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Hows Canada

still looking for possible IL28B testing and any of the latest in Canada, Has anyone filed in Ontario for transfusion compensat claim, just wondering about questions and procedure of the health long term care Hep C assist program.
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Avatar universal
Hi  there...Unfortunately there is no lab  in Can . doing the IL28B test..well as of a month ago when I looked into it

I was told I  by Lapcorp and Quest in the fine country to our south that I could have it done there( with a doctors prescription obviously) at one of their sites. I believe the cost quoted was 350.00 but another member from the U.S may know better on that.

I don"t understand what you mean by the "long term care " question.

There are programs to assist with medications if not insured (depending on what province you are from) if that is what you mean..
Best..
Will
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1765684 tn?1333819168
Will, when I entered this study I was told that there would be a 'genetic testing' component.  Is this what you're talking about?

None of my blood work is done locally.  It's sent south of the boarder, I believe.
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Avatar universal
Hi Sue..yes   that was the same in my trial  The genetic IL28B was done also and sent to a lab in New York State..same as all results.

I had checked into having the IL28 B done  in the U.S. before I found out it was done as part of my trial.. I don;t get the results until my trial is unblinded   Is that how yors will work?
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1765684 tn?1333819168
Yes, I believe so.  :)  Thanks.
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1689583 tn?1387752394
There is one hospital here in Montreal that does the test, and if you do not believe me ask doncherry on this forum who is also from Montreal who was referred to my specialist and is now treating  he got the test done before his tx.
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Avatar universal
Hi will, it is a claim in Ont for heppers from transfussion befor 86 includes single pay out for hardships if from transfusion and only maybe 1 year to claim and only if you learn recently of HCV. There is an additional federal fund also which is scaled to conditions from the worse the liver the higher the pay off and also limited time to claim .
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Avatar universal
I take it your on tx for type 1
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Avatar universal
Hi there...I misunderstood what you meant in your post .I thought you were asking about treatment drug assistance.
I live in Ont, and yes I am aware of the OHCAP program in Ont. on the one time payout if the requirements are fulfilled   Below is the site and I believe you can download the app. or phone for one.

http://www.health.gov.on.ca/english/public/program/hepc/hepc_assistplan.html


Also,as you may know there is a "Health Canada" .federal  plan as well as the Canadian Red Cross.

I have not looked into any of these in great detail myself as I don"t qualify for any however I do believe they are still in effect.

I was treating Geno type 1 last year in a trial and  was not successful and am waiting for the trial to be unblinded before I try again.

Best to you..
Will,
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1752948 tn?1466354161
Hi. I did my IL28B test at St Luc's in Montreal. I cannot say unequivocally that it was processed there yet that was my impression. If it matters I can find out next Monday. Have a good day.
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Avatar universal
I did file for both claims prov. and fed, and I would be interested in your type as to your success in posible relation to this gene, It could be a CC CT or TT of IL28B.
Thanks for sharing
Christoph
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Avatar universal

doncheery&sirhic:

Hi Don...Yes I would be very inteseted if the IL28B is processed in Quebec. I have looked into it further here in Ont. and have yet contacted any lab that does it here. Mine was done at a large liver clinic in Tor. and was still sent to N.Y
However that was part of the study I participated in and all labs were sent to N.Y
Again..I would appreciate the info. when you get it Don and thx.

sirhic: When I get my results for the IL28B I will let you know .I would be very surprised if I was the CC as my treatment was not susseful ,however they seems to be very little predictability when it comes to HCV and treatment..
Best..
Will
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Avatar universal
Yes I think they want to keep that data hidden, and it has proven to be a predictor of a mor  thana reasonable amount (as far as I'm concerned). This is the only reasonable predictor  If it is a probable cause of say50% failure and leaving posible unchangable damage. If the major population was of type CT or TT the pharma would loose a lot of sales. They make money wether you fail or not. What it does for the pharma is give them another long term avenue to find another drug to pile on the existing soc.  I think they would like to say it works well just got to produce more drugs for the few. In such it may delay process of other successfull all orals. The pharmcueticals all want a chunk of the pie .  There's tons of us out there.
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1752948 tn?1466354161
I have an appointment Monday morning with my nurse/clinician. i will be sure to ask as to the location of the genetic processing.
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Avatar universal
Plus I would love to know the IL28B of many who pass in relation to success. Why should the government be paying a 100,000 a shot for something that ain't going to work. Especcially if it's knowingly.
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1765684 tn?1333819168
Are you talking about interferon?  Where does it cost $100,000 a shot and where is the government paying for it?
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Avatar universal
No it's a genetic test that may indicate your chance to win while using SOC tx or the new 3tx trv/boc or even some others like TMC
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Avatar universal
I am refering to a complete treatment package and ON. gov is covering addon drugs. plus the old soc if your on disability from what I understand.
The gov covers all my prescript and if not in the package it is turned over tto the Trillium fund (or what ever). I am saying even if the tx is 50,000, if for say an IL28B test is affordable at say 200 a test. Out of 250 patients if ten are 90% chance of failure thats 500,000 saved plus the misery with the knif in the end for the ten that fail. I am talking total package including doctors, clinics, labratories, nurses, prescription drugs, sorry maybe the cost to treat is much much more.  
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