Aa
Are you in my boat?
This site is about sharing info on treatment so I thought I would share mine and get any feed back from all my Hep C brothers and sisters that want to .I am a healthy (except for hepc )59 year old male ,BMI 24.9, 4 to 5 hours at gym weekly (until TX now 2-3hrs)Just got 12 week VL back it was <43 DET it was the same on week 8 also . Am on tripleTX with Vict. Have had HepC since 1969. DX in 1993 treatment naïve until now. Am a 1B gen. Biopsy 2005 F1,enzines pre tx AST 44,ALT 48(highest ever ) baseline VL pretx 625000. Week 4 VL 156000(shot two I buggered a little!)VL week six 256 and week 8 and 12 VL <43 Det. Current Alt 29 and Ast 33. Am losing that warm fuzzy feeling about TX since my VL numbers on all weeks don’t fall into the happy numbers from Merck. Am headed for 48week tx as long as my week 24 is und!! Which will end tx if not. The SVR numbers for the 28 week tx people are just starting to come in but is way to early for 48 week tripTX SVR to come in. Just wondering how many people are in my boat?Thanks for any input , Ray
Just got my 24(actually 26 week) week post treatment results back and It looks like my ship came in...still undetectable !!!!!!!!!!!! Finished my 48 week triple treatment (in april)with Vic 44weeks, InterFeron and riba 48 weeks. Riba was cut back at week 44 to 800 mg a day due to low hemo <10 .Most side effects gone, still have itching and cheeks that turn redish (like blushing )with some blemishes also. Eyes went from 20/40 pretreat to 20/80 post but seem to be getting better.Feel much better energy wise than had in a long long time. Was never a big poster but got a lot of information from a lot of good people that contribute a lot to this site .I am a very lucky person to have found you all. Thank again, Ray
Thanks for update,glad to hear everything going well. We all aren't the text book examples of treatment and this treatment isn't rocket science either. I'm sure there is plenty of chances for SVR for people that aren't textbook examples of treatment. I just did #25 last night and got my 24 week und last week. Had to point out to my NP about doing vict til week 48 because of low lead in response but she is good with it now. So time to put my head down and head for the finish line.
I went VL negative between weeks 14 & 17 was on Victrelis for 44 weeks and finished Sept 15. Waiting for 4 mth labs. Also had not so great drop during leadin. Will let you know about my VL at 4 weeks post. Nurse said the other guy with my situation (slow responder - 44 weeks Victrelis) is negative at 4 weeks post and they are having good results generally with Victrelis longer treatment. Keep in touch
My first treatment was 2005/2006.
My second treatment was 2010/2011.
Why do you ask?
My second treatment was 2010/2011.
Why do you ask?
Rockymoe, 8times waiting for 9 you are definitely focused and have your head in the game . I hope I can keep up that level till this is over.What did you get pulled off treatment for with the Vic ?
Idyllic,
Kaiser uses Quest Diag. and I believe their Qualitative is down to 5 or 7 units which is pretty sensitive isn't it?
Idyllic,
Kaiser uses Quest Diag. and I believe their Qualitative is down to 5 or 7 units which is pretty sensitive isn't it?
Hey glad you are UND at week 19. I had labs between 12 and 24 as well. I don't see how anyone could have the patience to wait that long.
** Frijole makes a good point about asking for more of a sensitive test. 100 cutoff is OK but there are lower limits of sensitivity.
** Frijole makes a good point about asking for more of a sensitive test. 100 cutoff is OK but there are lower limits of sensitivity.
Good Luck I did Triple tx with VIC, Dean is right it's not fun. This was my 8th treatment and the virus is back. They had to pull me at 40 weekss. Oh well I am waiting for round 9
Update , week 19 Dr. popped for a viral load test just to see how I'm doing since Victrellis protocol didn't call fore one after week 12 till week 24. So some where between early week 12 and week 19 I am now UND and still in the game!
Yea, the Incevik was the most popular at first. I am seeing more Victrelis now though. I was at the doctor's on Friday and the PA said that they were using the INC for treatment naive but Vic for a lot of the nonresponders and relapsers. You are right, you should have those labs the last day of your week. I am not sure it will make that much difference though.
I am glad you made the under 100 limit but I would ask for a more sensitive test for the 24. Quantasure (LabCorp) or Heptimax (Quest)
After I get back a little energy I may try to do a spreadsheet on the 2012 starters. There are a lot of them.
bean
I am glad you made the under 100 limit but I would ask for a more sensitive test for the 24. Quantasure (LabCorp) or Heptimax (Quest)
After I get back a little energy I may try to do a spreadsheet on the 2012 starters. There are a lot of them.
bean
Thanks for your work on spread sheet , it is an excellent reference for every one on Vic or Inc , I'm guessing Inc must be being used 4 or 5 to one Vic. Also was thinking my Dr is not very strict on lab dates . My week 4 was taken the morning after 4th shot . Week 8 was taken on last day of 8th week which is correct in my book and week 12 was taken 2 mornings after shot 12 ! Maybe not a big deal unless I hit the 12 week < 100 cut off , but I'm good to go to week 24 VL now. I don't think Kaiser Perm. will take any till then . Thank all , Ray
Back in 93 that was the way it was, woody. I too got a letter from the local bloodbank that my blood was no good -- that I had non A non B hepatitis. I too just ignored it. -- Well, not exactly. I went to the library - the only place to research at the time - and read what I could about liver health and hepatitis C. I decided I had skated by with little damage and of course no symptoms, and so I ignored it. I was in my late 50s when I decided to do something. I have just completed my second treatment - this one with Victrelis. My liver, by the way had gone from grade 1 stage 1-1/2 in 2007 to grade 3-4, stage 3&4 in 2011. I too did 48 and can tell you it is no fun, but we do what we must. Welcome to the forum.
frijole (bean)
frijole (bean)
If I wasn't treating now the biopsy would be a big thing to know but since I am in treatment and already on the long road home it may not be so urgent now. I have had 2 CT scans and 2 ultrasounds in less than a year and my rising ALT was the only reason Dr recommended treament.
Gerad you are right we are lucky to have made it to these times when more new treatments are on the horizon. When I got DX in1993 by the Red Cross i got a letter from them stating I had HCV and did not have anything else to offer information wise on it or where this would even go. I gave my Dr the letter back then and all he could do was give me the deer in the headlight look!! He did not have a clue like many more after him. So we have come along way and very lucky to still be here. Thanks, Ray
Gerad you are right we are lucky to have made it to these times when more new treatments are on the horizon. When I got DX in1993 by the Red Cross i got a letter from them stating I had HCV and did not have anything else to offer information wise on it or where this would even go. I gave my Dr the letter back then and all he could do was give me the deer in the headlight look!! He did not have a clue like many more after him. So we have come along way and very lucky to still be here. Thanks, Ray
Same church different pew!!! Look back to yesterday where I posted 8 week vl. I am a post livervtransplant patient (5-2010). After 1 year I had stage 1/2 fibrosis. The second year 5-2012 I had progressed to stage 3/4 cirrhosis. So Hector is right, your biospy needs to updated. I was at a 2.5 log drop at week 8. ( from 1,600,000 to 4950 ).. So my concerns are likes yours, and I assume all on treatment, will we clear, and, become SVR. I feel like this is a war against Hep C and we ( the ones are treatment) are the soldiers fighting the battles. We know some of us are not going to make it home:( With that said we all must fight the the fight and only hope for the best. We all are very luckily to live in these times with drugs and talented Drs. that have the albity to help us clear this virus. Good luck stay in the present and see at the finish line!!!!! Thanks to all who post.
FYI just a note:
"Biopsy 2005 F1" Your biopsy is obsolete and is no indication of the amount of liver fibrosis you currently have. You should have a biopsy every 3-4 years for accurate staging of your liver disease. Fibrosis progresses more quickly after the age of 50.
Hopefully you will SVR and your liver disease will reverse over time.
Good luck!
Hector
"Biopsy 2005 F1" Your biopsy is obsolete and is no indication of the amount of liver fibrosis you currently have. You should have a biopsy every 3-4 years for accurate staging of your liver disease. Fibrosis progresses more quickly after the age of 50.
Hopefully you will SVR and your liver disease will reverse over time.
Good luck!
Hector
Welcome to the forum, Ray.
I took Incivek so I have no personal experience with Victrelis. However, I am doing 48 weeks because I was <43 DET after 4 weeks of Inc, which for people on Inc means they have to do 48 weeks. I became UND after (at) 8 weeks and have been UND ever since. I am currently at the end of week 44.
I am going to give you a link to Frijole's profile page. When you get there, click on the white sheets in the photo section. All 5 of those sheets contain stats for people on the forum. Right after the name of the person on the spreadsheet, you will see which drugs that person is on. As you go across the page you can see their viral loads at weeks 4, 8, 12, 16, 24, etc. (not eveyone gets VLs every 4 weeks). This will give you some idea of when people reached UND status. I looked at the pages just now and I can see that there are a few in your boat (with Vic).
http://www.medhelp.org/personal_pages/user/223152
On person who is completely done with treatment was in a trial with Vic. This person is Spectra (on page 5). He was UND at 10 weeks, DET. at 12 weeks, and UND from week 14 until the end. He did reach SVR and is cured.
Hopefully some of the Vic people will respond. Also, Frijole does not have everyone on her sheets, only the people who gave her their stats.
Hang in there. Hopefully you wil be UND at the next VL draw.
I just reread your post. At week 4 you had taken only 2 injections? Or did you mean you took all 4 injections (1 a week) but something happened at week two?
I took Incivek so I have no personal experience with Victrelis. However, I am doing 48 weeks because I was <43 DET after 4 weeks of Inc, which for people on Inc means they have to do 48 weeks. I became UND after (at) 8 weeks and have been UND ever since. I am currently at the end of week 44.
I am going to give you a link to Frijole's profile page. When you get there, click on the white sheets in the photo section. All 5 of those sheets contain stats for people on the forum. Right after the name of the person on the spreadsheet, you will see which drugs that person is on. As you go across the page you can see their viral loads at weeks 4, 8, 12, 16, 24, etc. (not eveyone gets VLs every 4 weeks). This will give you some idea of when people reached UND status. I looked at the pages just now and I can see that there are a few in your boat (with Vic).
http://www.medhelp.org/personal_pages/user/223152
On person who is completely done with treatment was in a trial with Vic. This person is Spectra (on page 5). He was UND at 10 weeks, DET. at 12 weeks, and UND from week 14 until the end. He did reach SVR and is cured.
Hopefully some of the Vic people will respond. Also, Frijole does not have everyone on her sheets, only the people who gave her their stats.
Hang in there. Hopefully you wil be UND at the next VL draw.
I just reread your post. At week 4 you had taken only 2 injections? Or did you mean you took all 4 injections (1 a week) but something happened at week two?
I have read postings from people who are in similar situations. Look through the threads for the past 2-3 weeks and you should find one or two.
It is slow today so you may not get many replies.
If you don't get a reply by Monday, add a brief comment at the end of your thread to bump it up so that it doesn't get lost.
Good luck to you.
It is slow today so you may not get many replies.
If you don't get a reply by Monday, add a brief comment at the end of your thread to bump it up so that it doesn't get lost.
Good luck to you.
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