GS7977 Study Patients Here!!!

[countrygirlcansurvive]

I would like to get all of us in this Study on the same page.Please leave (small) Paragraph about yourself,Diagnosis,and how you are feeling during your 12 week Journey..Thanks.I hope everyone is feeling as good as I do. DAY 13 is awesome!

Country

[Cheesegrater]

I am sure we all wish to know about your experience, Eki1.
Were you ever treated with only interferon and riba and if so, did you respond or were null?

What genotype, 1a, 1b, 2, 3...?

How long were you on gilead treatment?

Have you SVR 4, SVR 12 or SVR 24?

I think this info will help others decide what type of treatment they want in the future.
Thanks

Cheese

[Eki1]

I'm so glad to be able to finally post on this epic thread.

Last spring I failed triple therapy.  That qualified me for a clinical trial that just opened for Sofosbuvir/5885/Riba.  I'm on the pills now for 12 weeks.

There are four arms to the trial:
12-week, Sofosbuvir/5885
24-week, Sofosbuvir/5885
12-week, Sofosbuvir/5885/Riba
24-week, Sofosbuvir/5885/Riba

I can answer any questions about my trial.  They didn't put me under an NDA or anything like that.

I wanted to add that this forum was fantastic to me last year while I was treating, particularly when I failed.  I'm grateful to all the people who donate so much of their time and energy to help those in need.

[Renee543]

I went for my blood work yesterday and it will be a couple of weeks before I know the results. Something that was brought up on the other forum was that to be in this study you either had to be txt naive or cirrhotic. The nurse told me yes, that is true that you could automatically be in the trial if you were either but if you fell in between (which I may) I had to have a biopsy. She did not tell me what the biopsy had to indicate in order to be in the trial. I just sent her an email asking that very question. She made it sound like if I were in between the two that the biopsy would tell for sure. That i needed to be one or the other. Well I know I am not at the low end and not sure if I am at the high end (Cirrhotic). So I guess this will depend if I can be in the trial or not. Which is now disheartening to know. I did not fully understand this yesterday. I will let you know what the nurse says.

[jerialice]

wow!!! great news y'all, i am waiting for those FDA approvals. i got so sick from tx (soc) both times that i have to wait until i know that tx is milder and effective (finally) i am geno 1-b with low VL and minimum fibrosis and inflammation. possible a result of the times i did tx with soc.

after my bx last fall, i have the luxury of waiting a bit. but i am so pleased that you all are having GREAT results!!! yay!!!
happy new year
jerialice

[countrygirlcansurvive]

Hello!
  Riba is Riba no matter what you take with it...GS7977 (Sofosbuvir) is the Best out there right now.I went with the Sofosbuvir,Riba and Inf for 12 weeks.Side effects was really mild ,hardly any other than brain fog from Riba..
  I am 11 weeks @ EOT.I am doing better than I was b4 tx.I cant wait till I find out if I have reached SVR..March or April they say..

Good Luck to You!

HAPPY NEW YEAR TO EVERYONE!!!

~Country~

[270217-1b]

So good to hear about all the amazing results from those doing the trials. I have  what I think is my last post study appt this next week (might not be the last but close to it since I finished meds in October).  Don't think I will hear any numbers but will be seeing my gp the week after that on something totally unrelated and am gonna ask him to run my vl.  Good luck to all of you still in the middle of the trials!