Everything Smells Strange

[Revalation]

Has anyone experienced a change in their sense of smell while on tx.

There is a room in my house that I can't enter without being offended by the smell of the room.
My eyes dry and throat burns.

Also, I think my skin smells funny no matter how much I wash.
I've tried washing in baking soda to try to get rid of the smell.
Additionally, when I wash clothes the clothes smell funny to me.

Could  this be my imagination or what?

Reva

[Naya888]

I had the same problems during entire time on Incivek.Eg.constant bad smells comming from my body,bad smells of 2 rooms in house which I could not even enter withoutgagging .I felt sick smelling laundry sheets and coffee.I always loved coffee before but hated taste and smell during Incivek.Now 3 days post Incivek I start enjoying coffee again but I still smell Incivek from my body and house still smells bad.

[Revalation]

This is the previous thread that was started some weeks ago.
Maybe there will be something in these comments that will help you.
Hang in there!!!

At least you know you don't have to swallow another one of those "little boats."I've had many send me their stories how really soon after ending Incivek they felt much better.

Also, I was advised to wean myself off the fat and allow my body  to adjust.
I was told not to just go cold turkey.

Reva

[MeWithC]

I take Spirolactone also, Idyllic....I always smell an ammonia-ish odor...I'm told it's in my lil screwed up head/nose/whateva........annoying.

[BoceprevirGal]

  Well, you could try some forms of aromatherapy, although perfumes arent recomended on this treatment.
    I use a disinfectant that is 99% natural, it has the ingredient "thymol" in it, and smells like eucalyptus.
   I havent noticed my body smelling different, but I do like to use this soap and lotion that has natural bees wax in it, which I think smells delicious~
   I dont think mildew would be under your platform, if there is hard wood floors, and no source of a leak there.

[Revalation]

No problem we're all on this journey together.

Reva

[willbb]

Sorry.. I didn't mean to hijack the thread.

Best to you.

..Will

[willbb]

Good to hear and welcome to the group..
Will

[pcyoda]

Yes, it IS Victrelis! Sorry, got mixed up - hadn't become part of my regime yet so got the name confused. :-)

[willbb]

http://www.accessdata.fda.gov/drugsatfda_docs/label/2011/201917lbl.pdf

http://www.merck.com/product/usa/pi_circulars/v/victrelis/victrelis_pi.pdf

[willbb]

Are you sure it is not Victrelis you are starting? This is dosed after the 4 th
week lead-in of Peg /Riba  just before the 5th injection..

Sounds like this might be the case...
Will

[pcyoda]

I don't know ... I am just following doctor orders. I had a nurse come out for 2hr training last Thursday when I did the first injection and started the Ribavirin ... but was told I won't be starting the Incivek until week 5. Where did you find out they should all be started together? yikes. :-(

[willbb]

Too weird! I'm just getting ready to take my 2nd injection on Thursday - haven't even started the Telaprivir yet
---------------------------------------------------------------------

Why have you not started taking the Incivek yet?  Dosing is prsecribed starting all three drugs together?

Will

[pcyoda]

Too weird! I'm just getting ready to take my 2nd injection on Thursday - haven't even started the Telaprivir yet and am having the same smell aberrations as I'm reading about here ... constantly showering because I think I smell - now I'm smelling something funny in my bathroom/bedroom and thought maybe my toilet was leaking somewhere but can't find anything ... sheesh ... I had heard about the taste changes but not the smell changes ... sooooo glad I happened across this little forum today. I have Stage 3 Liver Disease, lots of scarring but just on edge of cirrhosis, and now am wondering if the aberration comes from the meds or comes from liver function impairment somehow as I remember having the same "smell" issues with pre-cooked meats, etc. over the past year or so.

Anyway - hats off to everyone here for being willing to jump into that unknown to achieve healing - blessings and good labs to all!

[scherpie]

I can smell better than my dog, still 5 weeks post

[ninjamonkey]

I had my boyfriend sear Michael our room several times for what I swore was poop I was like there ha got to be some animal pooping in this room Familia can smell it he did what I asked but swore he couldn't smell it and never found it even though I feel like I can pinpoint where its coming from its never there. And IRS poop smell which s*cks! And he smokes which he does outside now and it used to not really bother me when he came back in but now he is overpowering and sometimes I can't stand to be close to him after he has smoked even if its been a while after his last cigarette I can still smell it and gags me.

[Idyllic]

"Also, I do believe the meds leach from my skin because my clothes now
smell strange to me. "
___________________________________
I believe this is the case as well. I take a medication called Spironolactone and I can smell it on me and my hair when I take a shower. The smell oozes over my face with the water and I know the smell is me. At first I thought it was my husband because his blood pressure medication makes his hair smell the exact same way.

Still though, I would not tear your house apart until you can get at least one other person to confirm they smell the same thing. You helps to concentrate and really think about the smell and know it on a visceral level. Think about what it reminds you of and how you feel when you smell it. That might enable you to either (a) locate the source or (b) consider the possibility it is indeed a "phantom" smell and perhaps a side effect of one or more of your meds (or whatever).

[Revalation]

It sort of sounds like I'm not going to be passing the sniff test for the next year. This tx wears you down with all the little sx. It's just one after another.
I know I'm blessed that I have not had any really awful things happen, but
with even a little piled on day after day it does take a toll.

First, the skin on my hands fell off, now it's my feet, then my ANC  and now
hyper-sensitive to scents....

I sure hope medical science finds a better cure t

[Revalation]

Who makes an ionizer?
Where do I start the search and  are they real expensive?

[threepaddleCurt]

My wife had this thing about Clorox, partly because she is severely allergic to molds. All food preparation surfaces, bathrooms, floors and who knows what else gets the treatment. Prior to therapy, this didn't bother me at all and I actually liked the smell. Now, I gag and have to stay outside for an hour or so before I dare return inside.  

We won't even mention the kids' rooms.  I don't go near them.

[MeWithC]

I get the smell & taste of chemical solvent....usually gone by morning...
It's not as strong for me now.....First few shots were very strong.....I always have that little reminder when I take my shot, which is leading to S-10 this week.

I've also had problems for decades with my sense of smell.

[working dog]

it took me 6 weeks post to get rid of the smelling stuff...but my taste is still different...i can't take spices at all...how about a ionizer?...i think if i was tx again i would look into one....good luck....billy

[screaming48]

I didnt find anything that helped, it did start to get better after tx though. I am telling you though there for a while I couldn't stand the smell of me lol, I used bleach on everything to get the smell gone. It will get better though like I said before, it did for me.  anne

[Dawn703]

My sense of smell did change; it increased as it did when I was pregnant. But that has actually gotten better over the last few weeks. Also, My taste changed, no metallic taste, just can't tolerate spicy food too much or food with a lot of seasonings and everything tastes like a giant salt lick.

[Revalation]

Is there anything that can be done in the meantime to allow
me to tolerate myself and my home?

Does anyone have a home remedy that worked to get past this situation?
Should I by a mask of something?

I guess I could clear out a little area in the basement of something?

Reva