Aa
A
A
A
Close
Hepatitis C Community
13.4k Members
Avatar universal

Does anyone take this while on TX,,,????

Spirulina is gaining more attention from medical scientists as a nutraceutical and source of potential pharmaceuticals. There are several new peer reviewed scientific studies about Spirulina's ability to inhibit viral replication, strengthen both the cellular and humoral arms of the immune system and cause regression and inhibition of cancers. While these studies are preliminary and more research is needed, the results so far are exciting.


http://www.lightparty.com/Health/Spirulina.html
35 Responses
Avatar universal
You wont beleive this one....just talked to my study nurse and she says its ok to use milk thisltle while on tx drugs...i asked her about taking a good green drink ,,like simple sprlina...she says no..are there studies that say milk thistle improves tx.???..im confused...i cant a green for but its ok to eat the hergb milk thistle?....sometimes i really wonder if the medical field really know anything about nutrition...can .someone here relate to this??...im just wanna take good foods to ward off the sx....i dont see any diff in a head of romaine lettuce and spirlina..there both chlorphyll rich foods...id pull my hair out but i shave my head twice
Avatar universal
i cant have a green drink.but its ok to eat lettuce?

something wrong with this picture
524608 tn?1244421761
You said "study nurse"? What study are you in?

I am in a Vertex study and I was told to take only a multi vitamin...no milk thistle, no herbs...no ginger for nausia....no stevia in my oatmeal...nothing! Until after I was done taking the Telaprevir/Placebo (12 wks). Then I can take what ever I want. I am under the impression that they don't want anything to skew the results of the trial.

I have been very fortunate with mild sx...I have 4 weeks left on the trial drug/placebo then SOC for at least 12 more weeks....maybe even 48 weeks if I am in the placebo group.
Avatar universal
I have said this before but the notion that milk thistle is bad on treatment is an urban myth!
It's simply that when the trials for peg were undertaken milk thistle was not allowed 'cos they didn't want some on it and some not.
This has passed into folklore as 'milk thistle stops interferon working'.Rubbish-how could anyone know without a study and who would waste time and money on that.
I take milk thistle and some other supplements but I don't really believe they do any good.
412873 tn?1329178055
I'm also in a Vertex study and all they said about the numerous supplements I was on at screening was to be careful.  

I stopped everything  when I started the study, but I was surprised they had nothing to say about it  

I do know that I stopped the spirulina a while ago after someone posted it could be hepitoxic....I'm going to search for the thread now............
412873 tn?1329178055
Ok, I have to scratch that last comment-I can't find the post.  

Wish ya the best with the trial.....which one is it???
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
DC
683231 tn?1467326617
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.