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APPROVED - Update on drugs!

So excited - today got approval for BOTH Solvaldi and Olysio to be provided to me for a 12 week treatment using just these 2 drugs!  As you might recall from my previous posts that my Hep Dr. believes that this combo will be the perfect cocktail for SUCCESS!  Tomorrow marks exactly 1 year since I stopped the last treatment at 24 weeks of Riba, Victrelis and Pegasus.  HORRIBLE side effects, blood transfusions and detectable AGAIN at the post 12 week mark.  It actually took me 6 - 7 months to shed all the side effects and feel normal again.  That was my 2nd attempt to SVR and at 61 years old I am really praying this treatment is indeed the final solution.
I will be the 3rd patient he has doing this same program with many more trying to get approvals from their insurance companies.
I should start within a week and will post updates weekly on how I feel and the journey.
Keep the faith and blessings will often happen!  
Happy Grammy today for sure!!!
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PS. I am 58-look 48-feel 98 lol
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Avatar universal
You guys are so inspiring! I have genotype 1a. what combo is my best hope do you think? I have never treated before. I feel like death warmed over for years and I can't imagine what it would feel like to feel good again! Yeah, I know, I am going to see a hepatologist but I just want you're opinions!
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Avatar universal
So glad to hear you feel so much better! I am 60 and will be starting solvaldi and olysio soon. I hope I feel better as well. Doc said I could wait on new meds but I am so tired of feeling weak and all the other crap that goes with the hep that I am not waiting on anything else, I can do 12 weeks, I know. Good luck to you and thks for posting that! Awesome.
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Avatar universal
Right on Grammy.    I recently was cleared and feel great.  We only need our fellow warriors to join our rank, and then the dragon will finally put in his place.  Happy to hear the update, and enjoy your newly deserved home.
Stay well.     ...Kim
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Avatar universal
The feeling of being virus FREE is indescribable!  I am almost 62 - and now because of those miracle drugs Olysio/Solvaldi I have great energy and stamina.  We are in the process of remodeling a home - top to bottom.....and I am doing tons of the physical work, painting, scraping, tiling, building....and so on.  Doing all this without pain, brain fog, fatigue and issues.  I cannot tell you all how different I feel !!!!  I still have stage 4 cirrhosis and I am hoping this ole liver will start healing a bit as my body gets stronger.... then I die from something else.  I will live a good health life without alcohol and vitamins and better eating habits.  But I promise I am not giving up junk food!!
Love to all and continue to kill your Dragons!!!
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683231 tn?1467323017
Hi Dan
Welcome to the forum.

Sovaldi is manufactured by Gilead pharmaceuticals and the "on label use" is per the prescribing information of Sovaldi with Ribavirin and interferon injections.

Olysio is manufactured by Janssen Research & Development the "on label use" per the prescribing information is again with Ribavirin and interferon injections.

The off label use means not using per the prescribing information. In this case it is using Sovaldi with Olysio with or without ribivirin. There was a clinical drug trial named Cosmos where the 2 medicines were used together with very good results. For that reason the American Association for the study of liver disease recommends this off label combination of medications for patients with specific genotypes. It is all very individualized depending on your genotype, weather you have treated previously with what medications with what result, and how much liver damage you have.

Are you seeing a liver specialist i.e. a hepatologist or at least a gastroenterologist? Have you treated previously? Do you have cirrhosis? Do you know what genotype of hep c you have. The answers will help to know what treatment might be recommended for you by your doctor. Also your doctors office hopefully will help you find a way to get your meds covered and the manufactures of the meds also offer assistance in getting you the medicines you need.

Good luck to you
From one vet to another 8 years Army
Lynn
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