Aa
Could this be it? Over for good?/ and use for other important issues
Wow! I can't believe there is a thread open!
I pestered my GI yesterday to call me back before the weekend break, and they failed me! How rude!
But thanks to INA, I had plan B lined up, cc from Quest to moi, and it was in the mail today! TG!!
I like to see the qualitative results better than the quant. something about that word, NEGATIVE, brings tears to my eyes, more emotional than the last PCR! Kept staring at the word over and over!
To refresh stats, mild damage at stage 1 grade 2, low vl(supposedly a good thing) at 376,000, 1a, female(yes chellski), 51 at start of tx, vl stil detected at wk 12 with 5976, extended to 72 wks and finished in Nov'04. Neg PCR at wk 5 post 12 and wk 12, 24 and NOW!
It can be done! It is not fun, but the goal is worth it! I feel fine, no lasting effects from tx, maybe some from hcv, but manageable. TSH was 2 and tumor marker within range.
Hang in there treaters, you won't remember what hit you after tx is over!
Could this be over, finally? I won this battle?
I pestered my GI yesterday to call me back before the weekend break, and they failed me! How rude!
But thanks to INA, I had plan B lined up, cc from Quest to moi, and it was in the mail today! TG!!
I like to see the qualitative results better than the quant. something about that word, NEGATIVE, brings tears to my eyes, more emotional than the last PCR! Kept staring at the word over and over!
To refresh stats, mild damage at stage 1 grade 2, low vl(supposedly a good thing) at 376,000, 1a, female(yes chellski), 51 at start of tx, vl stil detected at wk 12 with 5976, extended to 72 wks and finished in Nov'04. Neg PCR at wk 5 post 12 and wk 12, 24 and NOW!
It can be done! It is not fun, but the goal is worth it! I feel fine, no lasting effects from tx, maybe some from hcv, but manageable. TSH was 2 and tumor marker within range.
Hang in there treaters, you won't remember what hit you after tx is over!
Could this be over, finally? I won this battle?
I don't blame you for being upset at those doctors and nurses. It just goes to show you how ignorant and insensitive they can be sometimes. If they had any idea what you went through to be cured, they certainly wouldn't dismiss your achievement so lightly. Unfortunately, you'll likely encounter this situation again and again. The important thing is that YOU know the truth. You're cured of this disease. Period.
Don't let the idiots rain on your parade. You suffered for 72 weeks to get to this point. Don't let them stomp on your joy.
Susan
Don't let the idiots rain on your parade. You suffered for 72 weeks to get to this point. Don't let them stomp on your joy.
Susan
Oh yeah, the Cryo. It seems to be gone, along with the virus. My cryo level has been either a trace or outright negative since the Rituxan tx 2yrs ago. Thanks for asking, Dave
Michelle: Please do call- I was just asking BB about you. 23 wks, time flies, though I realize it doesn't always feel like it when on tx. Congrats on hanging in there. Sorry to hear your oldest has been putting you through the ringer.
My sister, who many on this board prayed for, has opted for an amputation of her leg. She should have much better functional ability with a prosthetic, than if she went through 2 yrs and the many surgeries she would need to continue to save her leg. She is coping well with the loss of her husband in the motorcycle accident, though I can't imagine how tough it is for her. The support of friends and family means so much.
For everyone: I never personally realized how much difference support makes until I went through HCV treatment myself for 2yrs. I knew as a trained counselor that it was important, but going through treatment taught me things I never learned at school about support. This forum in particular (and particular people like Cuteus) helped me more than I can express in words. I'm deeply grateful. Dave
My sister, who many on this board prayed for, has opted for an amputation of her leg. She should have much better functional ability with a prosthetic, than if she went through 2 yrs and the many surgeries she would need to continue to save her leg. She is coping well with the loss of her husband in the motorcycle accident, though I can't imagine how tough it is for her. The support of friends and family means so much.
For everyone: I never personally realized how much difference support makes until I went through HCV treatment myself for 2yrs. I knew as a trained counselor that it was important, but going through treatment taught me things I never learned at school about support. This forum in particular (and particular people like Cuteus) helped me more than I can express in words. I'm deeply grateful. Dave
i've been meaning to call you (lame excuse) lots of drama with my laura (18yo) i know you've been spending alot of time with your sister and thats where you need to be. i've been getting questions answered and support here, but i miss talking to you.
i keep your sister and her husbands family in my prayers daily.
i will definitely call you!!!! glad you posted!
michelle
btw: guess what, i'm week 23!!!!!! can you believe it???
i keep your sister and her husbands family in my prayers daily.
i will definitely call you!!!! glad you posted!
michelle
btw: guess what, i'm week 23!!!!!! can you believe it???
Cutie, don't worry too much about those ignorant folks...your true friends know the truth...IF YOU ARE NEGATIVE, YOU ARE NEGATIVE...
AND THAT'S ALL THAT IS IMPORTANT NOW...
N E G A T I V E !!!
NEGATIVE,NEGATIVE,NEGATIVE.."YOU ARE" NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...........4-EVER!!!!
...WHO IS?...YOU ARE!!!...
i'm sure it will take a few more pcrs to be able to fully relax completely after the trauma of having hcv...but,the fact is that you are negative!!!
and since when do we pay any attention to what any of those meds say anyway??? heehee...
***HERE'S TO AN ENDLESS SUPPLY OF NEGATIVES FOR YOU!!!***
AND THAT'S ALL THAT IS IMPORTANT NOW...
N E G A T I V E !!!
NEGATIVE,NEGATIVE,NEGATIVE.."YOU ARE" NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...YOU ARE NEGATIVE,NEGATIVE,NEGATIVE...........4-EVER!!!!
...WHO IS?...YOU ARE!!!...
i'm sure it will take a few more pcrs to be able to fully relax completely after the trauma of having hcv...but,the fact is that you are negative!!!
and since when do we pay any attention to what any of those meds say anyway??? heehee...
***HERE'S TO AN ENDLESS SUPPLY OF NEGATIVES FOR YOU!!!***
Congratulations! We who have treated, know what you've gone through, win or lose, and appreciate your struggle. It is especially sweet and emotionally overwhelming for you to have won.
Thank you very much for the time you've spent here with us sharing part of your life and strength. God bless you! -Michael
Thank you very much for the time you've spent here with us sharing part of your life and strength. God bless you! -Michael
See what I miss after only a couple of days offline?
Congratulations, Cuteus! I'm really happy for you. And don't let those doctors upset you. You HAD Hep C. That's all.
Yay!!!
Congratulations, Cuteus! I'm really happy for you. And don't let those doctors upset you. You HAD Hep C. That's all.
Yay!!!
We need an end of year SVR party! or new year svr party?
I want everybody hep c free! so, if I come accross real strong, bear with me! It is so worth it. SO many subtle things happen to our bodies while infected, you don't notice them until the bug is gone. MY fingernails are growing! first time in years.
scruff; I hear you, TY.
Two tells; you still clear of the cryo?
I want everybody hep c free! so, if I come accross real strong, bear with me! It is so worth it. SO many subtle things happen to our bodies while infected, you don't notice them until the bug is gone. MY fingernails are growing! first time in years.
scruff; I hear you, TY.
Two tells; you still clear of the cryo?
I'm very, very happy for you. I logged on today for the first time in 3+ months and saw your post- I'm so glad I logged on. It's amazing how supportive you have been to everyone here for so long now.
I should be getting my own 1yr PCR in the next couple of months.
May you continue to be blessed, Dave
I should be getting my own 1yr PCR in the next couple of months.
May you continue to be blessed, Dave
The fear of infection often seems to go beyond what logic would dictate whether we are hcv positive or negative. You are hcv free and I can understand your annoyance. You may just have to go with the flow on this one. You can correct the facts for people all you want but in the end their fear of hcv and our fear of re-infection once free of it is what will determine our perception of risk.
Too wordy for the one line guy? frank
Too wordy for the one line guy? frank
CUTIE, you little stinker. i just saw this. i so agree with what everyone is saying..."YOU"...desearve this! if there is one person that has been relentlessly helpful to others on this forum it is you...we have been soooo blessed by your wisdom, great advice, common sense and study...i know there are many folks who are on thier way to the same results because of your encouragement to do tx...and now also because of your success! you're an inspiration to me personally cutes as well as a good friend! i pray we always stay in touch.
CONGRADULATIONS KIDDO!!!
IT'S THE DANCING FISH FOR YOU!!!!
><(((
CONGRADULATIONS KIDDO!!!
IT'S THE DANCING FISH FOR YOU!!!!
><(((
We went through a lot of our treatment together. I'm so glad to hear your results! You deserve the best and it looks like you got it. Thanks for posting. I don't get my 12 month post PCR till December, but in my mind, I know it's going to be negative also. Positive thinking always help, and you always were a positive thinker, even while on treatment. Congrats!
Yes !!!!! baby girl. It is over.!!!!!!! I have been waiting for this chance to get up and dance around again. Tee Hee Hee . I am so excited for you.
NO matter how many times you hear, or see that word NEGATIVE it still gives you that wonderful feeling doesn't it ?
Ivette, I think that you are the greatest, thanks for being here not only for the time I was on tx, but for all these newbies just starting out. Having someone like you on board makes all the difference in the world. God Bless
NO matter how many times you hear, or see that word NEGATIVE it still gives you that wonderful feeling doesn't it ?
Ivette, I think that you are the greatest, thanks for being here not only for the time I was on tx, but for all these newbies just starting out. Having someone like you on board makes all the difference in the world. God Bless
congratulations just doesn't seem to cut it for you...as the very first person to respond to my first post, you have been an integral part of this forum. for all you who keep coming to help us thru tx after you're done; you are truly angels here on earth! you are so smart, gotten me to be an advocate for myself (when i was loaded with info to fight for my right to stay on tx just incase i wasnt clear at 12 weeks! lol) you have certainly inspired me. But most important ivette, you make me laugh. we all need to laugh. you (and the dancing scruffy) certainly have a way of taking the edge off a tense thread and getting back to the basics which is we are here for support and to be informed. thank you dear, i'm so darn happy to hear your good news!!! yea!
<3 michelle
<3 michelle
I can't believe how many of us are in the same bracket or close to it, post tx. A lot of one year SVR celebrations this Holidays! So many g1s that have made it, it is...priceless! DA; good luck on that PCR don't keep us waiting!
To my friends that are not in the SVR path yet because of relapse or stubborn bugs, I wish for you better medicines, a weakened virus and good health until you too are able to say: "I WAS HCV positive". For those waiting with tea cup in hand, wish you better cocktails with less sides.
It is great to see the "oldies" still checking from time to time, you are needed!
After the elation, I get the little stats voice still saying "2% relapse rate", but I let the gut feeling saying that it is gone, speak louder. The 12 mo test will shut the little one up for good, hopefully.
as for the "I was hep c positive" statement; I recently( a few days ago)went for an epidural for the herniated disc, I sat in the pain management dr's office while he dictated into his recorder, and when he stated:"pt is hep c positive", it got to me, and I signaled him, No, he stopped and I explained that I went thru tx and tested negative now. He corrected the recording.
So I thought. At the hospital, the triage RN remarked on the + HCV status, and when I commented she said it was in the record TWICE. She mumbled something about; once positive always...I stopped her and corrected her. I was angry at the dr, and vouched to myself to bring a copy of the SVR test.
At the "OR" the dr remarked to all present: "careful with needles, she is hep c positive" I felt angry, hurt, humiliated, and God knows what else! I went through wks of torture to be able to say "I AM NEGATIVE FOR HCV", that was the goal, and here I was, with my back exposed to this moron and unable to say anything, (I learned here to not antagonize those wielding needles), so I bit my lip. After the procedure, when he left, I remarked to all the RNs and radiologist left, "btw, I went through the tx of INF and RIba and you have nothing to worry about as fas as hcv, I, on the other hand worry about re infection with these devices...the radiologist tried to comfort the fear and that was it...
Do you think I am overreacting? should we carry a letter from our hepatologists stating when we last treated and our SVR status? should we even say anything to new drs since they are so ignorant? push the issue?, I was going to bring copies of the test to the hsp to add to my records and I plan to have a discussion with the dr at the follow up. If he shows ignorance and is unwilling to correct my records, I am not going back to him.
I kept quiet about HCV due to the possibility of something like this and just now I am speaking up, because I don't have to deal with the recoiling of the ignorant trying to avoid catching it.
One big reason we go through the tx is to stop being infectious, and after the pains, do we still have to endure the shunning? I would not expect it from the MDs. How much education do we have to do with these drs? You can see it is still bothering me big time. My dentist never did anything like that and he dealt with me prior and during tx. GGRRR!
Thank you all for your input, encouragement and tips while I was on the tx ride, and ty for tolerating the annoying comments that slipped out once in a while.
LONG LIVE SVR!
To my friends that are not in the SVR path yet because of relapse or stubborn bugs, I wish for you better medicines, a weakened virus and good health until you too are able to say: "I WAS HCV positive". For those waiting with tea cup in hand, wish you better cocktails with less sides.
It is great to see the "oldies" still checking from time to time, you are needed!
After the elation, I get the little stats voice still saying "2% relapse rate", but I let the gut feeling saying that it is gone, speak louder. The 12 mo test will shut the little one up for good, hopefully.
as for the "I was hep c positive" statement; I recently( a few days ago)went for an epidural for the herniated disc, I sat in the pain management dr's office while he dictated into his recorder, and when he stated:"pt is hep c positive", it got to me, and I signaled him, No, he stopped and I explained that I went thru tx and tested negative now. He corrected the recording.
So I thought. At the hospital, the triage RN remarked on the + HCV status, and when I commented she said it was in the record TWICE. She mumbled something about; once positive always...I stopped her and corrected her. I was angry at the dr, and vouched to myself to bring a copy of the SVR test.
At the "OR" the dr remarked to all present: "careful with needles, she is hep c positive" I felt angry, hurt, humiliated, and God knows what else! I went through wks of torture to be able to say "I AM NEGATIVE FOR HCV", that was the goal, and here I was, with my back exposed to this moron and unable to say anything, (I learned here to not antagonize those wielding needles), so I bit my lip. After the procedure, when he left, I remarked to all the RNs and radiologist left, "btw, I went through the tx of INF and RIba and you have nothing to worry about as fas as hcv, I, on the other hand worry about re infection with these devices...the radiologist tried to comfort the fear and that was it...
Do you think I am overreacting? should we carry a letter from our hepatologists stating when we last treated and our SVR status? should we even say anything to new drs since they are so ignorant? push the issue?, I was going to bring copies of the test to the hsp to add to my records and I plan to have a discussion with the dr at the follow up. If he shows ignorance and is unwilling to correct my records, I am not going back to him.
I kept quiet about HCV due to the possibility of something like this and just now I am speaking up, because I don't have to deal with the recoiling of the ignorant trying to avoid catching it.
One big reason we go through the tx is to stop being infectious, and after the pains, do we still have to endure the shunning? I would not expect it from the MDs. How much education do we have to do with these drs? You can see it is still bothering me big time. My dentist never did anything like that and he dealt with me prior and during tx. GGRRR!
Thank you all for your input, encouragement and tips while I was on the tx ride, and ty for tolerating the annoying comments that slipped out once in a while.
LONG LIVE SVR!
Wow what an amazing fight you put up! 72 weeks seems incomprehensible to me now just starting down this road!
I wish I had met you sooner to have seen more of your posts.
You give so much encouragement to people like ME who are just about to begin the 48 wks (please God keep me going after the 24 cause I am not going to stop no matter what that doctor says anyways!!!) ;-)
I am so happy for you. I can't imagine in this world how happy you are. I don't even know you and just had tears over this post.
Congrats congrats NEGATIVE NEGATIVE NEGATIVE!!!!!!!!!!!!
I wish I had met you sooner to have seen more of your posts.
You give so much encouragement to people like ME who are just about to begin the 48 wks (please God keep me going after the 24 cause I am not going to stop no matter what that doctor says anyways!!!) ;-)
I am so happy for you. I can't imagine in this world how happy you are. I don't even know you and just had tears over this post.
Congrats congrats NEGATIVE NEGATIVE NEGATIVE!!!!!!!!!!!!
This is wonderful news :) I know exactly how you feel. I will get my 12 month PCR in Dec....
I, too, have no lingering sides. All you newbies this is doable so hang in there. I'm so thrilled for you.
Does anyone know if the Hippie Chick still has her site at Yahoo for all the postings of test results, etc? I cant seem to locate her site. Well, have a wonderful celebration..
Deb :)
I, too, have no lingering sides. All you newbies this is doable so hang in there. I'm so thrilled for you.
Does anyone know if the Hippie Chick still has her site at Yahoo for all the postings of test results, etc? I cant seem to locate her site. Well, have a wonderful celebration..
Deb :)
I am so happy for you, you have been a great answer to many of our wants, and have answered me alot, your story is an inspriation and GIVES ME HOPE, I hate this rebetol. I am 52 and type 1 and mild bridging fibrosis and my Quant is 129385 and 10th shot , 2 more weeks to find out, should I insist on Qual test? I would know nothing if not for you smart people and I thank you alllllllllll!!! CUTEUS< THANKYOUUUUUUUUUU!Aubbie
Way to go Cuteus. And thanks for sticking with all of us kindergarteners here. You have helped immensely. Cheers to a free life
Kathy
Kathy
Yes!! You have definitely won the battle. Whoohoo!! I'm thrilled for you Ivette. You have to be feeling fantastic after getting that news. Congratulations for beating this thing. You have my very best wishes for continued good health and much happiness.
Susan
Susan
I'm so happy for you, lady! Yor tenacity has paid off. I know you will continue your fight for all of us in our own quests to slay this dragon. Congratulations!
Lauren
Lauren
The answer to your question is YES YES YES!!! It's over, kaput, done, finito, the virus is GONE GONE GONE, never coming back. It's just so right, and I'm so happy for you! Thanks for all you've done for us all, and for me personally.
dA
dA
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