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2147300 tn?1369689688

Am I done drinking ?

I was diagnosed and successfully treated for hep c 1b 10 years ago with peg and rebitol.  I have been undetectable until this year and am about to begin triple tx tomorrow.  I believe i reaquired the virus through some inappropriate behavior several years ago but after reading other posts I am questioning my drinking as a possibility for the reoccurance. My question is should I completely abstain from alcohol (after I finish tx) I am obviously not drinking now but wonder if I am done forever.  Thanks for a great forum.  
Best Answer
Avatar universal
It's interesting, my sister had the same experience you describe. I had wrongfully assumed that because she drank moderately when she had achieved svr, that somehow the drinking caused it. It may have accelerated her cirrhosis but it did not give her hep. c again.
I understand your confusion.
BTW, i need to add that your drinking days should be over even though alcohol didn't give you the virus. Your liver really needs some tlc.
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Avatar universal
The original poster's question has been answered, this thread is now closed and no longer will be accepting any further comments.

************THIS THREAD IS CLOSED****************
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Avatar universal
  Regardless of the type of HCV, they all cause the same disease -- hepatitis C. In the United States, about 57% of people with hepatitis C have genotype 1a, which is the most common type. Genotype 1b is in about 17% of people. Genotypes 2 and 3 are the next most common.

  Genotype 1a is much more common, than genotype 1b
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Avatar universal
It is true that Dr. Sylvestre is a highly reputable and competent Dr. I have heard of her from several people and I have read a bit of what she has written.
I won't comment on this particular issue except to restate that my sister too, was reinfected after 8 years. Her Docs were not shocked, it was unusual but they didn't consider it to be off the chart weird.
You are right anomalies do occur, you use your wonderful imagination to try to put into images what may have taken place. Sometimes it is funny, sometimes off the wall and sometimes right on.
I take the stuff I consider "out there" with a grain of salt, well several grains, really but BoceGal you are an example of how people think differently. Not better or worse just differently. I like that you just keep going, keep your humor and your friendliness.
I have actually learned a lot from the more scientifically minded people here. I have learned to slow it down and carefully reread what people are saying and I know better (Usually, not always) than to try to delve into something I don't understand until I have taken the time to really consider what the point is..whether it is a reference or a post.
Sometimes I get angry with the way some folks treat you (and myself and others) but honestly aside from learning how important it is to be kind to people, I have learned from them to stop think, read and think again.
It is part of the growing and at this moment, anyway, I am feeling da love.
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Avatar universal
Like willBB stated, up above, there has been one rare case of a person being reinfected, after 8 yrs, etc
---------------------------------

That is not what willbb stated at all..
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Avatar universal
So in other words you have nothing to back up anything you posted/ Which doesn't surprise me.
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Avatar universal
Hahahhh.  Where do I get this stuff?  Like I have told you guys over and over agian, form my Most Beloved Doctor, Dr. Diana Sylvestre. She is an Internal Medicine Doctor, and an Addiction Psychiatrist.
   She gives us a weekly 45 minute Lecture/Seminar, after our weekly HCV Support Group. I have been attending these weekly Lectures for 7 months now, so that is a total of 28 Seminars, I have attended.
   I got my Stats from her Lectures, concerning reinfection. The thing is, the OP was infected with Hep 1b both times, where as, I actually think 1a is the common one, in the U.S., and I dont know where the OP is actually from, region-wise.
   Like willBB stated, up above, there has been one rare case of a person being reinfected, after 8 yrs, etc. And what the OP also stated, was that he has gotten tested YEARLY, since he reached SVR, so, a year after his High Risk Behavior, his reinfection was NOT picked up, on his VL test.
   After SEVERAL years, it was picked up...and then, when they tested him again, they then found NO vl again!!  Then they tested him again, and found VL, and the gentype 1b,  the same type he had, originally.
    So, you see..his case IS unusual.  And the problem with Medical Science, and Disease, is that these anomalies DO occur, rare, albeit, but yes, they occur!
   I'm just wondering if any of my constant "doubters" attend Hep C Seminars, by a Docotr who specializes in treating Hep C, and she has been doing so for years now. Dr. Sylvestre has written books, won awards, and in-fact, I just had an Acting part, in a Hep C Eductional Video, that she put out!  When I find the URL, I will post it on this Forum : )
Helpful - 0
2035311 tn?1332679977
If you wondering if you can have a drink after what you've been through maybe you need a meeting instead of a drink.
Insanity is doing the same thing  but expecting a different result. Maybe I'm missing something here.  If I had lung cancer would I smoke?
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Avatar universal
Rog its ok your in treatment now and you can move forward from here!  Dont punish yourself you admit it and your going to get well hey you did it before and you will do it again and stay that way!  Were all human so we try and learn from our mistakes sometimes its not always the first round.  I am almost done with "The Shack" Love It!
    Keep your head up high and keep pushing...
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Avatar universal
If you relapsed after 10 years you should be contacting the HCV scientific community so they may study you as this has never once been documented.

There was one case I believe documented that was after 8 years and this was considered "extremely rare"

If you were engaging in what would be any "high risk " behaviour  since your last treatment attempt then this would be assuredly the reason for another contraction of the virus ..regardless of Genotype..

Best to you with your treatment..
Will
Helpful - 0
2147300 tn?1369689688
Its possible that that I relapsed but unlikely. I was always told that undetectable is just that, undetectable, not necessarily not present. My doctor was surprised at the length of time before relapse and was ready to restart me on tx until I came clean with him.  I hate the disappointing head shake with the silent tsk tsk.  I f'ed up and came clean with him so we retested geno.  yes it was the same so it is chance that I just relapsed.  Sounds like the new triple does better job than previous.  

iron you are to funny
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766573 tn?1365166466
♥♥Seriously Bo♥♥ You must know by now I  love you to death (If you don't by now then; well, it is true and I do) but where are you getting some of this stuff  :)  :)
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Avatar universal
Yes, if alcohol "releases the dragon" I would also assume McDon*lds, fast fair rides, and too much tv can too. ;p
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1815939 tn?1377991799
( Bocepgal)
"It seems quite coincidental that you have the same exact genotype you had before.(10 yrs prior, and yr original genotype)"
-------------------------------------------------------------

Genotype 1
"Genotype 1 is the most common hepatitis C genotype in the United States and Europe. Approximately 80 percent of hepatitis C infections in the U.S. are genotype 1."

http://hepatitis.about.com/od/diagnosis/a/HCVGenotypes.htm

If a person is Genotype 1, then that person is either Genotype 1 (with no subtype), Genotype 1A ,or Genotype 1B. Therefore, if a person attains SVR and then subsequently gets reinfected through a new exposure that person has an 80% chance of getting reinfected with Genotype 1. Rather high odds, I would say.  Because Genotype 1 is the most prevalent Genotype in the USD, naturally a person is much more likely to contract it than some other less prevalent Genotype. This would be true whether it was the first infection or a subsequent infection. So being reinfected with Genotype 1 is not coincidenctal. It is directly related to the fact that Genotype 1 is the most common Genotype in the US.

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(Bocepgal)
"a tiny bit of your old virus was hiding (in your liver, so it wasn't detected in your blood)" .....
"and it is pretty rare for people to reinfect, after Tx, even people who actively use, according to stats,"
------------------------------------------

I highly doubt the Hep C virus was undetectable but was still hiding in the liver for 10 years. And it is NOT rare for people to reinfect if they have another exposure.

"High incidence of hepatitis C virus reinfection in a cohort of injecting drug users"
"Conclusion: Our data suggest that HCV infection in IDUs is more likely following prior infection and clearance than in HCV-naive individuals, implying no increased immunity against further infection. This result has important implications for the future development of an HCV vaccine. "

http://onlinelibrary.wiley.com/doi/10.1002/hep.22534/full

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(Bocepgal)
"So my second guess is that, yes, you may have "released the dragon", by drinking alcohol."
-------------------------------------------
Alcohol is not good for the liver, especially if the liver is compromised by Hep C, but there is no evidence that drinking Alcohol "releases the dragon" or in any way reactivates Hep C once a person has attained SVR.

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Avatar universal
I reinfected myself. Body cleared 1b on its own...years later I got 1A. I feel there really is no "playing safe" with IV use....drugs cause us to be not fully aware of our surroundings...we trust people telling us "that ones clean-" overlook using the same "works." We also will use the only needle there is in desperation.
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Avatar universal
"Like you said, you "played safely", and it is pretty rare for people to reinfect, after Tx, even people who actively use,"

What, where do you come up with this stuff? Show me where its hard to reifect after SVR. The odds are the same as before. This virus is not like having chicken pox. You can't become immune from HCV
Helpful - 0
1747881 tn?1546175878
"I am thinking maybe because you are a Genotype 1, who was cured with the old SOC, back in 'the day"..that a tiny bit of your old virus was hiding (in your liver, so it wasn't detected in your blood)"

SVR is SVR regardless of achieved with SOC or Triple TX,

Helpful - 0
Avatar universal
Bocep, SVR for 9 years but some still in hiding? Please. Show me anywhere or anything where this could even be possible... Unreal
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Avatar universal
Thanks for the Reply Rog~  I know I can be very curious, when it comes to this Hep C disease.
   It seems quite coincidental that you have the same exact genotype you had before.(10 yrs prior, and yr original genotype)
   Like you said, you "played safely", and it is pretty rare for people to reinfect, after Tx, even people who actively use, according to stats, and like you said, your slip up soiunded brief.
   I am thinking maybe because you are a Genotype 1, who was cured with the old SOC, back in 'the day"..that a tiny bit of your old virus was hiding (in your liver, so it wasn't detected in your blood)
   So my second guess is that, yes, you may have "released the dragon", by drinking alcohol. It really is like throwing lighter fluids on burning coals, to add alcohol ot our livers now.
    I quit drinking 20 yrs ago, when I found out I had Hep C, and I am now at Stage 2 (and Triple Treating)  I hope you stay away from alcohol now, as well.
   Good luck with your fatty foods, and I think your Tx will work better, with the healthier ones
Helpful - 0
2147300 tn?1369689688
re testing.  good question.  I have been tested annually since I was svr. with no detectable.  Got a little cocky and played, safely, then stopped.  it was a couple of years later (after stopping) that alt and ast spiked.  I retested and showed vl about 200,000. So back to gastro and told them what I did and they wanted to recheck my geno again.  When this test came back there was no type because the virus was once again nondetectable. thought I dodged a bullet but following year (Jan this year) detectable again.  vl 280,000 got geno 1 b vl 380,000 then something doc didn't like about alt and ast, they were a littler higher than they should have been so  we scheduled ultra sound,then mri then biopsy.  Keep in minnd I am trying to time my insurance to max out deductible and treat this in one calendar year so I am getting a little anxious about the delays.  after a few more blood tests to rule out mri issues we got set up for tx.  Same geno as before so maybe it was stresses on my liver from moderate excessive drinking.  I am stage 3 fibrosis now, (last time 2) but am told that the liver can heal itself. I used to drink alot but not so much anymore. 6 pack lasts in fridge a month and maybe a drink out at dinner, big problem is gold and fishing, those are my weaknesses and caution flags.  I do not have suseptability to falling down with the drinking, my circle of friends is different.  
I will say that after looking at the stage 3 pics, I was disgusted.  There is no urge what so ever for a drink right now.  I will have to be careful if I decide to play  that it is with fire. This mind thought is usually enough to say no thanks.  
Hope I got all questions answered, good to see new faces, on day 3 and feeling a little better today.  
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1431734 tn?1421011671
oops i almost forgot. why not try some heathy fats like avocado or nut butters. if u are lucky enuf to live longer u may want to have taken care of your body to prevent further damage. greek yogurt is great in a smoothie with avocado raspberries and oj. good luck
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1431734 tn?1421011671
if i had been thru what u have been thru with your liver i would stay away from all alcohol and minimize any substances that add stress to your liver including medication unless necessary and even many supplements. moderate drinking has different meaning to different folks. if u insist on drinking i suspect u have some addiction issues, sorry. maybe only early stage but why push your luck? i have experienced and read of too many sad stories about liver damage to see why one needs to take such a risk. there are some wonderful beverages with out alcohol. do some research at your local health food store. if u miss the booze a lot there is the answer. welcome back and best of luck, babs
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Avatar universal
Rog....I'm thinking,(fearing) that maybe after you SVR (again) and have a few glasses of wine (or what-ever your alcoholic vice was), that more "inapropriate behavior" may commence to happening....and I dont htink we are politely talking about sharing someone elses'  tooth-brush here, or even rough bloody unprotected sex?   Just sayin....
   One thing I dont understand, about your recent relapse:  Were you tested, within a year after you feel like you were exposed to blood products ( several yrs back), because the Hep C virus shows up, within two weeks to 6 weeks of exposure. It doesn't wait several years, and then pop up, from my medical understanding~
  I mean, did you have a negative Hep C test, say..two yrs ago, but this year, it was positive? Or did younever goet tested, after High Risk behavior occured?
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1856494 tn?1340542614
Crigger - haha I think it is whether or not a SVRed lucky person can drink alcohol again in limited amounts - moderation?  Not sure

Rog -  Congratulations on diving into the restorative waters, the baptism of your renewal - triple attack.  Good Job!  You are going to do better than you think once you get use to the water.  

A doctor at NIH in Bethesda - Dr. Rotman who was in clinical trials  instructed me to continue my daily glass of wine with dindin. It seemed contradictory.  I really couldn't bring myself to accept that risk.  I do however have one last bottle of my mothers Spanish wine that I plan to toast with only on my first years anniversary of SVR (hopefully).  Bona suerte
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1491755 tn?1333201362
Best of luck to you with tx.
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