Aa
A
A
A
Close
Hepatitis C Community
13.3k Members
Avatar universal

Big problem

I need some help here..quick outline husband is 45 years old, diagnosed '03 ,  Grade 3/stage 4. He did a 16 week course of peg/riba, followed by a year of daily infergen, a year and a half of maintanence and a 24/28 weeks of the Alinia trial. Never cleared. was also diagnosed with cryo.
He has a lot of pain, was treated by a pain management doctor (and although the pain medication was a low dose he did not take them as prescribed) and a year or two after seeing him he did a random drug test and found illegal drugs, and told him he would not see him anymore. Has seen two pain doctors since and again was told they would not treat him. He is buying drugs (pain meds) from friends, and occassionally partakes in more illicit drugs......denies he is abusing or has a problem, NA worked for about a month, at the thought of losing me..
IHe has seen rheumotoligists, is presently under the care of a pyschiatrist (antidepressants and anti-anxiety meds)   He is angry and bitter...takes a lot out on me, really snappy and mean at times....threatening now he will move out of the country or become a heroin addict.....he does not think changing his diet, cleaning up his act, stopped smoking or  begin exercising that this will help his situation, or lessen his pain. I am really at my wits end and can not take the daily badgering, and harrasement  because he feels I do not understand and that everyone is out to get him and keep him from his meds.He is in chronic pain and afraid of being in pain, or more pain than he is in. He asked me to write  because he does not believe that anything but drugs will help him. Help!!!!
11 Responses
148588 tn?1465782409
1) Do you attend Narc-Anon or Al-Anon meetings?

2) What exactly are his pain issues?

3) How does his psychiatrist feel about methadone maintenance?
Avatar universal
I did go once to an Al-Anon meeting, went to an NA meeting with him. Not really consistently, his pain is constant in his hips and legs, some hand pain. I am not sure what his psychiatrist feels about anything....I did go to one appt with him, when he had to come clean to him when his first pain doc stopped treating him..  
148588 tn?1465782409
I would suggest attending some more Al-Anon or Narc-Anon meetings and maybe joining one of MedHelp's addiction forums. I don't see the medical issues getting resolved unless the substance abuse and codependence are dealt with first. Take care of yourself and the rest of it may fall into place. At stage 4 he's going to need at least 6 months clean and sober before he's considered for transplant.
87972 tn?1322664839
I remember you and Giddy from a long time ago in here. Is his pain HCV related?
Avatar universal
Yes, we are old timers here and yes the pain is HCV related, probably from the cryo.
223152 tn?1346981971
You have been on this forum a long time.  I knew that Giddy never cleared the hep C and has tried repeatedly but don't remember  issues of current drug use.  Pain management is so hard.  I sympathize with his story and  can even understand his going  illegal to get pain meds.  BUT it seems like it is time to get your life in order.  You know the old question, "What's the definition of stupid?" answer - "Doing the same thing over and over and expecting different results."  If giddy can't see that, I don't know what you can do.  You must heal yourself.  I have a friend who loves her husband dearly but he is a hopeless alcoholic.  He has rehabed over and over, wrecked the car and still drives.  She is afraid he will drive and kill someone and they will lose their house and what is left of his retirement.  Thus she is divorcing the man she lose to preserve herself. Are you in the same place?
frijole
223152 tn?1346981971
oops - divorcing the man she loves not lose

87972 tn?1322664839
Whoa-

The reason I ask is that I believe the Boceprevir (protease inhibitor) trials are now recruiting for non-responders, and they are accepting ‘compensated’ cirrhotic patients, if I’m reading the inclusion criteria correctly.

Often, treating the underlying HCV will eliminate cryo; and hopefully his pain (and need for pain management).

Is this something he’d be open to? The caveat being that the trial will drug test; he’d have to manage without street drugs, and discuss the use of prescription narcotic analgesics with the trial coordinator.

Something like this might give him enough hope to pull things together; either way, I wish you both luck.

Take care—

Bill
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Beans;

How are you doing :o)
Avatar universal
technically Giddy is still on the Alinia trial, for six more months,  post med time. Also they like him to be off of any hep c related drugs for at least six months before starting another trial.
I appreciate everyone's responses. Giddy feels that I made him out to be a raging addict. He is really suffering  ( I think emotionally and physically). Although he admits to messing up with his pain mgmt, he still does not feel that altering his lifestyle-- poor eating and smoking, lack of exercise etc, will effect his well being. He is a bright guy and really knows all this, so I am often perplexed by his lack of willingness to help himself any other way than with meds.
Avatar universal
Yes bill boceprevir is accepting compensated’ cirrhotic patients i am in it. As for drug testing, NO. Unless you tell them or they suspect it.

Whoa, sorry to hear this. You have both had it tough for a long time. Wishing you both the best

cando
648439 tn?1225062462
He is going to hate this!

I lived with a drug addict/ alcoholic/ patient with psychiatric disorder for five years, had a son, 21 next week.  Best thing I ever did was to leave him when my son was 2 and a half, as much as I loved him.  My life has been good since then, my husband's not.  Mine would have been like his had I stayed with him.  There was no way I could help him and help myself and save my son as well.  It was not easy but it was the best thing.

If you cannot leave him, get some support to help you deal with the addiction issues and any psychiatric issues there might be.  (I am not suggesting there are but they often go hand in hand). In retrospect, some understanding around all this for myself and my part in it could have helped perhaps.

Help yourself - he needs to do the same.  You cannot help him - he needs to find some motivation to do the right thing.  Staying alive could do it, being painfree, drugfree and happy?  That could do it for me.  I know that it is easy to turn to illegal drugs for help when things are bad, but blaming the pain for that desire is a little mixed up.
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
DC
683231 tn?1467326617
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.