Aa
Aa
A
A
A
Close
7469840 tn?1409845836

GOOD NEWS! SVR12!

Dear Fellow Dragon Slayers—The Dragon is Dead!

I wanted to let you all know that I got "THE CALL" (earlier than they told me) from gastroenterology a few minutes ago, and my 12 week EOT HCV RNA QN test came back UNDETECTABLE! I am cured—no further follow-up needed (her exact words). They are not going to do a 24 week follow-up test.

I did the triple Tx Sovaldi/Interferon/Ribavirin for 12 weeks from Feb. 7 until May1. I was UND during the whole Tx, and at 4 weeks EOT. My Ribavirin dosage was 1,000 a day the first month, reduced to 600 the second month (after 2 days off, then 2 days at 200 after an ER visit) then up to 800 the third month.

I want to thank all of you who have been such a wonderful support for me through all of this—I don't know what I would have done without all of your cheering and knowledge. I will post a scan of the report after I pick it up tomorrow for you all to see.

Sandi
32 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Over 4 months since EOT for me as well. Genotype 2, 12 weeks Sovaldi/Ribavirin. I got my SVR12 news on July 16.  Even though I never really had any symptoms from the virus or side effects from the treatment my life is forever changed from the experience. It was a major wake up call for me in terms of my health and as weird as it may sound I feel like I am a better person for it. I don't post all that often but I do check in here every day. I will chime in when I think there is something positive can add. I am in awe of the perseverance and courage of those who have fought this battle over and over. Dave
Helpful - 0
7469840 tn?1409845836
Yes Kim, out is thrilling when someone SVRs, and it is heartbreaking when "one of our own" relapses. It seems so arbitrary who succeeds and who doesn't. Of course I know there are so many variables, but as you have said, so many of us started about the same times once Sovaldi was approved, and there were such expectations by our doctors and us. But we all knew there were no 100% promises. So we will continue to offer encouragement to those who are awaiting or undergoing Tx until all these dragons are slain, then we can use this forum as a celebration of our lives. Sandi
Helpful - 0
Avatar universal
Sandi.  I so understand and get what you are feeling.  When you think about it, other then clinical trials we were the first group to ever start this miracle Tx.  I'm going on 5 months since EOT, and as you have stated it has been a game changer in my life as well.
I also feel connected with everyone who started Tx together with us.  We entered uncharted waters, without advice or warning as to what could, or shall we say, would be the outcome.  It was so great to be able to share with others Sx such as emotional issues, expectations, fears, uncertainty, depression, rage, encouragement,  physical limitations, even your hair loss.  
For that, I am so grateful to be a part of this community as we have supported each other with compassion and hope.
When some of us relapsed, it felt as tho I relapsed along with them.  This is why I am not going anywhere until all of our fellow friends reach SVR, and I know you feel the same way.  Sadness does not even express how it felt when some of us became detected once again.
I'm so excited for the newest meds to hit the shelves.  We are all on the verge of making history, as Hepatitis C will finally see its downfall.  In the meantime, I sit and wait until that day.
Again, Congragulations my fellow warrior!
...Kim
Helpful - 0
7469840 tn?1409845836
September 1st, four months EOT. Can't believe it has been 4 months since then. The treatment was such an important milestone of my life. It gave me a mortality wake-up call. I am feeling fine physically, my hair is growing back, sort of a reverse perm, like my hairdresser said. The new hair is coming back wavy at the bottom of my straight damaged hair, plus I have a 1/2" fringe that has grown in too. Went to see a movie in a theater last night, the first time in a long time, and I had a hard time with anxiety, it was too over whelming and I had to close my eyes several times, so that is a little left over from Tx I think. I am still watching the forum, because I want all of my friends here to achieve SVR too. It seems incomplete without that happening, but I know it is soon for most everyone. Feeling blessed.
Helpful - 0
Avatar universal
FANTASTIC NEWS!!! well done love Jules
Helpful - 0
Avatar universal
Wooohooo.  Congrats!  I am so thrilled for you.  I, of course, HOPE to be following you.  Susan400
Helpful - 0
7469840 tn?1409845836
Thank you for all the good wishes—and right back at you! I hope to be seeing more good news from you all in the near future as this first graduating class of Sovaldi completes it's Tx, and gets the 12 week EOT results. I have changed my photo to a dragon slayer. Also if you go to my profile page, I have posted a scan of my LAST HCV RNA QN Test! It just makes it all the more real for me now to share it with you. Now for the 1st time in 30+ years, my liver can repair itself and be healthy. So keep on fighting fellow Slayers!
Helpful - 0
Avatar universal
Great news ! Very happy for you!
Helpful - 0
Avatar universal
Hey Hey, good news day! Way to go!
Helpful - 0
Avatar universal
Congratulations!
Helpful - 0
Avatar universal
Hallelujah .....so happy for you!
Helpful - 0
Avatar universal
CONGRATULATIONS!!!!!
Helpful - 0
Avatar universal
Congratulations!!! What wonderful news!!!!!
I am 7 wks post EOT - same triple tx - and look forward to joining you soon in the ranks of SVR12.
Helpful - 0
6708370 tn?1471490210
That is such wonderful news!!
Helpful - 0
Avatar universal
Brava! Very encouraging...you must be walking on air! Ding Dong the Dragon's Dead...So very happy for you but I hope we'll all be able to sing that song! Go live your hep c free life!!! So great!!!!
Helpful - 0
1838299 tn?1403492543
Congratulation. ..... how encouraging. ..
Helpful - 0
Avatar universal
Well my fellow warrior, you did it!   "Party Time".    We can toast with some
Ensure, to keep from getting overly fatigued!!!!!!    A big Congragulations for you.
Even tho you had to take the dreaded interferon, the trio worked and you are one lucky lady.
Please enjoy your new found health and freedom from the Hep C virus, as
the effort is so worth the prize.   I am soooo very happy for you.
xoxo.    Kim

Helpful - 0
Avatar universal
Congratulations!  Well done!  I'm so pleased for your success!  And no more tests!
Best --
Mark
Helpful - 0
Avatar universal
No Hep C for you!  A wonderful freeing feeling it must be  I see you twirling in organza to impressionistic music in slow motion.  Okay, I confess - I was just watching So You Think You Can Dance - got carried away.  But I imagine it to be that way for you.  

Very best wishes as you dance off into the sunlight, with or without the organza.
Helpful - 0
Avatar universal
YAY!!!!!  Woo Hoo!!!  I am so happy for you!  What an amazing feeling it must be!  Savor it and enjoy the best news any of us could here!!  

Thanks for sharing and giving hope to those of us still on the journey.  

Again,  woo Hoo!!!!!!  :)
Helpful - 0
Avatar universal
What an exciting day for you. Today should be a second birthday for you.. The birth of a new life without hepatitis.  So wonderful to hear... You made my day so much brighter.  Take good care of yourself.   Mary
Helpful - 0
Avatar universal
Congratulations!!!  Could not be better news!  

What a wonderful thing for you - and how inspiring for those of us who follow you!  Pat
Helpful - 0
215858 tn?1420171556
Congrats, you did it hepcfreesandi!  Yay!
V.
Helpful - 0
Avatar universal
You need a new handle!!!!!   Great news.  I am thrilled for you! Jo
Helpful - 0
2
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.