Ending wk 13 post INC ~ dying with pain

[Livinontheedge]

What is everyone taking for pain .    Such as muscle aches.  At this point I would say on a scale of 0 -10 I am setting at a 8 in my back , shoulders , arms and neck.    Its keeping me up all night.     Some say NO TYLENOL, Some say its ok ????    If it is ok, what is the maximum dose per day for us Heppers on TX.    

[Livinontheedge]

Thanks Everyone for your kind thoughts and information.   Any kind of pain is no fun, and I can tolerate alot, but this has been killer.   So Tylenol it was and it worked great .  
Advocate thanks for your story and info, I will be going to the Neuro & Ortho docs soon after this is all over.  
Hawk,  I will check into the Pineapple stems :)    I love natural remedies
And
Hector, My Prayers are with You.   I will be doing some intense talking with the Man upstairs.   I Believe You are going to Beat this :)   Love & Hugs to all

[eureka254]

Unless you have Stage 3 or 4 liver disease, most painkillers should not be contra-indicated for you just because of hep c or treatment.  Since the source of your pain is not liver-related but rather musculo-skeletal related, you may find more relief with ibuprofen (Advil, Aleve, Motrin) than with Tylenol.  If your pain is not alleviated with OTC anagelsics at recommended doses, you should ask your treatment team for a better solution.  Hope that helps, and hope your pain goes away soon! Take care. ~eureka

[orphanedhawk]

My first response would be to encourage you to get a series of massages and do some mild exercises. Nothing makes me sore like lying around, doing nothing.

During my first tx, I saw an MD who is an herbalist and specializes in HepC.
Along with some other herbs for symptoms she had me taking a supplement called bromelain.
Its made from pineapple stems.
It helps to reduce swelling. What actually causes pain is swelling.

A few weeks ago, I had some intense deep muscle pain. Since I still had a bottle of Quercertin/Bromelain, in my closet, I started taking it again.
Two pills, three times daily on an empty stomach.

It isn't magic but it took the intensity of the pain away.

Oh, and make sure you are drinking more water, yes, more water!
Good luck,
OH

[Advocate1955]

The shoulder and arm pain that you're feeling could be your C6 and C7 problems.  Would it be helpful to go to your primary care doctor or a neurosurgeon and have an MRI of that area?  You may have ruptured discs that are pressing on root nerves sending pain out to other areas (back, neck, shoulders, arms, etc.).  Have you had any falls or whiplash type injuries lately?  A couple of years ago, I had an injury that resulted in two ruptured discs at C5-6, and C6-7.  The discs then pressed on spinal cord and caused some permanent damage and also pressed on root nerves to my neck/arm, shoulder, hand.  The pain was unbearable.  Ice helped and gave about an hour's relief.  As soon as the situation was diagnosed, I was referred to a neurosurgeon and had surgery to remove both discs and put in a titanium plate to fuse to the vertebrae.  I do have some lasting damage, but I can live with that.  The pain before the surgery was not bearable.
Advocate1955

[indy531]

Hep doc told me I could take Tylenol, but I have no liver damage (stage 0).

[frijole]

living - Yes, the tylenol is the preferred choice but I agree with Hector.  There are times when you do what you have to do.  Managing the scoliosis is all that much harder with these treatment drugs.  At least noe the Incevik is over.  You are not taking neupogen, are you?  I get bone aches from that.

hector - my thoughts are with you tomorrow.

frijole

[babyjozz]

also...u stopped taking telaprevir 13wks ago?

[babyjozz]

i get pains like that too ...on my days following my inj. and i take 4 ibprofens and sometimes it relieves it enough for a couple hours....i read to take 1000mg tylenol before inj to help but i still hurt today but maybe itll help u!  so yes i think tylenol is ok on treatment but not too much

[HectorSF]

I ride out the pain most of the time myself but I do have my limit. So don't suffer needlessly. Remember the relief is mild but it can be enough to get you through.

I have my liver cancer treatment on Monday morning. They hope to shrink my tumor. I am hoping for some serious meds during the painful parts even though I have to be awake so I can hold my breath when they are feeding the catheter up into my chest from my groin. Yikes! After that, they better knock me out! I will be doing some meditation/'imagery too that helps me deal with pain. Pain sux, but if it is for a good cause well the is worth the temporary suffering.

Hang in there!
Hector

[Livinontheedge]

Thank You Hector.   This week has been very painful for me as far as muscle pain.   I have scoliosis in my lower back and reverse curvature in my neck with c-6 & c-7 pressing on my spinal cord.   Needless to say every other muscle in my body is aching as well and I have never felt pain like this.  The doctors in the past has tried , to give me pain meds but I would never accept them.   Always just rode it out and did stretching, heat and ice and the good old Tens unit.    But this...... Is incredible......  So I am giving in to tylenol for now.   Thanks for your information, You are such a world of information and I trust you .   God Bless Hector, Hope it is getting better for you.    You have my Prayers