please let me know,how you do,i dont go to gi dr til feb. 5th i have type1 genotype a.i wait tables but its my swollen ankles and constant leg bone pain is why i knew something was wrong,let me know how you do please.i am scared and i cannot seem to be getting any comments on how ppl. w/ my type are doin g w/ treatment or if i should just do homeopathic approah.
See If your job offers FMLA first that will give you at least 12 wks. I know that the first wk for me was very hard. I couldn't even do it. I am also genotype 1a and I am in my 7th wk. Most people on here have desk jobs but I figured I would put it out there to see if anyone bites. I wish you luck with your tx.
hi star, your finishing week 12. you will drop the incivek and things get much better barry
To Star, and Christinatas,
My job required being on my feet as well as dealing with the public. I was often uncomfortable but I did it. I actually found that a little movement was better than just standing still. Sometimes I could not move fast as I got winded. I would force air out, slowly and rhythmically and this technique helped. And, when I could, I rested.
At the end of the day, pat yourself on the back. Yes it is hard to do, but if you work with your doctor and stay on track, you'll make it.
As far as dealing with the public, less said is best. You have to conserve your energy.
Also, look into intermittent FMLA. I think this is when you take the time off as you need it ( 12 weeks total, spread out).
well i cannot afford to do FMLA i wish i could but i cant.we were off 3 days for christmas and this week 3 days for the new years thats the last of my holidays til say,memorial day...lol..what is treatment doing to yr immune system?thats what i am the most concerned with.i am never sick.last time i had the flu i was 23years old,i'm 38.
While on treatment, I felt as though I was always fighting something off. I work in a job, handling money, so I wash my hands frequently. I didn't catch any colds; I did get the flu though.
As far as FMLA goes, if you arrange intermittent program, and need to call in sick your job is protected. I also work for tips so I understand needing to work. I also worked as a waitress for many years and I know that is a demanding job.
Oh, by the way, I had people coughing or sneezing in my face all the time. Wash your hands, hydrate, get a little exercise each day and rest. This is how I made it through.
Unfortunately my employer would not let me spread out my 12 wks. But in a way it was a good thing since Nov. thur Jan. are our busiest times of the year. So I took November 21 to jan 31 off. I was only worried about the rest of the remainder 12 wks. I know that these past 7 wks I have lost a lot of energy and stamina to do the littlest things. Is there any kinda of work out I can try to do?
It is advisable to keep exercising while doing tx but sadly this is not a predictable treatment. We take it day by day or week by week. Some days I walked 3 miles around the lake. Other days I was lucky to push myself out of the house and down the street.
Working out is not going to increase your stamina as the cause of your exhaustion is a side effect of the meds. It's what they do to your blood. Plus, when our bodies are working hard to heal, they need to rest.
The good thing about working is it can make the time pass more quickly.
My advice is drink lots of coffee. When customer's annoy you, take a deep breath and think, " the meds are making me irritable" then slap on a smile and put yourself on autopilot.
And always, keep a bottle of water nearby. Keep hydrated, it's important.
Thanks for the advice, I haven't really got out of the house since it has been so cold. My dr told me even if it is cold get out there and walk I looked at her crazy cuz I don't want to catch a cold or anything. I need to find that motivation to to get up and want to even do anything. The most action I have seen is going to the dr lol sad but true. I feel like I am on auto pilot wake up, eat, sleep, wake up, eat, watch tv and get on the computer if I feel up to it. Half the time I wish I could just sleep the full 24 wks and I would be great but I know that's not gonna happen.
I was fortunate to not only live in a mild climate but last winter, there were lots of sunny days.
However, it still was hard to force myself up off the couch and into the fresh air. Once I got walking,it always lifted my spirits. But more importantly, our entire bodies need to move.
Many of the people who complain post tx about problems spent up to 48 weeks lying around. Think about it, even if you were healthy, it would not be good to just lie around for 24 weeks or more.
There is your motivation~ you want to feel better asap~ right ?
So bundle up and get your booty out there !
We don't catch colds from being cold. We catch colds from being around people with colds.
You just have to force yourself. Once it's a habit, it becomes easier.
If it really is too frigid, find another way. Turn on some music and make yourself dance for 10 minutes. Then do it for 20 minutes, you get the idea.
Try an exercise video but really it is important to move, and it will help in the long run.
My experience was that working throughout 48 weeks of tx was a really great way of dealing with the emotional sx of the meds. I felt I had accomplished something. That said, I'm a university teacher, so it is not physically demanding, though I did teach a group of Japanese students here for five weeks intensive that involved long hours in classrooms plus walking tours of the city, a day at a farm, etc, and even though I felt exhausted, somehow I was able to switch on the professional energy. It was great!
Dear OH is correct that trying to keep physically active makes things better. Apart from working! I turned into total slug, and now I'm post EOT, I'm struggling to feel well and to get my flexibility and strength back. Poo.
i really dont know what to do,i dont hav my 1st appt.til feb.5th..i am gonna ask specifically what my #/s are at appt.nobody has told me anything besides the type and genotype and "ITS PROGRESSING" .thats a scary phrase for me and i just dont know if i will do any treatment if i can by for another year or so,but that said,it all depends whether i HAVE to do this right now.or if i could wait on drugs that arent as invasive.idont know anything and wont til my 1st appt w/ gi dr.
but i work 6 days a week and there's very limited help.there's no resting at all right PLUS this chronic leg pain i have right now kills me.
Like you I'very had similar sx from treatment, coming up on 24 wks mid-jan. I agree with everyone, physical activity, water are key to minimizing/managing energy. I try to do yoga 3 times a week, energy level goes up for the rest of the day! Think yoga and physical activity also helps with my moods and insomnia.
Others have given you some good tips. I already was swimming regularly, so I had the discipline to show up. I didn't push my body. I swam for 20 minutes, and sometimes only 10. The cough I developed didn't help. This routine did save me, psychologically.
The big problem is motivation when one is not feeling well. Having to get up and go to work, though not fun, actually helped. Perhaps, while still off work force yourself into a 10 minute routine, be it walking, or twist and shouting, anything. Think of it as your job for the day. I think ones mindset is valuable on this therapy.
Cheers to a successful treatment,
@chritianatas, I would suggest that you ask your doctor to always send you the results of your labwork. This way you can get feedback on the results. Sorry you are having so many problems with your legs, especially having the job you do.
as a person who has lived in and out of cold climates and as news and medical reports have stated, walking in the cold itself will not give you a cold. Your more likely to catch a cold from a customer or person who has a cold. My internist tells me to avoid little children if at all possible doing cold and flu season because even when they are healthy they carry germs. How many people do see just cough or sneeze in the air. There are studies to show how far that cough or sneeze carries.
I am ESLD w/very high HCV load, HE and fatigue is a my constant companion. I have to fight it every second I am awake. I fortunately have a small dog who loves to walk and we try to walk a mile or two a day, in intervals, depending on snow and footing conditions. I also have knee problems and have no mediscus (sp?) in either knee or just slight wafers of them so I have to be careful not to over extend. 18yrs tap, ballet gymnist...bartendeding 15+ yrs in 4 in high heels and being a perpetual dancer have really damaged my knees and feet but like today I was just in the kitchen scrambling egg whites and my little dog was watching me dancing around.
Yes, it is very hard to get going. You just have to,what is your alternative? Orphanedhawk was right, sick or not sick, sitting or laying around isn't good for you. Your body and muscles need the excercise.
Work was also a good focus for me too. Hard to get going and get there, sometimes I didn't think I could make it from the car to the building, but once there I was so busy I forgot to be tired. Have always had jobs where I am on my feet which have only added to my knee issues, so I know your feelings. It is hard to pull yourself together.
They said on tx you could work. Some people have to go FMLA and work parttime... The biggest thing you have to do is to find the determination and fortitude inside yourself to get yourself healthy. No one else can do it for you. There is no magic pill at this time. There are treatments that have hoops to go through and levels to mount.
A lot of people use up their FMLA right at first. I learned not to when I was on Combo therapy. Plus I had two full time jobs and just talked to my bosses about going parttime for a few months. Luckily for me when I got this one of my jobs was for a major insurance carrier who applauded my work and courage. A lot of places are not that way. My other job where I supervised 200 people I talked to them and just asked for a 3 month leave of absence due to a family crisis and they gave it to me. The insurance company luckily for me was a processing claims center and open from 6 a.m. to 7 p,m. and they had a flex work schedule so I could run home and take a nap or two a day.
It is harder in a restaurant/bar situation, this might also be a time to look at future job choices to wear you aren't under so much stress and you have leg problems. My favorite jobs were working in a restaurant/bar but I soon realized I was going to have to change, for me, what I did, because I could not function at the 100% level I required of myself. Good Luck...my doctor says you can't do this yourself...you might be surprised by the help you get from those around you.