The Draco viral eradication is brand new , just discovered , I posted here about it a few weeks ago .. It is being researched at MIT ... but still very far from being released to the public ... The HP , I have been following closely ... it has started a small FDA Clinical Trials in India thi year , and it may be trialed in the states sometime next year .. japan approved and subsidizes the medical device DFPP blood filter system in 2008 for HCV / cirrhotic patients .. but not in the states ...
Unfortunately neither one of these will help us here at this time ... Hopefully in the near future !
Good luck !
Hi Keith, I dont think you will get much positive respose here about stopping tx. I agree with your decision NOT to continue as it was not likely to work. I dont understand why so many people volanteer to go 72 weeks and now some as much as double that. (except when trying to avoid a transplant) Most of the people here are pro-tx and pro-doctors advice. I quit early not because it didnt work but because it worked so well that I could not be convinced that I needed to keep taking it. I did start with zero liver damage so I do have the luxury of retreating if I relapse. I often wonder how many people destroyed their livers by drinking and smoking pot all their lives and now want to make it all better by getting rid of hep c? I just dont know the facts but I do think that cirrosis caused by hep c alone is a very small number. Why else would there be no information out there about what the statistics are? The drug companties push fear and tx 24/7 but stay completely silent about the group of people who do not need to treat. I believe I represent the silent majority who would do fine without treating. But then again, it seems imposable to know if I was just lucky or the fact that I chose to live pot-free, alcohol-free, drug-free and such, kept my liver healthy in spite of having hep c for as many as 40 years?
Back to you Keith, Im so sorry you were unresponsive to the drugs. I agree that the day should come quickly where we can take an anti-viral like we do a anti-biotic and be done with it in 10 days. Im suspicious that the drug companies have prevented such a thing from coming out until their patents expire which is usually 13 years. Again, I dont have any facts about this but I do wonder if drug sales are not more important than cures to the drug companies?
I think you are mistaken about folks here response to Keith's decision to stop P/R Tx .. He was on the placebo (no Boce) which gave him P/R Tx only ... as far as i know, now the protocol on P/R (peg/riba) .. is if not Und at wk. 12 stop .. the odds of achieving SVR if a late responder is too low to continue P/R Tx ... 72 wks Tx was pretty much a Tx of the past .. before the advent of PI's ..
You probably know this now Keith but there are studies where there is no placebo arm and everyone gets the medicine and everyone knows from the get go what arm they are in. They are called open label. I can't imagine going into a blinded study for something like this but I respect people who do and their contribution to medical science.
Huh the guy who had the nerve to tell others they were taking the easy way out by taking AD's while on tx to deal with the sx the drug companies warn you about. Had to stop treatment, because he couldn't handle it. Talk about taking the easy out ! What Doctor advised you to do that ? Oh that's right the docs and the drug companies conspire to make up diseases. Because after all HCV really doesn't harm the liver "it's the pot".
Tell yourself what ever you need to but as you said ' you don't know the facts'
My post was posed as questions, and I clearly stated "I dont know the facts"
How's the refer habit going?
I wish.....good luck with SVR we're all pulling for you.
Thx, will let you know if I make SVR or have to concider options for re-treating.
I often wonder how many people destroyed their livers by drinking and smoking pot all their lives and now want to make it all better by getting rid of hep c?
What has that got to do with anything....it matters not how anyone got HCV or why they want to get rid of it...the point is most people here DO want to rid themselves of the disease and are doing everything in their power to do just that.
If you choose to do things differently more power to you and everyone hopes you attain SVR...however maybe it would be best to offer folks your support that are going the distance rather than suggest they are doing treatment just because the drug companies are "pushing fear" as you say
Oh..I got some of thse facts for you that you don"t know about.....
In untreated patience with HCV: The median expected time to cirrhosis is 30 years(median meaning as many above as below)
33% median expected time to cirrhosis is 50 years or never.
Personally I am thankful the "fear mongering " drug companies as you call them are on the case ...as I for one don"t want to gamble I am in the 33% minority.
My questions were not intended to be taken as unsupportive. Just questions.
Thx for the post tho, and the facts on the 33%. Not as many as I thought there would be, but in my eyes not bad odds for someone who already has the odds in their favor at 50+ years old.
Again thx for the post and I will let you know when I meet with success or failure of my 16 wk tx.
Good luck with stopping P/R early RonGilbert316. That's less treatment time than geno 1's currently treating with triple therapy who RVR. 4 week PCR should be the tell all.
Actually the odds of progression speeding up once getting to the age of 50 are substantial...as shown in many studies.....again tho...good luck to you and I hope 16 did the trick