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Avatar universal

Dragons back, yup you read it right.

I knew that when I started getting hot flashes around 5 weeks post something was wrong and plus the numbness and other things. I now hope that my other self dx isn't right - Cryo.

Anyone who remembers or knows where I tx please refrain from bringing up the teams name. They will hear the things that I was not happy with when I see them in person. I don't want to attach a name of a team to my complaints on a public forum.

But anyhow I had prepared myself for this news from the time the hot flashes started along with the numbness. My NP never got back to me- even after 3 emails with me asking about these symptoms. I guess becasue geno 2 is supposed to be a 'shoe in' so I guess nothing could be wrong and it was probably just in my head. NOT

I am very fortunate that though tx failed me, I didn't have a hard time at all while tx and for that I am grateful. I know that Jesus will see me throught this all.

I thank you all for all the support you all have given me. We will all beat this disease one way or another. This failure that I am experiencing will only strengthen my faith as now I have to totally trust Him and I will. God is so good to give me peace and comfort me at this very moment. He loves us all so much.

I have to eat my dinner. Talk to you guys later or tomorrow. Please keep me in your prayers that I don't have cryo. Thanks guys.
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Avatar universal
Thanks everyone. I'm doing fine. I actually feel better knowing. I just wish I heard from the doctors office in case I should have tried to do a few shots to try to see what would happen.

Jim, I was on weight based. I don't know if you remember but I purposely put on about 15 pounds or so  prior to tx. I was worried I would be sick and loose weight from tx and have to stop. So when I started tx I was 137lbs with the added weight, but I never got sick as you know and so the weight didn't come off from tx. Now I have to diet. I'm 5'6" so I don't look fat, but I like less weight on me. I was on 1,000 of riba.

I did go down to 9.8 hemo at my lowest. I didn't know it was that low until I picked up my lab at the doctor and even then I didn't see it until I got home. The doctor had said he would use procrit at 10.0, but I guess the NP thought differently or maybe becasue it was right at the end of tx this happened. I didn't really drop for quite a while if I remember. Never felt anemic just a little breathy toward the end weeks.

But yes I did think about possibility of not having anemia thru out tx may have worked against me as the riba might not have been enough but I think adding another 200 riba may have been dangerous. I even started to wonder if the reason I didn't become anemic was becasue of my healthy lifestyle. Kinda sad to think on those terms - that a healthy life style kept my blood at a good level and ruined my chance of svr. But then again there are those who have become anemic and didn't svr. I do know that my iron ferritan was normal prior to tx but was never taken again during tx except the very end. The doctor checked it a few weeks before tx ended and it was high. That has me ticked becasue maybe it became high early on for some reason and that is what helped the virus to replicate? I am kicking myself that I didn't notice that it wasn't being checked along the way by the NP.

I didn't have the numbness in my hands last night when I went to bed. It usually wakes me up. I do have it in my mouth, lips, gums and tongue though right now. It would be nice to think it was from the meds leaving, but in the back of my head its cryo and after tx the cryo went berserk for a while and maybe is settling down now. I hope I am wrong this time, but I am starting to have confidence in my self dx lately and I don't want to be right, believe me.

Bug, I hope your flashes are from menopause. This whole hep C is one big pain in the neck. We guess, the doctors guess, our family takes a guess and no one ever really knows why we have certain symptoms. Its crazy. My PCP will keep an eye on my CRP for inflamation and all that. During tx it was good, now its up a tad.

So that's the story. I can see that my husband feels better because he sees I am less stressed now knowing than what I was before I knew. I freak out when I shouldn't and I DON'T freak out when I should. Its weird but alot of times thats how how I handle things.

But buy for now. I'm just chillin'. Gonna make myself another cup of green tea. It is one of the things that crosses the BBB and so I will continue to drink that.I'll check the computer now and then today to see what you all are doing or if anything is going on. I hope I don't become one of those people that opens threads and says "Try collidal silver Interferon don't work." LOL  Just kidding I won't.

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146021 tn?1237204887
I was awake 1/2 the night and I thought about the same thing---was the dose of ribavirin high enough? I know that they don't always weight base geno 2. I was given the standard dosage of 800 mg, but that's weight based for me.
Now I'm wondereing if the virus has come back for me too. I have hot flashes all the time, I thought it had something to do with menopause. I even asked when does menopause pause for good because I seem to have had it for about the last 8 years.
Know way to know till I get tested. If it comes back positive I'll be in good company at least.
Bug
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173930 tn?1196338398
really sorry to hear your news...stay positive and I am sure you will beat it with His help
Take care
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104652 tn?1196600308
sorry ...but what is Cryo?
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Avatar universal
My own,

I am sorry to hear this.  
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Avatar universal
Probably not the time to do a post mortem (maybe too soon and maybe your next PCR will be negative), but just wanted to convey a couple of thoughts in the event you disappear from here for a while (hope you don't) and/or decide to treat again soon (hope you don't but you never know).

Anyway, given the fact you had so few side effects on treatment, wondering if you had enough ribavirin, as some people appear to metabolize it differently. Studies have suggested that anemia has some positive correlation with SVR, i.e. the more anemic you are, the better the chances for SVR. Anyway, if you didn't have much of a hemoglobin drop during treatment, something to consider next time if/when you decide to treat. Still hoping you will be UND on your next PCR but I agree it appears to be a long shot, but still NYGirl did go through something similar.

Hope today finds you OK.

-- Jim
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