Hi Scott. Thanks for posting. I think we have some good news for you.
Since you have a number of issues going on concurrently you really need the best medical help available. You don't happen to say were you live. Perhaps you can let us know. I am glad you have the right attitude to beat these challenges.
You need to be under the care of a hepatologist at a liver transplant center. They have the knowledge and experience treating others with the issues you have. If one of the largest transplant centers in near you, they will be experienced treating patients with HIV as well and hepatitis C. I can tell you that at my transplant center, UCSF, they do transplant patients with HIV so there is no reason and it is poor bedside manner for any doctor to ever tell you to prepare to die. They are WRONG. You still have options.
Robo’s (Rob’s) Medhelp homepage:
Rob also has HIV and is very knowledgeable about medical matters and I am sure he can help you.
Back to your platelet issues. It is not uncommon for cirrhotics to have our platelet counts fall very low. If this happened after only a week then you may not be able to treat your hepatitis C at least with a treatment that contain interferon which is what causes the platelet count to fall. There are many of us with cirrhosis that are unable to treat because of our liver disease. But you can treat after transplant so all is not lost if that is the case. The main issues is for you to get the best care possible now. So you can stay as healthy as possible for as long as possible until you get a transplant.
If you can provide more information about how advanced your cirrhosis is, who has been treating you, and where you liver we can better help you.
I am listed for transplant at 2 transplant center so I can help you get through the process step by step as it can be confusing to someone who is not familiar with transplant center requirements, protocols and systems.
Here is a video from 2009. Although it is old it will give you some good info on transplant for patients with HIV.
"Dr. Peter Stock of UCSF presents an update on liver transplants for HIV positive patients a practice that has been considered experimental."
Hang in there.
(I have HCV, End-Stage Liver Disease and liver cancer (HCC) and hope to get a transplant within the next 6 months here is San Francisco).