Dry Mouth - Dehydration - And Others

[NYgirl]

I have a question and this might be helpful to new members. Since we don't have any threads opening I thought it might be a useful topic.

I have the worlds WORST GLUE MOUTH at night.  Not so bad during the day but I know that is a huge problem for some as well.

I know one of my friends used to get a pill that he would take and it would produce TONS of lovely spit...in fact I took one once and was almost DRIBBLING like an idiot.

Does anybody know what that medication is called?

Does anybody have any useful info?  I CANT drink anymore water and this problem wakes me up at night constantly. Even though the sleeping pills - I'm just dreaming of ice pops.

I tell you I need to find a "Gold Bond" for my mouth. That is the truth ;-)

[GoofyDad]

Forsee: Story starts in post C19, in the thread started by Southern Roux on 2/7/2006.

Dry Mouthers: My dentist has me rinsing with Chlorhexidine (RX only), an antibacterial mouthwash - just to support the oral systems while on tx. It has alcohol, in case that bothers you.  

[FlGuy]

Maybe those gallons of ice cream you eat contribute to the glue mouth.  Try sherbet which is not as comforting as IC.  Getting close to the weekend for you again.  Flavor of choice for this shot?

[jmjm530]

OK. Be on your rooftop in ten minutes, just no woolens or I can't be responsible.

[NYgirl]

Wouldn't it be easier just to use your Super Hero powers and fly me out that way, MothMan?  :)

[jmjm530]

I'm short a couple of glue traps for the moths. If I send you a plane ticket maybe you can be helpful.

-- Jim

[NYgirl]

My doc would not call in a prescription for Salagen because he said I can buy over the counter SALAVERT which will do the same thing and I can use it AS NEEDED.

Just in case somebody else wants to try this out with me I thought I'd let you know....since that is what we are here for!

PS Cando...I am a tough New Yawka don't worry about it...between worms and Mothman I have nightmares you wouldn't believe ;-)

[Forseegood]

NY Girl...don't know if you do these things but my friend who is a treatment nurse says that smoking and drinking coffee will accelerate "glue mouth" with interferon...(don't know exactly how reliable this info is, but sounds good...) I know if you do do (wrong choice of words here) these things it's prob tough to quit while you are on such an exacting regimen - and prob not advisable (cept maybe the caffeine, if you want to of course.)

Goof:Thanks for the vote of confidence, but I have "glue head" and I can't find the post everyone's referring to, I'll give it another perusal...thought I'd see you in the audience of the Grammy's with your wig-hat on and your high heel sneakers! (all you gotta do is tell em you got the same dogsitter that Jerry G. has!)

[NYgirl]

Nobody knows for SURE ... but not discussing the possibility is like sticking your head in the sand you know?

They don't even know if she HAS IT yet...but certainly I hope that this has given Scared some good reasoning to lock up their drugs and get the other girl out of the house......you know the daughter would NEVER admit it but by opening that window the parent might have a huge advantage now and see it if it is there and do something about it.

You KNOW drugs will kill faster than this disease will.  Honestly that is a much bigger potential problem and one that is not realized.

As an ex-user I can give 99 reasons on where I must have gotten this but in reality I am going to believe the doctor after all and say it was probably from using dollar bills to snort coke.  Of course even at 40 I let my parents think it was from my tranfusions I got last year.

So...I know how it is to be the kid and I also know how it is to be the parent.  An open mind here is an important thing.

I am hoping that I am wrong - I've lived it and wouldn't wish it on anyone in this world.

[NYgirl]

Oh my GOD Goofy just when I had forgotten!  But you know...that WOULD probably contribute to the glue mouth not help very much hahahahaa.


Scared - I know you are scared but as a parent you need to admit the 99.999% probablity and stop conning yourself about the "razor" situation.  

If you can keep up the STRENGTH that you've shown by posting here...and just get OVER that hurdle you will be so much more able to help your daughter.  Just remember no matter WHAT to ALWAYS show her the love you are right now...nothing is more medicinal than that.

Encourage her to learn about addiction and this disease...many, many, many people have overcome BOTH.  The disease is NOT a death sentence but drug abuse is.  Nothing good can EVER come of it.  Just ask me...nobody EVER had a clue how addicted I truly was - I look fine, dress as an executive, work every day, take care of my kids etc etc but I could NOT have been more addicted doing all of the things that I was continuing to do.  I was a professional for sure, a professional addict.

But I've overcome that and lead a productive life and am now putting all my energy in to being healthy.  If I could do it...believe me ANYBODY CAN.  And she is so YOUNG if you can nip it in the can NOW...you will be so ahead of the game!

But the first step is getting over the denial.  Of course I don't know everything about this but...  In that way you will open the floodgates of discussion and emotion and eventually a cure.

And that is what you need in ALL aspects.

[cuteus]

of course, all these suggestions will only be relevant if in fact she is positive for hep  c. If she only had the antibody test was done, and not the viral count, you don't know for sure that she has hep c.  See if she can get copies of all her bloodwork, so that you can tell what was done so far. Until the viral load(PCR) test is done, and is positive, you can't make any decissions. first things first.
keep in touch

[GoofyDad]

If John has a trusted relationship with his daughter, maintaining that trust is paramount. As can-do-man says, there are other modes of transmission, and based on what I've read from John, that girl gets the benefit of the doubt from me.

Why should what appear to be compassionate acts acts on her part become an indictment of her character?

I was always (reasonably) honest with my parents. I would not have appreciated their distrust under these circumstances. That girl needs compassion and understanding right now.    

Forseegood, where are you? You would have great instincts on this.

[can-do-man]

Point taken, just thinking of being a parent we become defense of our kids, wouldn't want john to take it the wrong way and stop coming here. From reading his words i think he needs this place more then ever. Not trying to be hard on anyone here.

[scaredtoday]

can you contract hep 3 by sharing a cigarette or by saliva. .Im not sure what test she had to indicate her dianos. but the Doctor gave her another more accurate test. he said he didnt want to get her hopes up. but it could be possible she is not but unlikely. I share cigs with my wife and smoke with a friend am i putting him at risk. ???????

[can-do-man]

Hi guy, glad your back, dope sharing them smokes won't do it, nor will kissing, eating, or drinking after someone. This is a blood to blood thing. And yes it is possible its a false positive. That doe's happen... Godd luck to you

[can-do-man]

sorry that was a typo should have read NOPE don't DOPE

[cuteus]

some labs use the Elisa assay which carries a high error rate, and then others do the RIBA assay, which is more accurate, but still, it is only for antibodies. A positive there only means she was exposed, not that she is chronically infected. The PCR will tell if the virus left her system or not. There is hope. Try to get copies of all the bloodwork, it can come in handy later.  I hope she feels better soon, but until that negative result comes in, she is going to torture herself with gloomy thoughts.
see if you can check the janis7hepc.com site. it explains the tests done for hep c, very well.

[NYgirl]

I don't think it is an ACCUSATION - just a very decent chance considering there are drugs and an addict and HepC. It's like a 1 + 1 = 2 situation.

If this was a random person in the world saying...hey there is a girl in our house who has hep c can we GET IT...we would say use the universal precautions etc.

but the fact that the woman is the daughters friend and there has been blood transmission (and face it have ANY of our families gotten it via toothbrush or razor? Those of us who are not 19 but have HAD IT to share for 25 years plus?)

I think honestly what I know I have been saying (and others too) is that it is LOGICAL and more than just a fraction of a chance...but if they don't deal with the cause in addition to the disease well......

SCAREDTODEATH ----------------------

PS Scared you can't transmit via a cigarette you need to put blood into blood - BLOOD INTO OTHER BLOOD - not blood laying on a piece of clothing or something or blood just on your skin really but you get this from blood entering other blood and then growing.

If someone had it and happened to bleed on you you would freak out but you wouldn't neccessarily really get it - not unless that virus had a way to get in to your BLOOD and then replicate.  INTO your blood. Not saliva or anything but BLOOD.

Which is of course why the chance that it came from a razor or toothbrush is not really high - and also with SEX for your worries about your son the chances are miniscule. Thank God or this would be even a bigger problem spreading than it already is.

[can-do-man]

It's like a 1 + 1 = 2 situation.
________________________________________________________________

Thats not a accusation? trying to help a friend out could be a act of kindness. I believe your innocent till proven guilty. Maybe not though. Oh well not trying to get anyone upset here.

[can-do-man]

While i do agree you need to get this young lady out of your house. And also since your son has been sleeping with her.(using protection i hope) If he hasn't then he should be tested for more then hcv.

Please don't let some of the comments here keep you away. At this point in time i think making unfounded accusations is being unfair to you and your daughter. Of all places people here should know there are many ways to get hcv. And there is a lot of us that don't know how we got it.

I hang with many friends that drink, but i don't. Also many of those friends don't smoke but i do.

This is a support forum. And i hope if you need to ask questions or just need to get things off your chest, or just want to vent that you find people here who cares. Sometimes just talking to people you don't know helps. Best of luck to you and your family.

[scaredtoday]

thankyou . and I am the dope here. . Im frozen with fear for her . Im very mad . Is ther someway to find out if ther is a regestry of some records I could find to see if she knew she had it before. and faked the the whole new diagnoses with us . Im not phycic and cant spell very good im sorry but is ther any legal way I can find out if and when someone was diagnosed with hep c. I feel un top of everything she had become desperate. The young lady came to our house straight from the hospital where she was in phyc ward for trying to hurt herself and an apparrent drug overdose of tylenol which dosent ring right with me. but wouldnt they have checked for this right off . I called the hospital but they wont tell me anything . should I get her to sign a something allowing me to find out. I suspect she knew for quite some time . And allowed this to happen. Im sorry to even think this but I cant help it. and are you sure about the saliva  commmet I read here someone just hungout with people who had it and ended up with Hep C .  God forgive me for thinking this . but Dads have that little voice too. John

[can-do-man]

I see your point, now don't get that new york blood of yours boiling.:)

I kinda like sticking my head in the sand, especially if im hunting for worms. Good for fishing and their kinda chewy to.

[can-do-man]

As sure as im setting here, saliva won't do it. As for finding out if she's had it and been tested prior the board of health would have a record of it. Not sure if the general public can get those records though.

[strator]

Our hearts certainly go out to you. But first don't panic over the 'possibility of hep c'. You are obviously a person who looks for solutions, you found your way here. Check out the http://janis7hepc.com site for some basic knowledge. Even if tests come back negative it is certainly prudent to learn how to be careful for prevention of this disease.

As a recovering alcoholic/addict with hep c...my thoughts.
We can give you suggestions but only you can find the answers, most of them will be in your heart.
The girl you are helping is receiving a gift from you, compassion. I read a great line early in my own recovery,
"50% of every gift is how it's received." If you can't face 'putting her on the streets', first set boundaries. If she is under your roof, even at 21, she should have chores and structure. Unless you are experienced or trained in addiction you can only be a bridge to helping her. Just as we with hep c come here to talk to others going through it, the only ones who truly understand, she needs to be helped by others who have found their way through the door to recovery. Tell her you care for her, but she needs to get help. Detox, a program, contact with others in recovery. Maybe you could offer her a safe haven later if she goes for help. Knowing someone believes and cares is paramount to her believing in herself but you are doing a disservice to her if she stays and uses. This could go on for years like this. For over a quarter century my own family kept letting me back in the door, patiently waiting for me to take the help available. Presently I have an addicted ex wife, my son's mom, who I still care about, however despite my compassion as an ex addict I had to set boundaries. She is not allowed here unless I'm home, I will give her numbers to get help, but they say the only way into Harvard is through the front door, same with recovery. If she won't take help, tell her she has to leave, because you DO care. You are not writing her life story, she is. If you are going to still have contact with her, depite your more than full plate, you may benefit by contacting Al-Anon and getting help yourself with understanding the addicted mind. I used and manipulated the compassion of everyone in my life for many years. Only now do I see the collateral damage. My addiction in a way became their addiction. Tough as it sounds, in the present situation you jeapordise all of you for her.
With your daughter, she certainly deserves the benefit of the doubt, but remember, the largest stumbling block to getting help is overcoming the fear of first admitting you have a problem to your loved ones. Maybe she has never used, maybe she experimented, or has just been covering well. I did things like made the dean's list at school, got work promotions at large corporations, ran a household, all while drinking and drugging 24 hrs a day. For now just let her know that whether she is or not using you are there and will be. In the case she may be on the wrong path, I have seen countless others with long term sobriety that very experienced having helped others get clean, have to step back when it came to family mmbers needing help. It's heartbreaking but when your that close it is not only to painful, but also very hard to be objective.
John, I am sure you will be in the prayers of many here. There are no magic bullets. Healing both for addiction and hep happens everyday when we become open to settling in and putting one foot in front of the other, accepting and walking through the process.
Have faith, you are certainly a loving human being, make use of the help you can find.
Don

[scaredtoday]

I dont understand. And Im a singer songwriter from Toronto . I pick worms at night . I hope I didnt offend yu. and Im not on a witch Hunt. My wife is upstairs dying from System Sclerosis . the girl Im talking about is very jealous of my daughter . And is in her room . she calls my wife Mom. even though she steals M.S contain . Morphine from her. I clean up after her make the dinners here shop by myself and change the toilet paper rolls . and cleans the mess . Im not a Mom . or a girl. I dont even understand why I feel this way . I just had a hunch that this is the case . its water under the bridge. But its caused a flood of terror. Please forgive me if I sound weak and stupid . I probably just am. Always liked chewy worms if they were sour.I dont wanna make any enimes here. I wish I could be as strong and unselfesh as you all are. My family has taken care of many people in the past . Helped a lot of single Moms and strangers. I think it was criminal if she knew and used my daughters razors . John