I have to balance the information a bit, on muscle issue. I treated for 72 wks and had no muscle or wt loss, it is a very individual thing. I know people that continued to go skiing and other types of physical activities. I myself was able to do my 2x wk trip to the Y. Once the anemia(from the riba) was under control, I did not have the excruciating muscle pain. Not every body, in fact, most, do not experience severe debilitating symptoms, according to my hepatologist.
You will read horror stories and wonder if you will be one of those, then you read the ones that continue with some normalcy, and you hope you will be one of them.
You will not know until you try it yourself.
At one point, my doc suggested testosterone gel or even some steroids to build me up. Thankfully, my weight stablized at 150 and I didn't go that route.
While I had to stop working out in the beginning, later in treatment I did start going to the gym. Basically did whatever I used to do but MUCH shorter workouts with much less weight. And where I used to run, now I power walk.
Lately, my strength has been coming back, but not so much the muscle mass. As a body builder, you probably know more about that then me.
Also (don't laugh) I've been using the Total Gym (Chuck Norris/Christy Brinkley infomerical) at home and it's helped a lot. Very convenient because I can hop right on it for a few minutes whenever I have the energy.
Anyway, glad you popped in here and please let us know how things go with the biopsy. BTW I'm about your age (just turned 59). Question, a 300lb bench is very impressive to the likes of me. I assume you're doing this drug free because certain drugs/supplements can have consequences for the liver although your liver seems to be doing very well with whatever you're doing.
Thanks alot NYGirl for the clarification.
Hey no problem! When I first came in here I just couldn't believe how fortunate I was that there were SO MANY CARING people in here to help me out with my questions. And man oh man I posted like a fiend I had SO many questions I thought they would throw me out.
was one of the luckiest things that ever happened to me. While treatment is completely tolerable for me...these guys have almost made it "fun" at times. Knowing if I didn't have HCV I would have missed out on some REALLY big laughs.
When I read your post I sort of envisioned Popeye - not really because of your description but because I am so tall and skinny right now that I thought if we stood together I'd look like Olive Oyl. ;-)
JmJm...I have never taken any steroids or drugs..I took creatine many years ago for a few weeks and then got off it.I eat very healthy and my daily lunch is this expensive but very nutritious product called "Ultimate meal"...its an incredible product and you don't need to take any other supplements with it.I mix it with "Very vanilla Soy milk" and its palatable.I would highly recommend this to anyone trying to get some terrific nutrients and protein in their body...I figured that while it cost $70 for a 2 week supply I was actually saving money cause I cut out all my other vitamins and supplements.
I eat so very healthy with lots of blueberries and raspberries and soy.Very little red meat.Lots of water.Prunes get a bad rap because people associate them with the aged but they are incredibly healthy.
Thanks all for your support..I had no idea how many caring people are on this board.Dave
http://www.pbase.com/dsg2/dave......No Popeye here NYGirl :)
Yikes...didn't mean to post my entire gallery LOL...just under dave...photography is my passion,my obsession...it gives me so much peace and satisfaction.
LOL NO you are CERTAINLY no Popeye! :)
However you do look to be in phenomenal shape that is not debatable. I have to figure that it will help you big time with the disease somehow.
Have you always been such a health nut? I have always been thin and worked out but sadly ever since I last saw my twenties (a few years ago - (what a liar I am) I've not taken the time to take care of myself as I should.
One good thing about this disease is that I have found out again that this is the ONLY body I've got and taking care of it is REALLY the utmost priority.
It's nice to mee you Dave - there are so many fabulously caring people in here in the same boat it's mind blowing. And so lovely NOT to be alone on Hepper Island any longer!
Thanks Debbie for the kind remarks.I was your typical 90lb weakling up until I was 15,a few years ago...see,I can lie too LOL.I started lifting weights and have never stopped.I'm paying the price today of lifting very heavy weights as I have advanced arthritis in my right shoulder and very limited range of motion.Just putting on a belt can be a struggle.I also have a large bone spur which feels like a dageer in my tendon when I move it the wrong way,I had arthoscopic surgery 5 years ago to remove the scar tissue and the bony cyst.I went through 6 months of rehab which helped but now the cyst is back bigger than ever.I can't throw a ball overhand and can't lifts weights over my head..so,my exercises are confined to bench presses,curls,dips etc and of course all the ab and leg work i care to do.
One day i will have shoulder surgery but thats a long rehab and my energies right now are on the Hep C..if I get a good bio report I may consider the long and laborious shoulder surgery.
I have eaten very healthy most of my life...I had 1 bad fault and I was a heavy social drinker...that stopped immediatelly when I learned I had hepC...I used to have an occasional beer or glass of wine but when my VL went to 33 million I totally stopped.
I have no idea how I got the Hep..no transfusions,no tattos,no drugs etc..someone told me it could have been from a mosquito bite..we have lots of those in South florida in the summer time and they have always seemed to like me alot...never heard of that as a possibility but I suppose if a mosquito bit an infected person and then bit me it would be possible..Anyone ever hear of contracting the Hep c through a mosquito bite?
Nice meeting you too Debbie.
Best to you debby...nice to meet you..talk later,Dave
I agree with your doctor.
Just make sure if you decide not to treat to stay with what appears to be a very healthy lifestyle and be followed by your doctor on a regular basis. You might also want to take a yearly Fibrosure test and yearly Fibroscans when they become readily available in this country which hopefully will be in a year or so. As your doctor may have told you, better treatments are hopefully on the horizon. BTW using my treatment experience as a guide, you'd be lucky to bench 100 lbs by week 24 of treatment. Interferon loves muscle tissue alsmost as much as the Hep C Virus. LOL.
Hi DSG, welcome.
given your age, and the fact that you are in fairly good health, chances are that your liver will not deteriorate rapidly. Of course, there are people that no matter what they do, be it good or bad habits, the body will not follow the average statistics. Some with bad habits will still be well, and some with good habits will progress to severe damage, I think genetics is the foundation for the response, and maybe the quasispecies of your particular strain. If you are not at stage 2 or above, new drugs might be available in 5-7 yrs according to some hepatologists, but no one knows if the side effects will be better than present meds.
If you choose to wait, watch out for other HCV related conditions, since this virus is a blood disease, not just liver. To learn what other conditions to monitor, do a web search of extrahepatic manifestations, if you have not done so already.
good luck on the results
Thanks for your comments..I did not realize interferon had such an adverse effect on muscle tissue...being that I have been an athlete and bodybuilder since I was 15 it would be especially difficult to see my strength and muscle tone decrease almost week by week....at any event,I'm hoping next week will bring me good news as far as my bio and I can hold off meds til much better meds are approved...Dave
I'd just add that whatever your biopsy result -- unless you're a stage 4 -- you might want to wait until the second quarter of 2006 before making a final treatment decision. By that time, hopefully there will be some preliminary data on a new trial drug called Vertex that will help clarify whether or not it keeps the virus down once treatment is over. What they should have by then is wha'ts called SVR (sustained viral response) data.
I started treatment at 176 pounds and was down to 150 pounds three months into treatment. Most of the loss was muscle. My doctor says this is very common with men. No one can accurately predict when the newer drugs like Vertex will be out but I've spoken to some doctors involved with the trials and they're talking 3-5 years at most should the drugs prove themselves. That said, trials for first-time treaters are starting right now so that's always another possiblity.
Wow,,thats a huge weight loss...how much of that was due to loss of appetite and calories...I figured I might at least be able to throw down some protein shakes for the nutrition but then,I might not be able to keep it down.
Do you try to workout or were you just to weak and ill??
Exercise has got me through alot of hard times in the past and hopefully I would be able to workout at least at some level.
From what I understand the effects of the meds tend to vary alot from individual to individual.My doc said that given my existing physical condition the effects on me might not be as bad as others.
At any event,I'm hoping the bio results allow me to buy more time..I'll know very soon..thanks.
I just wanted to point out, there will not be SVR data then, I don't believe. The trials for SVR data haven't started yet, so it might not be until the end of the year.
I hope I'm not scaring you off of treatment on the muscle thing alone. If you have to treat, losing some muscle temporarily is a small price to pay. But given your stats, I'm sure you could still kick sand in the face of most not on treatment. LOL.
But, yes, there are sacrifices we all make when we decide to treat. Spend some time here (don't forget to check our archives) and on other other boards like "Janis and Friends" or "Hepatitis Neighborhood" reading as many posts as you have the time. It will help give you an idea of what people go through on treatment.
Don't want to come up "short" again LOL debating with the expert, but I was pretty sure Vertex's last web cast talked about preliminary SVR data in the second quarter of 06. I'll try and find it later or maybe you have it at hand.
The reason why I am not expecting it, is that this initial p2 trial is only 12 people, 28 days, and after 28 they will be rolling over to SOC. Therefore, I think it will be a better indicator of undetectability than SVR. Since there would be a 3 month follow up for SVR in p2, the minimum amount of time assuming a 1 month trial is 4 months. So, JMHO, that it would be pushing it. I think the other trials might be better for that. I would have to recheck it too, I could be wrong. I guess mentally I wasn't looking for SVR data that soon in 2006, but if they had it, I would of course, welcome it.
No..the loss of muscle is a small issue and concern relative to eradicating the virus...I just was not aware that Interferon was so harmful to the muscles.
Viral load is not necessarily an indicator of what shape your liver is in. I started with only a 500,000 vl but I was stage2/grade2. I am glad you had a biopsy because there really is no other way I could have made my own decision.
If your liver is not very damaged you probably can decide to put of tx for a while. I decided to treat and have never ever regretted the decision. I want this out of my body in a big way!
But if I had been a 0 it would have totally had a bearing on my decision.
Let us know what results you get. The guys here are great for asking questions I wouldn't have made it without them. It's saved my life in so many ways.
i'm w/ nygirl--i want the virus GONE..........regarding muscle loss:i am losing muscle tone pretty fast! but i am really lazy on trx & that's most certainly the main culprit..Bench pressing 300 lbs now???!!!!!--Just eat yur spinach & blow that vrus outa yur pipe-heh,heh,heh
i yam what i yam-------,good luck
Welcome to the forum DSG
is there any one knowledgeable on the moscito issue. They are not supposed to be able to infect HIV. I have never understood this. I mean theoreticly, they spit in salvia so the blood wont clock, and suck the blood, so isn