have been several posted in the last week or so, and you can find them by scrolling back through the pages on the forum.  You might find some information and fellow sufferers by reading the threads.  Your communications and comments are welcomed.  

DoubleDose
Avatar universal
Of course, I did mean "long term effects"  sorry for the typo....  
Avatar universal
I don't have time to write much at the moment. I just wanted to add my voice to the others. You are not alone in experiencing long-term side effects. There are similar outcomes to yours.

Welcome to the HCV Community site.
1491755 tn?1333201362
There are other threads but they are very long and go off on many tangents.

I'm 6 months out I know what you mean about the mornings takes me a while to get going.
1823708 tn?1317877614
May i thank you ALL ,for your comments .I cant believe iv gone through a yr of post symptoms without finding this site and others that are also suffering ,and sum that arnt !!!. I hope that as time goes on my symptom s will cease .And that i can help other s with my experience.The only thing is....THAT !!!!...i don t think will correct itself ,is the fact ,that the treatment sent my THYROID GLAND into over-drive .As in "normal thyroid problems" it happens gradualy.But the treatment speeded up this process so my thyroid was none-exsitant 4weeks into treamtent ,then took the docs another 4weeks to find out .Oh well!!!  im now having to take medication which does keep it stable ....Thanx again and good luck to you all xx
Avatar universal
I am so sorry to hear of your long term effects. That is what everyone dreads about treatment. You have also had many other stressful and difficult events in the recent past and none of that helps either. I will be praying for you and hope you find some relief soon.
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
For people with Obsessive-Compulsive Disorder (OCD), the COVID-19 pandemic can be particularly challenging.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.