Aa
Alternative Therapy
Hello.
I am 51 years old and last year discovered I had Hep C, Genotype 1. After the biopsy, we found it was Phase 2. My doctor did put me on the suggested therapy however, I did not do well with it. My weight dropped from 116lb to 92lb. My hemoglobin dropped from 130 to 79. And finaly I lost a fair amount of hair on only one side of my head. This all took place in 7 weeks. I was taken off the therapy and now I am in limbo.
Is there anything I can do or try? It is very difficult to sit and do nothing - it is extremely depressing and I am having a hard time. I am single and when I go home from work, this disease and lack of trying to stop it, continually plagues me.
I saw my doctor last month and his advice was to try not think too much about it and he would see me next year.
I feel like I have no control and my own mind will do me in before the disease ever will.
What do I do?
I am 51 years old and last year discovered I had Hep C, Genotype 1. After the biopsy, we found it was Phase 2. My doctor did put me on the suggested therapy however, I did not do well with it. My weight dropped from 116lb to 92lb. My hemoglobin dropped from 130 to 79. And finaly I lost a fair amount of hair on only one side of my head. This all took place in 7 weeks. I was taken off the therapy and now I am in limbo.
Is there anything I can do or try? It is very difficult to sit and do nothing - it is extremely depressing and I am having a hard time. I am single and when I go home from work, this disease and lack of trying to stop it, continually plagues me.
I saw my doctor last month and his advice was to try not think too much about it and he would see me next year.
I feel like I have no control and my own mind will do me in before the disease ever will.
What do I do?
trying to find out if anyone has ever had sores in the mouth due to the Peg-interferon shots or is it the Riba that does it?
cottoncandy99
cottoncandy99
I LOVE TO READ GASTRO/HEPATOLOGIST'S STUDIES AND RESEARCH AND I LOVE TO HEAR ANYONES OPINIONS. MY PROBLEM IS PEOPLE WHO COME OFF AS PROFFESSIONAL AND FACTUAL BUT THEY ARN'T DR.S, AND THEY DON'T STATE THE SCIENTIFIC RESEARCH TO BACK UP THIER "STATEMENTS".
A PERFECT EXAMPLE IS THE ARTICLE THANBEY HAS ON HER SITE MISINFORMING THE PUBLIC (YES SHE IS RESPONSIBLE FOR WHAT INFO SHE ALLOWS ON HER SITE), THAT THE CHANCES FOR SVR FOR COMBO TX IS ACTUALLY SMALLER THAN MOST OF US HAVE READ SCIENTIFIC REASEARCH ON.
I WAS CONCERNED. I WANTED TO KNOW IF I HAD THE LATEST INFORMATION. SOMEONE WAS SAYING SOMETHING THAT I HAVE NEVER HEARD BEFORE. SO I LOOKED UP SOME SCIENTIFIC STUDIES THAT SAID THE ODDS WERE BETTER THAN THAT.
I AND OTHERS SHOULD HAVE THE RIGHT TO ASK WHERE THEY GOT THAT INFORMATION. THEY HAVE A RIGHT TO IGNOR MY REQUEST. BUT, AT LEAST THEN I KNOW WHAT KIND OF PERSON I AM DEALING WITH AND I CAN AJUST MY THINKING TO PERHAPS NOT BLINDLY BELIEVE THIS PERSON WHEN THEY POST.
I HAVE AN OPEN MIND TO A POINT, I AM NOT EASILY BAMBOOSELED. ALL I REQUIRE FOR MY OWN RESEARCH IS THAT IF SOMEONE IS NOT A DR. OR GASTRO WITH FORMAL SCHOOLING... IS THAT THEY BACK UP CONTRAVERCIAL IDEAS WITH ADEQUATE SCIENTIFIC DATA.
IF YOU NOTICE IN MY PROBLEM WITH THANBEY STATED ABOVE, SHE STILL HAS NOT POSTED HER SCIENTIFIC REASEARCH TO BACK UP HER WEB SITES STATEMENT THAT ONLY "33% OF PEOPLE AT MOST" TAKING TX WILL CLEAR THE VIRUS. MOST PEOPLE KNOW THAT IS INCORRECT. BUT SOME DO NOT. I WANT TO PROTECT THOSE PEOPLE.
INNOCENT NEW COMMERS WHO DON'T KNOW BOTH SIDES OF A DEBATE CAN NIEVELY BELIEVE THOSE STATEMENTS,CAN MAKE INNCORRECT DESCISIONS BASED ON MISINFORMATION. WHETHER TO GO OFF TX OR NOT TRY IT NEEDS TO BE BASED ON FACTS. IT IS A LIFE OR DEATH ISSUE.
ANYONE OF US THAT MAKES STATEMENTS THAT SOUND LIKE FACTS SHOULD BE READY TO BACK THEM UP IF ANYONE ASKS. NONE OF US ARE DR.S. SO IF SOMEONE IS "PUT OFF" BY US ASKING THEM PROVIDE THE ACTUAL PROOF OF WHAT THEY ARE SAYING IS SOMEONE TO BE CAREFUL OF AND RED FLAGS SHOULD GO OFF IN ALL OUR MINDS.
ALL I DID WAS ASK THANBEY TO PROVIDE SCIENTIFIC REASERCH TO BACK UP HER STATEMENTS. THIS SHOULD NOT BE SEEN AS A PERSONAL ATTACK BUT AS A SAFTEY PRECAUSION. HAD SHE POSTED IT I WOULD HAVE PUT MORE CREEDENCE IN HER SAYING IT. I AM WAITING FOR THE STUDY THAT SHOWS THAT ONLY 33% OF PEOPLE AT MOST WILL BE SVR. UNTIL THEN I WILL BE GUARDED ABOUT THAT CLAIM.
LET'S NOT BE A BUNCH OF "LEMMINGS"........
WE HAVE TO LOOK OUT FOR ONE ANOTHER. IF I HAVE SOMETHING TO POST THAT I AM SAYING IS A FACT. I TRY TO PROVIDE A LINK TO BACK THAT UP. IF I HEM HAW AROUND ABOUT IT THEN YOU SHOULD NOT BELIEVE ME UNTIL I DO.
P.S. A LINK THAT IS JUST SOMEONE ELSES OPIONION IS NOT SCIENTIFIC RESEARCH AND FACT EITHER.
A PERFECT EXAMPLE IS THE ARTICLE THANBEY HAS ON HER SITE MISINFORMING THE PUBLIC (YES SHE IS RESPONSIBLE FOR WHAT INFO SHE ALLOWS ON HER SITE), THAT THE CHANCES FOR SVR FOR COMBO TX IS ACTUALLY SMALLER THAN MOST OF US HAVE READ SCIENTIFIC REASEARCH ON.
I WAS CONCERNED. I WANTED TO KNOW IF I HAD THE LATEST INFORMATION. SOMEONE WAS SAYING SOMETHING THAT I HAVE NEVER HEARD BEFORE. SO I LOOKED UP SOME SCIENTIFIC STUDIES THAT SAID THE ODDS WERE BETTER THAN THAT.
I AND OTHERS SHOULD HAVE THE RIGHT TO ASK WHERE THEY GOT THAT INFORMATION. THEY HAVE A RIGHT TO IGNOR MY REQUEST. BUT, AT LEAST THEN I KNOW WHAT KIND OF PERSON I AM DEALING WITH AND I CAN AJUST MY THINKING TO PERHAPS NOT BLINDLY BELIEVE THIS PERSON WHEN THEY POST.
I HAVE AN OPEN MIND TO A POINT, I AM NOT EASILY BAMBOOSELED. ALL I REQUIRE FOR MY OWN RESEARCH IS THAT IF SOMEONE IS NOT A DR. OR GASTRO WITH FORMAL SCHOOLING... IS THAT THEY BACK UP CONTRAVERCIAL IDEAS WITH ADEQUATE SCIENTIFIC DATA.
IF YOU NOTICE IN MY PROBLEM WITH THANBEY STATED ABOVE, SHE STILL HAS NOT POSTED HER SCIENTIFIC REASEARCH TO BACK UP HER WEB SITES STATEMENT THAT ONLY "33% OF PEOPLE AT MOST" TAKING TX WILL CLEAR THE VIRUS. MOST PEOPLE KNOW THAT IS INCORRECT. BUT SOME DO NOT. I WANT TO PROTECT THOSE PEOPLE.
INNOCENT NEW COMMERS WHO DON'T KNOW BOTH SIDES OF A DEBATE CAN NIEVELY BELIEVE THOSE STATEMENTS,CAN MAKE INNCORRECT DESCISIONS BASED ON MISINFORMATION. WHETHER TO GO OFF TX OR NOT TRY IT NEEDS TO BE BASED ON FACTS. IT IS A LIFE OR DEATH ISSUE.
ANYONE OF US THAT MAKES STATEMENTS THAT SOUND LIKE FACTS SHOULD BE READY TO BACK THEM UP IF ANYONE ASKS. NONE OF US ARE DR.S. SO IF SOMEONE IS "PUT OFF" BY US ASKING THEM PROVIDE THE ACTUAL PROOF OF WHAT THEY ARE SAYING IS SOMEONE TO BE CAREFUL OF AND RED FLAGS SHOULD GO OFF IN ALL OUR MINDS.
ALL I DID WAS ASK THANBEY TO PROVIDE SCIENTIFIC REASERCH TO BACK UP HER STATEMENTS. THIS SHOULD NOT BE SEEN AS A PERSONAL ATTACK BUT AS A SAFTEY PRECAUSION. HAD SHE POSTED IT I WOULD HAVE PUT MORE CREEDENCE IN HER SAYING IT. I AM WAITING FOR THE STUDY THAT SHOWS THAT ONLY 33% OF PEOPLE AT MOST WILL BE SVR. UNTIL THEN I WILL BE GUARDED ABOUT THAT CLAIM.
LET'S NOT BE A BUNCH OF "LEMMINGS"........
WE HAVE TO LOOK OUT FOR ONE ANOTHER. IF I HAVE SOMETHING TO POST THAT I AM SAYING IS A FACT. I TRY TO PROVIDE A LINK TO BACK THAT UP. IF I HEM HAW AROUND ABOUT IT THEN YOU SHOULD NOT BELIEVE ME UNTIL I DO.
P.S. A LINK THAT IS JUST SOMEONE ELSES OPIONION IS NOT SCIENTIFIC RESEARCH AND FACT EITHER.
I am not the least bit qualified o answer you question.
There have been books on this by alternative medicine specialists.
A couple of authors I would recommend you look for are:
Dan Labriola, ND
Misha Cohen
Both of these authors have a special interest in Hepatitis C. Misha Cohen's specialty is Traditional Chinese Medine and Dr. Labriola's work has been in Oncology (Interferon was/is an oncology drug) and hepatitis.
I hope this helps,
thanbey
There have been books on this by alternative medicine specialists.
A couple of authors I would recommend you look for are:
Dan Labriola, ND
Misha Cohen
Both of these authors have a special interest in Hepatitis C. Misha Cohen's specialty is Traditional Chinese Medine and Dr. Labriola's work has been in Oncology (Interferon was/is an oncology drug) and hepatitis.
I hope this helps,
thanbey
Oh wow...we will all to be afraid to make a statement on anything anymore or share new articles that we have found for fear that we are going to have to weeks of research to back up something we ran across. There has been so many reports of something new coming up in next few years but if every person here that made that statement...I then jumped on it and wanted all the facts, and their back up on it...well you get the drift...it would run alot of people off. We are all here just going through this together and have this wonderful support system and yes...none of us are doctors...Just good compassionate people that care for one another. As far as thanbey being a dr...no she isn't. A professional...I would say that anyone that 15 plus years of studying and researching a disease would probably have one up on us that maybe have tops a year to 5 and in my case...4 months so I would feel ridiculous to say she is NOT a professional because WHO AM I?
Just so you know, I receive no salary.
No one at HCOP is paid.
We are organized under section 501(c)3 of the IRS tax code. That is the strictest section of the code and it governs all chriable organizations.
So, what have we done with the money? We have made education of hepatitis C available in these communites:
Cleveland, OH
Hazard, KY
Los Angeles, CA
Bellingham, WA
Orlando, FL
New York City
Hilton Head, SC
Dallas, TX
Houston, TX
Wshington, DC
Baltimire, MD
We brought the message to the American Public Health Association's Global Health Conference in 2000 for the first time and I have been nominated this year for the Public Policy Section as a Counsellor to the APHA.
We were invited to present to the NIH (National Institutes of Health) Consensus Management Conference on Hepatitis C in 2002. A video of our medical director's presentation is avaialbe on our site or on the NIH site.
I have advocated for Women's Health in HCV for a number of years, beginning with Schering Plough (who did not want to release the data) and made the FDA look at the question resulting in the information being on the label of the product for Pegasys. Women might think it is important to know that the disease and the treatments affect them differently. I am a spokesperson for the Society for Women's Health Research (I think the list is on their website)
If I continue to list all of the things we have done, I suspect I will be villified for that, too.
So, know this: this all began for me and my husband when we submitted his (successful)application for service connection to the VA in 1992 on the basis of hepatitis C (He was a navy corpsman who was sewing up the boys coming home from Viet Nam)My husband works with Veteran's on benefits issues and we both counsel on applications. For free.
I have lived through his treatment and we have survived this disease and care enough to share what we have learned, including the improvement (documented) in histology from lifestyle choices alone.
I am not Mother Teresa or Saint Teresa, I am simply one woman with a medical background and years of experience as a health educator, social worker and attender of countless CMES for specialists who tried to give the patient community a glimpse of what is going on in the world of HCV. I do not put myself in the category of expert, though there are doctors who love to embarass me at advisory boards by saying otherwise and who ask me to help them with difficult cases. I am a librarian more than anything. I find the information and share, it. I travel and speak extensively.
I have been listed in Who's Who in Healthcare and Medicine for several years now and even in the Millenium Edition that went into the White House Time Capsule for the Millenium. I thought it was cool that HCV was represented in the time capsule in some way.
So, believe whatever you want to. See the flying black helicopters if you wish. That is all up to you.
We do need money, just as any chairity does. You get tons of email and mail asking for your charity dollar for every kind of cause. We are simply another choice. We are accountable for what we do to the IRS and to the public. But, since the Hepatitis C Community is not known for supporting their own charities, many are now disappearing. Choose one ans support it. Remember, though, that a foundation is not a charity.
I am not responsible for the Senate Bill in Washington, but I support it. I have lobbied for it. We tried to get the Surgeon General's letter out, but it STILL hasn't gone out.
I don't think anyone convinced I am a scam is going to be convinced of anything. All I can do is attempt to follow my own moral compass and be the person my values say I should be. Judge me if you like, but do so after you have stepped out publicly and tried this on for size.
And, just so you know, I have no message board. I travel around from one to another at whim and as time permits. As a volunteer, I reserve the right to do that.
As to the Board of Directors and the Advisory Board, they have stuck with this a long time and they are all volunteers, too. They believed that the HCV community is important and have served without pay and travelled at their own expense. How often do you think a reknown researcher volunteers to be a medical director for free?
The mission statement of HCOP was crafted 12 years ago and we mean what it says. If we had wanted to, we would be much better off financially. We have been offered significant amounts of pharmaceutical money and have refused it. THAT would have biased our perceptions. The marketing machine fo the drug companies is incredibly strong and it has been woven into the fabric of every aspect of the medical community including science and clinical trials. While I haven't regretted the decison, we don't criticize the organizations that did take the money. They have had the benefits of more money, professional PR and other kinds of support and I think have done very well with it. We are still standing after 12 years. That says something, in my opinion.
My basic message is this: do your own research and go with your own value systems and what is right for you. Don't rely on me to do your research for you. I do what I can and the rest is up to you.
Best thoughts,
thanbey
No one at HCOP is paid.
We are organized under section 501(c)3 of the IRS tax code. That is the strictest section of the code and it governs all chriable organizations.
So, what have we done with the money? We have made education of hepatitis C available in these communites:
Cleveland, OH
Hazard, KY
Los Angeles, CA
Bellingham, WA
Orlando, FL
New York City
Hilton Head, SC
Dallas, TX
Houston, TX
Wshington, DC
Baltimire, MD
We brought the message to the American Public Health Association's Global Health Conference in 2000 for the first time and I have been nominated this year for the Public Policy Section as a Counsellor to the APHA.
We were invited to present to the NIH (National Institutes of Health) Consensus Management Conference on Hepatitis C in 2002. A video of our medical director's presentation is avaialbe on our site or on the NIH site.
I have advocated for Women's Health in HCV for a number of years, beginning with Schering Plough (who did not want to release the data) and made the FDA look at the question resulting in the information being on the label of the product for Pegasys. Women might think it is important to know that the disease and the treatments affect them differently. I am a spokesperson for the Society for Women's Health Research (I think the list is on their website)
If I continue to list all of the things we have done, I suspect I will be villified for that, too.
So, know this: this all began for me and my husband when we submitted his (successful)application for service connection to the VA in 1992 on the basis of hepatitis C (He was a navy corpsman who was sewing up the boys coming home from Viet Nam)My husband works with Veteran's on benefits issues and we both counsel on applications. For free.
I have lived through his treatment and we have survived this disease and care enough to share what we have learned, including the improvement (documented) in histology from lifestyle choices alone.
I am not Mother Teresa or Saint Teresa, I am simply one woman with a medical background and years of experience as a health educator, social worker and attender of countless CMES for specialists who tried to give the patient community a glimpse of what is going on in the world of HCV. I do not put myself in the category of expert, though there are doctors who love to embarass me at advisory boards by saying otherwise and who ask me to help them with difficult cases. I am a librarian more than anything. I find the information and share, it. I travel and speak extensively.
I have been listed in Who's Who in Healthcare and Medicine for several years now and even in the Millenium Edition that went into the White House Time Capsule for the Millenium. I thought it was cool that HCV was represented in the time capsule in some way.
So, believe whatever you want to. See the flying black helicopters if you wish. That is all up to you.
We do need money, just as any chairity does. You get tons of email and mail asking for your charity dollar for every kind of cause. We are simply another choice. We are accountable for what we do to the IRS and to the public. But, since the Hepatitis C Community is not known for supporting their own charities, many are now disappearing. Choose one ans support it. Remember, though, that a foundation is not a charity.
I am not responsible for the Senate Bill in Washington, but I support it. I have lobbied for it. We tried to get the Surgeon General's letter out, but it STILL hasn't gone out.
I don't think anyone convinced I am a scam is going to be convinced of anything. All I can do is attempt to follow my own moral compass and be the person my values say I should be. Judge me if you like, but do so after you have stepped out publicly and tried this on for size.
And, just so you know, I have no message board. I travel around from one to another at whim and as time permits. As a volunteer, I reserve the right to do that.
As to the Board of Directors and the Advisory Board, they have stuck with this a long time and they are all volunteers, too. They believed that the HCV community is important and have served without pay and travelled at their own expense. How often do you think a reknown researcher volunteers to be a medical director for free?
The mission statement of HCOP was crafted 12 years ago and we mean what it says. If we had wanted to, we would be much better off financially. We have been offered significant amounts of pharmaceutical money and have refused it. THAT would have biased our perceptions. The marketing machine fo the drug companies is incredibly strong and it has been woven into the fabric of every aspect of the medical community including science and clinical trials. While I haven't regretted the decison, we don't criticize the organizations that did take the money. They have had the benefits of more money, professional PR and other kinds of support and I think have done very well with it. We are still standing after 12 years. That says something, in my opinion.
My basic message is this: do your own research and go with your own value systems and what is right for you. Don't rely on me to do your research for you. I do what I can and the rest is up to you.
Best thoughts,
thanbey
I'm ESLD b/cl'ed@18dys. fin 24wks Oct '02. What would be a good herbal diuretic? Also a good ammonia-binder to keep the encephalitis at bey? I just noticed that the herbal hormonal support I was taking had black cohash (as do the others I ck'ed today), is there a good non-toxic hormonal support? I don't do Rx's, not even during tx for sx's--the only Rx I've taken in yrs was tx for hep c(pegintron-riba), which was fitting since it was a blood transfusion (W med) that sickened me.
Were you on the latest tx.? (boy I'm almost 4 months post and I still have awful brain fog...had to try to spell latest 3 X !!) Whew! Anyway Have you thought about a second opinon? Just a thought. Many prayers, Cindee
First of all, my treatment is still an open book. I am on week 61 -- cleared early, remained clear.
Secondly, I don't know much of anything when it comes to hepatitis.
I am entitled to my opinion and my opinion of Teresa Hanbey is that she has some other agenda than "helping" us that are fighting this disease. Should I be sorry if that offends you?
As far as alternative methods: If you have something that works please share. I'd like something other than peginterferon and ribavarin because I don't like the sides.
Secondly, I don't know much of anything when it comes to hepatitis.
I am entitled to my opinion and my opinion of Teresa Hanbey is that she has some other agenda than "helping" us that are fighting this disease. Should I be sorry if that offends you?
As far as alternative methods: If you have something that works please share. I'd like something other than peginterferon and ribavarin because I don't like the sides.
I am with you 100%. I am not sure what you are attributing to me because I was commenting on an article put up by someone else. I was not making any claims of my own. Let me know if I was not clear about something and I will try to do better.
The difference between marketing and science can be very hard to decipher even for doctors.
Thanks for your insights on this board. I appreciate where you are coming from, on both counts.
thanbey
The difference between marketing and science can be very hard to decipher even for doctors.
Thanks for your insights on this board. I appreciate where you are coming from, on both counts.
thanbey
Thank you one and all for your suggestions. The past year I have been hiding under a rock and did not realize there was so much in the way of support just from comments of others.
Take good care.
Z.
Take good care.
Z.
I HAVE A QUESTION ABOUT ONE OF YOUR ABOVE SITES ON ALTERNATIVE TREATMENT OPTIONS. IT WAS SAID ON YOUR SITE;
"There is NO reliable and effective therapy for chronic hepatitis C since interferon and antivirals work NO MORE THAN 30% of the time"...
THIS IS SIMPLY NOT TRUE.
(see these 2 large studies)
... on full doses of meds svr is 44% for genotype 1's and 7o% for geno 2 and 3 which averages out to 53% for mixed groups. (study 4)
(results were higher in study 5)...at 51% for gyno 1's and 76% for geno 2-3's. and the odds really raise if you have evr by week 12. see pegasys information from thier company.
look up under "complete product information" and look at studies 4 and 5.
http://www.rocheusa.com/products/pegasys/pi.pdf http://www.rocheusa.com/products/pegasys/index.html
TIME TO LIST THE REPUTABLE SCIENTIFIC DATA TO BACK UP THIS STATEMENT. THIS SORT OF STUFF IS WHY PEOPLE ARE HAVEING A HARD TIME WITH YOUR POSTS AND WEB SITE.
"There is NO reliable and effective therapy for chronic hepatitis C since interferon and antivirals work NO MORE THAN 30% of the time"...
THIS IS SIMPLY NOT TRUE.
(see these 2 large studies)
... on full doses of meds svr is 44% for genotype 1's and 7o% for geno 2 and 3 which averages out to 53% for mixed groups. (study 4)
(results were higher in study 5)...at 51% for gyno 1's and 76% for geno 2-3's. and the odds really raise if you have evr by week 12. see pegasys information from thier company.
look up under "complete product information" and look at studies 4 and 5.
http://www.rocheusa.com/products/pegasys/pi.pdf http://www.rocheusa.com/products/pegasys/index.html
TIME TO LIST THE REPUTABLE SCIENTIFIC DATA TO BACK UP THIS STATEMENT. THIS SORT OF STUFF IS WHY PEOPLE ARE HAVEING A HARD TIME WITH YOUR POSTS AND WEB SITE.
I am not willing to debate with you on every point. Surely we disagree on who is dug in on a position.
I don't see the point in personal attacks, so I am not going to go there with you.
How about we not address one another directly? That is the surest way to avoid confrontation that disrupts this board. No one should interpret my silence to your points as agreement with them and the reverse should likewise be true. Is there anyone left who doesn't know your opinions or your opinions about my opinions? Is there anyone who wants constant conflict here?
Since I am not leaving and neither are you (nor am I suggesting you should) this might provide a way to have peace without anyone feeling harassed.
The former debate got way off track when I quoted from the very article you, yourself, posted and it was taken as a statement coming from me. Even you didn't recognize it coming from the article you posted, or didn't say anything about it if you did.
Try to trust that people are smart and able to handle information, ask questions, check resources and work with their own physicans. I do.
best to you,
thanbey
I don't see the point in personal attacks, so I am not going to go there with you.
How about we not address one another directly? That is the surest way to avoid confrontation that disrupts this board. No one should interpret my silence to your points as agreement with them and the reverse should likewise be true. Is there anyone left who doesn't know your opinions or your opinions about my opinions? Is there anyone who wants constant conflict here?
Since I am not leaving and neither are you (nor am I suggesting you should) this might provide a way to have peace without anyone feeling harassed.
The former debate got way off track when I quoted from the very article you, yourself, posted and it was taken as a statement coming from me. Even you didn't recognize it coming from the article you posted, or didn't say anything about it if you did.
Try to trust that people are smart and able to handle information, ask questions, check resources and work with their own physicans. I do.
best to you,
thanbey
Please give me the exact address on the site that says that so I can look at the information in context.
This is not information to comment on.
thanbey
This is not information to comment on.
thanbey
I'm confused here which isn't unusual lol You say that 33% do progress over 30 month period. Which means to me....one third progress and two thirds...dont. And there again that would be the one in 3 that do progress right?
Man O Man.....I can sure sympathize with your feelings. To know that you have this and just sit back and hope for the best is NOT something I could ever do.
It's too late now to go back and re-hash the whys and wherefores of why you had to stop your tx. You must now look forward. It's important to be doing SOMETHING if for no other reason than to save your sanity.
Milk Thistle has been shown to be helpful for some folks but usually only for a few years. As the body gets used to it the benefits do seem to wear off a bit. Antioxidents such as Viyamins E & C and stuff like Gree Tea can be helpful. Think "healthy" now. Eat good healthy foods. NO alcohol. Watch the OTC meds and ANY other meds that any docs might want you to take.
Here is a good article I found awhile back about Nutrition and HCV. I found it informative......
http://www.geocities.com/HotSprings/5670/hcvnut.html
My only other comment concerns the "herbal" stuff you may run accross in some places that are "supposed" to be good for the liver. Many of these things not only do not work, with HCV they can really cause you harm. Unless you are POSITIVE of what you are considering using then steer clear of them.
Best of luck to you as you fight The Dragon in the way you think is best. I hope this info is of some help.
Whatever you do........KEEP MOVING FORWARD!!!!!!!!
It's too late now to go back and re-hash the whys and wherefores of why you had to stop your tx. You must now look forward. It's important to be doing SOMETHING if for no other reason than to save your sanity.
Milk Thistle has been shown to be helpful for some folks but usually only for a few years. As the body gets used to it the benefits do seem to wear off a bit. Antioxidents such as Viyamins E & C and stuff like Gree Tea can be helpful. Think "healthy" now. Eat good healthy foods. NO alcohol. Watch the OTC meds and ANY other meds that any docs might want you to take.
Here is a good article I found awhile back about Nutrition and HCV. I found it informative......
http://www.geocities.com/HotSprings/5670/hcvnut.html
My only other comment concerns the "herbal" stuff you may run accross in some places that are "supposed" to be good for the liver. Many of these things not only do not work, with HCV they can really cause you harm. Unless you are POSITIVE of what you are considering using then steer clear of them.
Best of luck to you as you fight The Dragon in the way you think is best. I hope this info is of some help.
Whatever you do........KEEP MOVING FORWARD!!!!!!!!
look up under "complete product information" and look at studies 4 and 5, as noted above.
http://www.rocheusa.com/products/pegasys/pi.pdf http://www.rocheusa.com/products/pegasys/index.html
http://www.rocheusa.com/products/pegasys/pi.pdf http://www.rocheusa.com/products/pegasys/index.html
I found the info on your site, that you hyperlinked in your first post above, as "ALTERNATIVE TREATMENTS C" i clicked on the following when i got to the site:
A conservative triple antioxidant approach to the treatment of hepatitis C. Combination of alpha lipoic acid (thioctic acid), silymarin, and selenium: three case histories.
i just started to read it and encountered the below statement. thanks for looking into it. mabey it's just old information that needs to be updated.
"There is NO reliable and effective therapy for chronic hepatitis C since interferon and antivirals work NO MORE THAN 30% of the time"...
A conservative triple antioxidant approach to the treatment of hepatitis C. Combination of alpha lipoic acid (thioctic acid), silymarin, and selenium: three case histories.
i just started to read it and encountered the below statement. thanks for looking into it. mabey it's just old information that needs to be updated.
"There is NO reliable and effective therapy for chronic hepatitis C since interferon and antivirals work NO MORE THAN 30% of the time"...
I also recommend Misha's book (The Hep C Help Book.) I am in San Francisco and have an appointment with her next week. A friend who has hep c saw Misha on a monthly or weekly basis and she swears by her. Misha co-wrote the book with Robert Gish who is a well-known liver specialist here in the Bay Area.
Side effects and wellness are different for everyone and the diagnosis of hep c is definitely not a death sentence. Eat well, forget the alcohol and fried foods and laugh a lot.
Best of luck to you and hang in there.
Side effects and wellness are different for everyone and the diagnosis of hep c is definitely not a death sentence. Eat well, forget the alcohol and fried foods and laugh a lot.
Best of luck to you and hang in there.
i am so sorry to hear about your mouth sores and surgery for them. i don't know what you could do if you couldn't live with that for 48 weeks. all i can say is that pegasys is suppose to have less sides then the stuff you were on.
perhaps someday you could try pegasys and see if the same happens. if not that would be great. i just hate to see you put yourself in a catagory of untreatable. the good news is there will be future meds with less side effects.
I pray for you,that new meds will come out soon. and one will work for you. i also pray that your liver will not progress to a bad point and you will live to a ripe old age....
perhaps someday you could try pegasys and see if the same happens. if not that would be great. i just hate to see you put yourself in a catagory of untreatable. the good news is there will be future meds with less side effects.
I pray for you,that new meds will come out soon. and one will work for you. i also pray that your liver will not progress to a bad point and you will live to a ripe old age....
I don't want to add fuel to the fire, by any means, but I really think you should give thanbey a break. I realize you disagree with her point of view, but she's been very cordial and polite in expressing herself. On the other hand, your disdain for her is coming through loud and clear. I don't see any point in this conflict between you and her. She's not looking for a fight. Are you? I hope not, because you've never struck me as the contentious sort.
Susan
Susan
You are referring to an article and comments by researchers.
I did not write the article. Every article is cited so that you (or your doctor if you wish) can locate the entire article and read it.
I hope this helps,
thanbey
I did not write the article. Every article is cited so that you (or your doctor if you wish) can locate the entire article and read it.
I hope this helps,
thanbey
I really want to thank all of you that support all of us on tx. I truly appreciate every word of support and every atricle and link supplied. I find you all incredible for continuing to send great info daily over and over for oldies and newbies. I've always found this to be a pro tx site which has provided me with info and comfort since my first day here. There are many day I have come here just to seek the positive part of all this you provide here. Thanks to each of you and thanks for hanging in there when anti tx or negative things crop up. When that happens I sometimes get discourage and think of not returning but then you are there cheering me on again. I for one truly appreciate this and want you all to know it. LL
I don't know if you have any symptoms of the disease but if so, there are some alternative treatments that can help in relieving them. If you live near a big city or hipster community, try to seek out an acupuncturist. It's not so much the accupuncture but the Chineese herbs that help alleviate some symptoms like fagigue or headaches which are my main complaints.
Whatever you do, don't give up. Yea, clearing the virus using conventional means would have been best but for me and you and millions like us, we've got to fight a guerrilla (spelling?) against this virus and just try to hold it to a draw while waiting for something better to come along. Best of luck to you. Travis
Whatever you do, don't give up. Yea, clearing the virus using conventional means would have been best but for me and you and millions like us, we've got to fight a guerrilla (spelling?) against this virus and just try to hold it to a draw while waiting for something better to come along. Best of luck to you. Travis
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