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Avatar universal

Gov't Funding/Re: Sharing Cosmetics

I'm making this a separate thread so it isn't buried in a thread with an unrelated title.

In the sharing cosmetics thread a few of you started talking about the lack of funds for awareness, etc. Last year the Division of Viral Hepatitis got $17.5M. There is something you can do. Below is a copy of the letter that went out to Senators. It was prepared by the National Viral Hepatitis Roundtable. The due date for the letter is May 1, 2009. Also, it needs to be sent only through your Senator's webform on his/her website otherwise it may be marked as spam and get trashed. I'm told that snail mail is not good either due to the previous anthrax scares. You can find your senator's email web form here:

http://www.senate.gov/general/contact_information/senators_cfm.cfm

Here is the template for you to use:

The Honorable____________________
United States Senate
Washington, DC  20510

Dear Senator,
I am requesting your support for increased funding for the Centers for Disease Control and Prevention’s (CDC) Division of Viral Hepatitis (DVH) in the Senate stimulus package.  Increased funding for DVH will make a significant impact in reducing the morbidity and mortality from chronic viral hepatitis, an investment that would not only prevent viral hepatitis infections, but stimulate the economy by creating much needed jobs.

We also want to thank you for your longstanding commitment to maintaining the health of our nation by vigorously supporting federal funding of our nation’s public health and research agencies. Through your leadership, CDC is poised to turn the tide against chronic viral hepatitis in the United States but can not respond effectively without additional funding.

Specifically, we are seeking the following hepatitis-specific funding:

$53 million to improve the detection of viral hepatitis by creating a complete and consistent national surveillance system;
$113 million to reduce illness and death from chronic viral hepatitis by building the capacity of state and local health departments to provide counseling, testing, education, case management, public awareness, and professional education;
$66.6 million to eliminate hepatitis B transmission among adults in the U.S. by providing vaccines to high risk adults and the infrastructure necessary for vaccine delivery; and
$26.4 million to prevent hepatitis B transmission and disease among infected pregnant women and their infants by creating a comprehensive case management program to vaccinate and monitor exposed infants, referring infected mothers for appropriate care, and screening and vaccinating family members.
Up to 5-6 million Americans are infected with chronic hepatitis B virus (HBV) or hepatitis C virus (HCV), which are the leading causes of primary liver cancer -- the fastest growing cancer in incidence in the U.S.  Each year, 10,000 Americans die prematurely from end-stage liver disease or liver cancer due to chronic viral hepatitis infections. Without an increase in funding to support prevention and surveillance capacity, chronic viral hepatitis will exact an unacceptably high burden of disease, death, and associated costs on the American public. Immediate action will avert this result.

We strongly support the need to invest in CDC capacity to win the battle against chronic viral hepatitis, which will ultimately lower health care costs and most important, improve the health and longevity of our citizens.

Respectfully,

Now you're going to notice that there is a lot of money for hep B also and you may ask why can't hep C advocates go after just hep C funding. There are a lot of reasons that the people working on funding, legislation and policy have decided to go in this direction. The CDC has recently re-organized and made Viral Hepatitis part of a group that includes, TB, SSTD's and HIV. Another reason is that the government is moving away from one disease funding. They do not want to see "Ryan White" all over again. So the best shot at getting more money for HCV is when you "bundle" it.  So use this as a template or write your own letter before May 1, 2009.

Thanks,
Susie




39 Responses
87972 tn?1322664839
Thanks, Suzie; I just e-mailed Senators Feinstein and Boxer; I appreciate your help,

Bill
Avatar universal
Great post, Susie.  I will send this on to Senators Lieberman and Dodd.  Thank you.

jd
729288 tn?1251258033
Everyone on this board should be doing this. as well as their friends and family.

TY Susie
Avatar universal
Thanks for getting right on this. I'll try to keep everyone informed of what is going on as soon as I hear anything.
87972 tn?1322664839
.
729288 tn?1251258033
I live in SC but born and raised in Ky. Senator Mitch McConnell of Ky was a friend of my dads and last years former senator was my 2nd cousin. I have been in touch with both on the issue.

Also Ive sent the letter to both SC senators.
768754 tn?1373922337
Thanks for posting this.  The letter refers to "we" in the plural.  Do we have permission from the National Viral Hepatitis Roundtable to include their name in our letter or should we change the "we's" to "I"?
Avatar universal
You don't need permission from the Roundtable. I don't think it matters if you change the we to I, althugh it does sound better that way. I did it for you in the first word of the first sentence and then never gave the rest of the letter a thought. sorry 'bout that. And thanks so much for sending the letter.
146021 tn?1237208487
Thanks so much! I can't think of a more fufilling way to spend a sleepless night. Cornyn and Hutchinson contacted, thanks to you!
Bug
476246 tn?1418874514
I would gladly join you all, if I lived in the US... So instead I am wishing you good luck with creating this awareness in your country.

You are all in my prayers.

Marcia
475300 tn?1312426726
Did my duty LOL, Casey and Spector

Denise
545538 tn?1295995617
Sent it to John Kerry/Massachusetts. I'm also sending it to Ted Kennedy (who I feel terrible for).
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