GS7977 Study Patients Here!!!

[countrygirlcansurvive]

I would like to get all of us in this Study on the same page.Please leave (small) Paragraph about yourself,Diagnosis,and how you are feeling during your 12 week Journey..Thanks.I hope everyone is feeling as good as I do. DAY 13 is awesome!

Country

[countrygirlcansurvive]

I have hadHepC for 27yrs.Iam Geno 1a.I have Cirrhosis.I am on DAY 13 on this Study and I am doing fine with it..I feel better today than I have in years..Thats a Good sign..Good Luck to you all

[UKgirl55]

Are you on the 7977+Riba or 7977+790052, or 7977+052+Riba? Are you on 12 weeks, or 24?

[JDB1964]

GS7977 + Riba. UND at 7 days!! Geno 3a , starting VL 100000. Had Hepc for 30 years, healthy no biopsy. Took 4 week post treatment labs yesterday. Praying for continued UND.

Felt ok during traetment. LFT nrmalized within 7 days also.

[jsf52]

Sounds like you are off to a great start and that you are quickly moving to a cure.  What is the trial number that you are on?  

[countrygirlcansurvive]

I am on the GS7977, Ribavirin, and Interferon! GS-US-334-0110..its a 12 week program..I also take anziety,BP Meds and Tylenol.Oh and Zantac..

[leemoon]

I will begin my treatment soon. I will also be participating in GS-US-334-0110. I guess I am a rare one as I have genotype 6 with no fibrosis and treatment naive.

[countrygirlcansurvive]

Welcome to Our forum leemoon! Glad you Chimed in also.Here we will be able to see how things are going with others on the same page as us..I hope you add this to your watch list and keep us informed on your ups and downs..So far I haven't had any downs..Thanks and God Bless!

Good Luck

Country

[peggy156]

G4 here being screened in NYC for Gs 7997, interferon and Riba. Treatment naive, diagnosed a year ago, from blood transfusion 35 yrs ago. Expect to hear within a week. Good luck to all of you already on treatment

[leemoon]

This is definitely on my watch list. I signed up just for this page because I am getting quite nervous and being able to see how people are doing on the same study is comforting. I am very happy to hear that you are doing so well. I hope all others who are on this same study are feeling good too. Best wishes to all!

[jerialice]

will know more soon! going to SA to get with research doc!!!
hoping for all orals- can't take INF again....
blessings to everyone, healing healing and life!
jerialice

[thefighter2]

Have an opportunity to do GS-US-334-0110. I am 26 year old male in great physical shape. my fibrosure tests came at .09 which is at the lowest level. Im told a biopsy isnt necessary when the test is either really low or really high. Im worried about the horror stories ive read about interferon and im not sure if i should wait for an all oral interferon free trial. Genotype 1b im told that i should be able to cure with GS7977+RV+Peg for 12 weeks. Also my doctor said peg for 12 weeks isnt that bad and that most negative side effects are cumulative. Any advice would be great.

[mdudley]

Hi Jerialice...I sent you a private message but not sure if my mail is working properly.  Please let me know if you receive it or not.

Thanks,
Margaret

[mdudley]

What a great idea, countrygirlcansurvive!  Will be watching this by the minute :).  Glad to hear you are still doing well!  Keep us posted...it is music to my ears ;)

[jen322]

I am so happy to read such great results my Dr put me in bit they said my platelets were to low they were seeking a 90 or better - anyone here have low platelets? He did say I will do it when it comes out in a year.You all give such good hope for the future!

[countrygirlcansurvive]

Hi Jen322! Are you in this Study yet or waiting to start it?I just got my 1 week Lab results from starting this Study on June 29th.It shows Normal Range for the Platelet count is 140-400..My screening Day6/18 it was 244 on and on 7/5 it was at 296..

DAY 15 of 12 weeks for me on the tx,and also Friday's is my Shot days.Im still feeling pretty good.I have a couple of side effects,Bad Brain Fog ( meaning short term memory is getting bad) and I get out of breathe very easily..Other than that I FEEL GREAT!

@ MDUDLEY :) thank you very much..If I can keep my mind together I will continue to post everyday.

God Bless All

Country

[countrygirlcansurvive]

I would have to ask the more Experienced ones on here to give the Advice you need.I am Sooo New here and I dont have ANY knowledge at all about HepC or Cirrhosis other than I got it.Thats why I came on here to learn from the ones that have been going through this tx ordeal longer than me.

So Hector, Pooh, Cando and  All of you feel free to Clue us in on whats what.

Thanks
Country

[can-do-man]

Well I'll throw in my pennies worth, sounds like your doctor is pretty much on top of things. At your age and such a low fibrosure test I would agree a biopsy isn't needed and also 12 weeks of interferon should not be a problem... That said you do have plenty of time, you could wait and watch how these meds do with just a short treatment time frame. as I'm not sure if there is any data yet on only 12 weeks of treatment. Within a few years we should know alot more about these drugs and total treatment times.

Good luck on deciding, I hope everything works out for you.

countrygirl, hope all is well with you.

[thefighter2]

Thanks for your input. Really want to get some thoughts about what someone would do in my shoes. I know I can wait for interferon free trials but am I losing out by passing on this 12 week trial? I would probably be done with this before another trial opens. Again, its the interferon that scares me. I think that GS7977 and BMS trial that had great results is still on my mind.

[can-do-man]

Before I would do a 12 week trial I would want to know if it doesn't work, then what? Geno 1a and only 12 weeks would I this early out? No way.

Interferon shouldn't be your biggest worry, effecting future treatments if this doesn't work should be.. Just my opinion.

[thefighter2]

Its the same trial as countrygirl is doing is she a genotype 2 or 3?

[countrygirlcansurvive]

  Interferon shouldn't be your biggest worry, effecting future treatments if this doesn't work should be.. Just my opinion.

- Just exactly what do you mean Can-Do-Man by effecting future treatments if this doesn't work should be..  
Are you saying once you have been in a Study its hard to get into another one? Just Curious !
BTW..they just called and my HgB has dropped from 13.9 at Screening
date to 10.6 they are getting in the results as they are coming in now.That explains the Brain Fog that I read somewhere on one of these forms someone said it was their HgB was low..So they dropped 1 Riba pill per day now and got to go back in next week again... instead of every 2 weeks they wanted to start me on ..The Interferon hasn't bother me as much as the Riba,maybe its to early into tx to tell.I actually feel better after the Shot than I do the rest of the week..DK

Thanks for your HELP

Country

[thefighter2]

Thanks for the update country how far along are you. I would be starting first week of august.

[countrygirlcansurvive]

Day 15...Just give myself the 3rd Shot of Interferon...I feel good though

[thefighter2]

What is your genotype and any liver scarring going into treatment? Hope you don't mind me asking but I'd be starting when you'd be halfway thru.