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How to move on after svr

I've been svr since March of last year.  I am still struggling with insecurity because of it.

When I first found out I told a few friends.    Apparently 12 years later people are still spreading it around.  If they see me with someone they tell them for you know she has hep c?  I'm struggling with the ignorance and I'm unsure how t go about the feeling better from the inside and not caring what people think.
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Avatar universal
So..  Today I feel as though I had an epiphany.    I've realized the connections of negative experiences and people that had to do with hep c and just the acceptance of myself.  I've never accepted myself because of it.  Because of a few ignorant people.  But I know now that I am cured and I shouldnt even be afraid to admit I've had it in the past.  I need to take control and stop walking around like I have something to hide and be shameful of.  I always went after guys who didnt like themselves.  Didnt accept themselves.  Which mirrored what I felt inside.  I fell for guys and pushed them away which validated the fear of losing them feeling I had inside.  It all makes sense now.   I told my best friend for the first time about this.  And she laughed at me.  Said seriously?  And you are letting this still effect your life for what reason?  
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You have a good best friend.   She knows what best for you.
Avatar universal
The doctor at the Lair Center used to phone me at my former workplace himself. He phoned several times trying to persuade me to take peg-interferon for 24 weeks, and said my chances were "80% to 85%" despite my having failed interferon/ribivirin before and despite the previous Lair Center doctor telling me my chances were not so good for several reasons (my age, stage 4 cirrhosis, weight about 100 kg, type 2 diabetics, genotype 3a and previously failing treatment).

Thankfully, I have a better, more conscientious doctor now and go to a different clinic where everyone is very professional. I'm on a clinical trial of new drug combination called MK3682B.
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Avatar universal
I am so sorry that all of you have had such bad experiences.  I have never hidden my Hep C.  That does not mean that I wear a sign around my neck or bring it up out of the blue, but with people I worked with, family, friends, my church family, my doctors and their staffs.  If I have had any negative reactions I have not known about it, and would be disappointed in anyone who dropped my, not for myself.  When talking to people who asked me, in public settings, about my Hep C - now former Hep C - I speak of it freely and in whatever voice the conversation is in, never whisper, etc., and have had people come up to me and ask if they can ask questions.  I feel like a spokesperson for " get diagnosed, get treated, get cured".  

I wish everyone who has this or who had it, had my type of experiences instead of the negative experience you all have suffered.

Freedom, talk to you Dr immediately!!! That nurse needs to be fired! Your medical conditions, medications, treatments, are CONFIDENTIAL!!! The nerve of her telling ANYONE what she did!  She could have simply said I am call from Dr' Office and it is important.  Period!!

Blessings, All,

Pat
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6708370 tn?1471490210
This is just sad that we have to "pretend" we had a life-threatening disease and beat it. Not so much with other diseases like cancer where people talk about how courageous one is in their "battle" with cancer

Sigh...

You are all heroes in my book
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Avatar universal
When I had an unsuccessful peg-interferon/ribivirin treatment  in 2012, the doctor and nurses at the Lair Center in Vancouver sometimes phoned me at my workplace.  At one point when the receptionist asked a nurse why she needed to talk to me, the nurse replied something like "I'm a nurse at the Lair center, he's being treated for Hep C."  

After that, word got around my workplace, and the man in the office across the hall and another in the office next to mine were afraid I would spread the Hep C virus to them through the air. They became upset after I sneezed a few times in the morning when the air conditioning came on, and made an official complaint about me to the manager.

Some people are very paranoid about catching Hep C and so it's wisest to never tell anyone. Always make sure the medical staff where you are taking treatment know to NEVER, EVER phone you at your workplace.

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Avatar universal
I learned a long time ago not to say anything to anyone about it. Fortunately I've just reached svr24 and I'm fairly confident I'm cured, but I think deep down each of us isn't totally confident whether we admit it or not. Either way, I've obviously told my wife and siblings, that's it, and I kind of wish I hadn't told my sibs.
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7469840 tn?1409845836
I found out that I have to be careful who I tell about it now. I found out during treatment and after how judgemental people can be. I had to let go of one friend, and now it is no ones business. You may need to let go of those people who think they are "holier than thou".
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