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Bill Gates - help HCV why does HIV get all the money?
I don't understand. HIV gets all the money and publicity. HCV is ignored.
Doesn't help much when the marches (like the one in DC) get so little turn out either... seems most in the past have been more interrested in talking the talk.. & barking the bark.... but they don't wanna walk the walk... I hear this past years turnout was even worse than the years before....
Can't tell ya how many times I have seen the drummers beat the drum... to only try to get others to do what they should be doing themselves.. Talk is Cheap! Electronic Petitions Carry NO Weight.... Mass e-mails are a waste of time....
What's the real solution???
Moral To The Story.. Typically those whom bark the loudest get the least done... being an advocate requires passion... not woofers!!!
Can't tell ya how many times I have seen the drummers beat the drum... to only try to get others to do what they should be doing themselves.. Talk is Cheap! Electronic Petitions Carry NO Weight.... Mass e-mails are a waste of time....
What's the real solution???
Moral To The Story.. Typically those whom bark the loudest get the least done... being an advocate requires passion... not woofers!!!
I signed up on the Gates online petition last week. No big deal, I thought - just adding my name to the list.
But yesterday my husband said he was googling HIS name which is Bill and our last name and on about the third page of hits found MY name on the Gates petition. (the last name and Bill Gate's first name did it. I found that a bit distressing - made me feel a little vulnerable with my real name and town listed. I might try to remove it.
But yesterday my husband said he was googling HIS name which is Bill and our last name and on about the third page of hits found MY name on the Gates petition. (the last name and Bill Gate's first name did it. I found that a bit distressing - made me feel a little vulnerable with my real name and town listed. I might try to remove it.
The Gates Foundation is focusing on the WORLDS WORST health problems which are AIDS, Malaria and Starvation because they kill the most people every year worldwide and they ALL can be eliminated. When he gets done with those his foundation will move on down the line to the next problem. He is working on ending the worst offenders first.
From what I have read about the gates foundation they are only going to focus on a few select issues and that's it. I think it is AIDS, hunger and malaria are the ones I am aware of.
One thing I have found in trying to encourage people to test is just asking to be tested has lots of stigma around it so people don't want to ask for the test. There were 3 times the estimated number of people diagnosed with Hep C last year alone. The stigma and the huge burden it puts on the system work in tandem to keep it a "silent killer"
I agree with the others who said the death toll isnt even being tracked and cause of death is muh more often Hep C than what gets recorded. I remember way back when the same thing happened with AIDS in the beginning. People didnt want it on the death cert. it was such a stigma. That is at work here also I believe.
Lets hope they cocme up with a "cure" that works for all before it explodes. The people with it who have no symptoms and dont have it yet are a ticking time bomb that will blow up our all ready overtaxed medical system.
45 million uninsured Americans and counting...how sad is that?
I agree with the others who said the death toll isnt even being tracked and cause of death is muh more often Hep C than what gets recorded. I remember way back when the same thing happened with AIDS in the beginning. People didnt want it on the death cert. it was such a stigma. That is at work here also I believe.
Lets hope they cocme up with a "cure" that works for all before it explodes. The people with it who have no symptoms and dont have it yet are a ticking time bomb that will blow up our all ready overtaxed medical system.
45 million uninsured Americans and counting...how sad is that?
estimated 8,000 to 10,000 deaths annually from Chronic HepC in USA (NIDDK)
AIDS:
14,175 deaths in USA 2001 (American Heart Association, 2004)
not a whole lot of difference, but HCV is a silent killer, and many deaths are not reported as HCV related.
we need a poster /spokeperson that happens to be a credible celebrity. I thought willie nelson was doing some commercials, what happened to them?
AIDS:
14,175 deaths in USA 2001 (American Heart Association, 2004)
not a whole lot of difference, but HCV is a silent killer, and many deaths are not reported as HCV related.
we need a poster /spokeperson that happens to be a credible celebrity. I thought willie nelson was doing some commercials, what happened to them?
What is truely disturbing, is that most of reported deaths related to HIV in the USA, are HCV coinfected individuals..
Known Fact..
And as Cuteus said above, most HCV related deaths do not list HCV as reason for death..
Known Fact..
And as Cuteus said above, most HCV related deaths do not list HCV as reason for death..
first off pam anderson has hep c and she does not even focus on her disese, her charity work is for HIV! i think there are many politicians that are gay or want the support of the gays for their votes, so this is why they fight to get the HIV $$$ for research. it will take a few of the politicians or their family members to get hep c then it will change things. sorry to say that when it hits closer to home these politicians step up to the plate. do not get me wrong i do not wish this dragon on anyone but this is what i believe it will take.
But the worldwide toll of AIDS is enormous. In the states we have it down to less than 15,000 a year but worldwide the toll was 40.5 MILION last year. That is why Bill Gates is focused on AIDS.
Not that all supporters/fund raisers for AIDS are gay (they most cerainly are not ALL gay but many are gay NOT THAT IT MATTERS) but one interesting factoid is that the gay population make the highest per capita income in the US.
What you say is true, and I believe the toll is greatest in the African nations. However, if I'm not mistaken, Hep is more prevalent in the SE Asian countries.
The possible light in all this is that perhaps now that Gates is steeping down completely from Microsoft to join his wife in focusing their efforts on the foundation, he may become enlightened to the epidemic levels of Hep and raise public awareness and funding.
The possible light in all this is that perhaps now that Gates is steeping down completely from Microsoft to join his wife in focusing their efforts on the foundation, he may become enlightened to the epidemic levels of Hep and raise public awareness and funding.
Thanks for your input. It seems we are definitely being discriminated against. It's hard to even get disability when we really need it.
It would help if the celebrities who had it would get involved. Once people get cured they forget all about the rest of us.
Well they told a fireman in So. Calif. at his last infectious disease class recently that hepatitis C is going to be a disease of the past soon - UNTIL THEN, we struggle on.
It would help if the celebrities who had it would get involved. Once people get cured they forget all about the rest of us.
Well they told a fireman in So. Calif. at his last infectious disease class recently that hepatitis C is going to be a disease of the past soon - UNTIL THEN, we struggle on.
Most people don't realize that there are over 3 million people affected with the disease. And they think just like they did with HIV that ONLY dirtbag drug addict losers get it and so why bother to save them.
The prejudices are all still there. Just try telling someone you don't know out of the blue you have it and watch them cringe away.
People are EDUCATED to know about HIV these days but HCV...still in hiding.
Considering most people don't even know they have it .... it ain't going anywhere and will just keep growing in numbers. Exponentially.
My opinion.
************************************************
(Can you imagine what would happen to the insurance system if they made EVERYONE test for it like routinely? It would collapse. The weight of 2.5 million + immediate new cases would crush the insurance care systems and they would be gone. So I don't think they WANT it known.)
The prejudices are all still there. Just try telling someone you don't know out of the blue you have it and watch them cringe away.
People are EDUCATED to know about HIV these days but HCV...still in hiding.
Considering most people don't even know they have it .... it ain't going anywhere and will just keep growing in numbers. Exponentially.
My opinion.
************************************************
(Can you imagine what would happen to the insurance system if they made EVERYONE test for it like routinely? It would collapse. The weight of 2.5 million + immediate new cases would crush the insurance care systems and they would be gone. So I don't think they WANT it known.)
Not sure I know the anwser could venture a guess though. HIV is a more Devastating disease, I would guess that it has affected more people particularly in poor countires, which I think is the Gates foundations focus. You can have hep c for years, like myself, were nothing happens so it is easier to not focus on it. Not an expert on the subject just a guess here.
Because of how vocal the HIV community is and the lobbying they do.
A good question here is "How many Heppers openly acknowledge their disease to others?".
I've encountered many who do not want to make such an acknowledgement because of the IVDU stigma most of the public has associated with it. Much like the Homosexual stigma which originally accompanied HIV/AIDS.
Thus IMHO it would seem that steps are:
1) Educate and change their perception of the disease.
2) Perform studies WHICH include incarcerated and homeless people to accurately access the extent of the disease in the population. (too many of the studies openly profess to not include these segments of the population and information I've seen tends to indicate that HCV within prison populations is far greater than anyone is admitting.)
3) Become more vocal in lobbying for funding to find newer better tx's for the disease.
These may mean that like the HIV/AIDS community, we may need to take our HepFest's to the streets in order to increase public awareness and receive even a fraction of the type of billions of dollars funding now being spent on HIV/AIDS.
A good question here is "How many Heppers openly acknowledge their disease to others?".
I've encountered many who do not want to make such an acknowledgement because of the IVDU stigma most of the public has associated with it. Much like the Homosexual stigma which originally accompanied HIV/AIDS.
Thus IMHO it would seem that steps are:
1) Educate and change their perception of the disease.
2) Perform studies WHICH include incarcerated and homeless people to accurately access the extent of the disease in the population. (too many of the studies openly profess to not include these segments of the population and information I've seen tends to indicate that HCV within prison populations is far greater than anyone is admitting.)
3) Become more vocal in lobbying for funding to find newer better tx's for the disease.
These may mean that like the HIV/AIDS community, we may need to take our HepFest's to the streets in order to increase public awareness and receive even a fraction of the type of billions of dollars funding now being spent on HIV/AIDS.
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