Aa
A
A
A
Close
Hepatitis C Community
13.4k Members
522377 tn?1212151888

Hepatitis C and autoimmune hepatitis together

Hello everyone.  I have been surfing the net in total confusion and dismay for the last few hours.  I happened upon this site about 20 minutes ago and at least am now beginning to settle down a bit.  I was diagnosed last May with Hepatitis C.  I have been in recovery from heroin addiction for the last year and a half and decided a couple of months ago to see a specialist about going on inerferon(spelling error probably).  I underwent the bloodtests and was told today that I also have positive results in autoimmune hepatitis also.  I haven't gotten the liver biopsy yet.  I will be getting that in the next couple of weeks.  My doctor said that we'll wait and see and he didn't go into it all that much.  So, of course, after getting home I jumped on the computer to see what I could find out.  It's been a pretty stressful evening.  There is nothing that I can find that gives me any hope and I am afraid. If anyone has any information for me it would be very much appreciated.  Thank you all for your time.

lizzy
9 Responses
Avatar universal
welcome dear one,  pull up a chair, take a deep breath and sit a spell.  you must have angels looking after you to land here.  we are all laypeople here although once in a while a brilliant physician know as HR will stop by.  some of the laypeople here know more about this disease than the doctors who treat us. i have been diagnosed with cirrhosis and have not yet been able to teat - so i do not consider myself an expert.  if you haven't already you may want to read through some of the past posting.   if you have specific questions please ask away and one of the lay-experts will chime in.  
eric
148588 tn?1465782409
Get a second and third opinion confirming your diagnosis. It's my understanding that the treatments for AIH and HCV are each contraindicated for the other problem. (Steroids for AIH and interferon for HCV each can cause problems for the other.) If this is truly your situation you're going to want the best specialist with the most experience dealing with this particular situation. Good luck.
Avatar universal
Be sure to check out the Autoimmune Hep forum here at MedHelp, too:

http://www.medhelp.org/forums/show/224


David
Avatar universal
your beautiful. hepaptitis is easily treatable dont worry and good luck with heroine.
Avatar universal
I suggest you start treating for hep C and if you respond poorly in the first 12 weeks consider AIH to be responsible. Many tests for AIH are falsely positive so repeat them.
Avatar universal
If you really do have autoimmune hepatitis and hepatitis c virus then your treatment approach is very different form someone with only hepatitis c. Do not listed to any advice here other than advice to be sure and get good medical advice.
The last poster is flat out wrong when he suggests that you start treating and see what happens. Autoimmune hepatitis is a situation in which your immune system is attacking your liver and since interferon boosts the immune system starting on interferon could further and significantly damage your liver.
Talk to a knowledgeable hepatologist and then come back and let us know what advice you received.
Mike.
Have an Answer?
Top Hepatitis Answerers
317787 tn?1473362051
DC
683231 tn?1467326617
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.
Smoking substitute may not provide such a healthy swap, after all.