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Hep C....Part of us forever??
Hey Guys & Gals!!
How is everyone? I have a question that is bugging me..Even though we clear this virus...say for over a year. Will this always show up in my blood as my having Hep C? But just so viral load? I know Jamie had posted she is a 1B but no viral load but I'm wondering how she could have a strain or genotype for that matter if no virus in her?? Hey...its been a beautiful week and I have been working in yard and feeling great (knock on wood) and planting my red bud!! So I'm really excited that I'm starting to have a few good days now to do things I love to do.
How is everyone? I have a question that is bugging me..Even though we clear this virus...say for over a year. Will this always show up in my blood as my having Hep C? But just so viral load? I know Jamie had posted she is a 1B but no viral load but I'm wondering how she could have a strain or genotype for that matter if no virus in her?? Hey...its been a beautiful week and I have been working in yard and feeling great (knock on wood) and planting my red bud!! So I'm really excited that I'm starting to have a few good days now to do things I love to do.
<a href="http://www.liverfoundation.org/db/stories/1014">Liver Transplant: Life on the Liver Waiting List</a>
It is from <a href="http://www.liverfoundation.org">the American Liver Foundation</a> and you can bet your liver they don't have "Dr." Teresa Hanbey listed there!
I ran Teresa's nonsense by my doctor and he did more than shake his head, much more.
Anyway, some stuff from the article above:
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"There are currently over 17,000 people waiting for liver transplants. In 1999, there were approximately 4,500 cadaveric livers available for transplants. Over 800 people died last year while waiting for a transplant and the rapidly increasing number of diagnosed hepatitis C cases will increase these deaths."
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I am sure it is worse now, as that was written in 1999.
It is from <a href="http://www.liverfoundation.org">the American Liver Foundation</a> and you can bet your liver they don't have "Dr." Teresa Hanbey listed there!
I ran Teresa's nonsense by my doctor and he did more than shake his head, much more.
Anyway, some stuff from the article above:
---------------------------
"There are currently over 17,000 people waiting for liver transplants. In 1999, there were approximately 4,500 cadaveric livers available for transplants. Over 800 people died last year while waiting for a transplant and the rapidly increasing number of diagnosed hepatitis C cases will increase these deaths."
---------------------------
I am sure it is worse now, as that was written in 1999.
<a href="http://www.organdonor.gov">Organ and Tissue Donation/Transplantation</a>
GREAT site! Thank you bystander2002 - Scott
GREAT site! Thank you bystander2002 - Scott
my wife can't give blood either. She doesn't have hcv, I do.
When you give blood you have to fill out a questionare. One of the questions is whether anyone in your immediate family has hep.
BLOOD is pooled. (mixed with other donors blood). That's why people with hep can't give blood.
Organs are a different deal altogether.
When you give blood you have to fill out a questionare. One of the questions is whether anyone in your immediate family has hep.
BLOOD is pooled. (mixed with other donors blood). That's why people with hep can't give blood.
Organs are a different deal altogether.
Gracias.
I bave read/heard, can't remember where though, that the number of livers needed as those with HCV progress (this is assuming treatment fails, new drugs are not found, etc.) to ESLD (and I will go out on a limb -- don't slap me too hard -- and say that if we live long enough we will develop serious complications from HCV) will be not even close to the need. Liver rationing is an ugly idea isn't it?
I bave read/heard, can't remember where though, that the number of livers needed as those with HCV progress (this is assuming treatment fails, new drugs are not found, etc.) to ESLD (and I will go out on a limb -- don't slap me too hard -- and say that if we live long enough we will develop serious complications from HCV) will be not even close to the need. Liver rationing is an ugly idea isn't it?
You mean the part about people on the liver transplant list dying while waiting? Yeah, I've heard that too.
Let me know if that is what you want me to find out/look for.
Scott
Let me know if that is what you want me to find out/look for.
Scott
That is awful!! How on earth would they know however that your hubby had hep c? it wouldn't show up in your blood work??? that definitely takes the cake!!
Hey!! Thanks so much for reposting the hair situation LOL I did not see the original one you posted way down there so am so glad you did that!! And yea...You have not lost any hair!! That makes my day!! haha I hope today is a better day for ya as I saw your posting last night!!
Barry, it's been a while since I saw your name - and believe me it's really nice to hear that you are well. Drop in once in a while would you? Good luck always. Mike
Hey you, If you are ever in AZ, come up my way. I have a desert tree and cactus farm...still don't know that much about the plants..as it's a new bus. and I have been too wrapped up in my self lately. but I'd be happy to walk you through it. It took me a few years living out here to really be able to appreciate the beauty of the Sonoran.kim
Bart..thanks for cheering us up!!
Bart..thanks for cheering us up!!
Spouses of people with HepC can't donate blood, either.
I am and have always been neg for HepC, and they won't take my blood. I was told you must be 1 year from "any sexual contact" with a person who has HepC. (yes, even though the disease is rarely spread via sexual contact by monogamous couples).
Good luck with the life insurance issue. My husb is now almost 2 years clear, and we recently tried to get supplemental life insurance. Flatly denied. When asked when he could be considered, we were told "never". We only tried a couple of companies, though.
He could have, however, have gotten some very small ($5K)policies.
He still has slightly elevated liver enzymes, though, so that could be why.
I am and have always been neg for HepC, and they won't take my blood. I was told you must be 1 year from "any sexual contact" with a person who has HepC. (yes, even though the disease is rarely spread via sexual contact by monogamous couples).
Good luck with the life insurance issue. My husb is now almost 2 years clear, and we recently tried to get supplemental life insurance. Flatly denied. When asked when he could be considered, we were told "never". We only tried a couple of companies, though.
He could have, however, have gotten some very small ($5K)policies.
He still has slightly elevated liver enzymes, though, so that could be why.
It's great for us newbys to hear stories like that. I'm so happy for you. I would say you are about as cured as they come.
I also heard that people with hep c and donate organs to other people with the disease. Of course, I don't remember where I saw it. I'm bout brain dead and haven't even started tx yet.
I also heard that people with hep c and donate organs to other people with the disease. Of course, I don't remember where I saw it. I'm bout brain dead and haven't even started tx yet.
Dallas- http://forums.delphiforums.com/friendship7/messages?msg=12385.1 (and it has more links there)
Joni- donors with Hep C aren't required to have SVR. There's no rule about that.
The way I understand it is that they look at what shape the organs are in and decide whether to use them.
Joni- donors with Hep C aren't required to have SVR. There's no rule about that.
The way I understand it is that they look at what shape the organs are in and decide whether to use them.
Yep...Get that tree! I will too and maybe if we all plant that tree...haha We will have some luck from it! Hey...Gotta tell you...I had a dream the other night about everyone at this forum and it was so funny!! I saw your name today and remembered I was leaving the room and you were sitting there and talking and well...it was just like I thought you would be in real life! Really Weird! And everyone here...I could descibe and could tell you all about it but it would take up pages LOL hahahahaha Rev...was in it Rofl really a riot! Talk about some weird riba dreams!
G.I.P.A. reported several times a few months ago that after being undetectable for five years, we can get both health and life insurance,if we don't have it now. If we have it now, hold on to it.But really the no blood donations and marrow donations make sense because we don't know enough yet about long term. The no organ donation is just as bad because we do know that the disease effects every organ in out bodies, even corneas. Maybe someday they will be able to do biopsies on other organs and check for virus &/or antibodies to see if they are there, but until they can know for sure, I wouldn't want to risk giving this hell to someone else. Just my opinion. Joni
I've heard the same thing GIPA said: after 5 years we can get life insurance again.
Awwww...you having a bad one!! I thought about you the other day and honestly sometimes I forget because you are always so cheerful...that you kinda have double whammy going here and my heart goes out to you!! I just don't understand it and wish so bad I could remove both from you and set you free!!
OK:
I consider myself an old timer. One of the first on this site when peginterferon was in study. Diagnosed in 1999 with hep c, genotype 2b, viral load of 1.5 million, ALT & AST just below/above 100. Went on peginterferon & ribavarin study for 6 months. Was undetectable at 8 weeks. Was undetectable ever since. Been tested once a year for last 3 years. Still undetectable. I will show for antibodies but not sure for how long. Maybe forever. Doesn't matter. This is a virus. You either have it or you don't. Those that are undetectable after treatment but relapse shortly afterwards do so because there was still miniscule virus left in the system that was not detectable. After treatment the virus again replicates and comes back "usually" where it was just prior to treatment. My research & Doctor's have told me "if you are clear 6 months post treatment, then that is considered a cure". I have not met or heard of anyone who has relapsed post 6 months treatment. If there are any out there, I really don't want to know about it : ) As far as I'm concerned, I beat the dragon. Life is great once again. Praise the Lord!
Regards,
Barry
I consider myself an old timer. One of the first on this site when peginterferon was in study. Diagnosed in 1999 with hep c, genotype 2b, viral load of 1.5 million, ALT & AST just below/above 100. Went on peginterferon & ribavarin study for 6 months. Was undetectable at 8 weeks. Was undetectable ever since. Been tested once a year for last 3 years. Still undetectable. I will show for antibodies but not sure for how long. Maybe forever. Doesn't matter. This is a virus. You either have it or you don't. Those that are undetectable after treatment but relapse shortly afterwards do so because there was still miniscule virus left in the system that was not detectable. After treatment the virus again replicates and comes back "usually" where it was just prior to treatment. My research & Doctor's have told me "if you are clear 6 months post treatment, then that is considered a cure". I have not met or heard of anyone who has relapsed post 6 months treatment. If there are any out there, I really don't want to know about it : ) As far as I'm concerned, I beat the dragon. Life is great once again. Praise the Lord!
Regards,
Barry
People with Hep C can be organ donors.
Many transplant centers are now using donor organs that are positive for Hep C (and Hep B)
Donor organs that are Hep C + are only given to recipients who are already Hep C +
(Many people on the waiting list are Hep C +)
There's a severe shortage of organ donors.
Everyday (EVERYDAY) 18 people on the transplant waiting list die waiting (waiting for an organ that never came).
Don't let being Hep C positive stop you from signing an organ donor card.
Many transplant centers are now using donor organs that are positive for Hep C (and Hep B)
Donor organs that are Hep C + are only given to recipients who are already Hep C +
(Many people on the waiting list are Hep C +)
There's a severe shortage of organ donors.
Everyday (EVERYDAY) 18 people on the transplant waiting list die waiting (waiting for an organ that never came).
Don't let being Hep C positive stop you from signing an organ donor card.
Hi again folks,
I found a place that shows the "Carolina Silver Bell" for sale from their inventory. It's a beautiful tree indeed!
http://www.naturehills.com/
I haven't purchased from them so I don't know any more than what I see there. I am however, a member of "The National Arbor Day Foundation" but couldn't find this tree there.
Tosser ;o)
The previous companies mentioned are not affiliated in any way shape or form with "Tosser" and unfortunately I didn't get paid to advertize here so that means this isn't a solicitation but mearly a comment posted by an old Hep-C dude who happens to love trees and wants to share it with his friends! Hehehe!
I found a place that shows the "Carolina Silver Bell" for sale from their inventory. It's a beautiful tree indeed!
http://www.naturehills.com/
I haven't purchased from them so I don't know any more than what I see there. I am however, a member of "The National Arbor Day Foundation" but couldn't find this tree there.
Tosser ;o)
The previous companies mentioned are not affiliated in any way shape or form with "Tosser" and unfortunately I didn't get paid to advertize here so that means this isn't a solicitation but mearly a comment posted by an old Hep-C dude who happens to love trees and wants to share it with his friends! Hehehe!
TwoTells...haha Noooo You were not weird!! The dream was weird because what I picture you as..was right on the money! You seem just like a very laid back sorta guy and just kinda takes life as it comes and seems like not awhole bothers you! Anyways it was funny seeing the whole group there!!
Revenire...Rofl No strait jacket but haha after catching up on your latest postings which seems like mostly yesterday...I'm thinking to myself as I'm reading this stuff...hmmmm...wondering here if we are needed to send a gurney and yes...Straight Jacket out to Rev's and awwww his poor wife...ROFL How is she handling being in this house with all the blinds down and her hubby peeking out between the shades ever so often because he is....Parenoid!! LOL Then thinking she really must be a doll and needs a medal!! hahahaha Just kidding with you!!
Revenire...Rofl No strait jacket but haha after catching up on your latest postings which seems like mostly yesterday...I'm thinking to myself as I'm reading this stuff...hmmmm...wondering here if we are needed to send a gurney and yes...Straight Jacket out to Rev's and awwww his poor wife...ROFL How is she handling being in this house with all the blinds down and her hubby peeking out between the shades ever so often because he is....Parenoid!! LOL Then thinking she really must be a doll and needs a medal!! hahahaha Just kidding with you!!
That is wonderful that you beat it!! Its great hearing from people that have actually done this and also life after tx...That will be my day of celebration!!
Thank you for posting that. I have always believed in organ donorship and still says I am on my driver's licence. Do they check people for diseases b4 they use organs, and if not is there a way to get on a list where they know I am or was infected,how lond we have been SVR etc? I surely would list on something like that! Joni
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